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Top 10 Search Results for "living with ankylosing spondylitis flares myspondylitisteam members on what its like"

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Is Spondylitis An Autoimmune Disease Too ?
A MySpondylitisTeam Member asked a question 💭

I am a newly diagnosed patient with Spondylosis. My condition is very advanced, considering I'm just 33 years old. I have a plethora of non pain related symptoms all day everyday in Conjunction with my pain and limited mobility. Is this considered an autoimmune disease too?

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A MySpondylitisTeam Member

I know AS is auto-immune as i have had it since I was 20. Spondylosis is not auto-immune.

I Have Spondylosis Not Spondylitis Any One Else Have This As They Are Different
A MySpondylitisTeam Member asked a question 💭
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A MySpondylitisTeam Member

I started taking vitamin B-1 (thiamine )
100 mg twice a day
Three Days flat I had no sciatica going down my right leg
Then I am an insurance agent , so when I enrolled a friend in medicare (… read more

Is Anyone Part Of One Of Those "accountability Groups" For People With Diseases Like AS?
A MySpondylitisTeam Member asked a question 💭

Recently my Facebook feed has been FULL of friends talking about their different health and wellness accountability groups and how this shake or that protein powder changed their lives and makes them feel so much better. I actually love the idea of a group of people working together to reach positive health and fitness goals- but it can be daunting knowing that I would have days where I just can't do the things everyone else is, and that few people would even understand why. Is anyone part of a… read more

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A MySpondylitisTeam Member

I add juice to Ensure to soften the chalkie taste. Favorites are pineapple & mango. Apple & grape are too mild.

Is Ankylosing Spondylosis The Same As Ankylosing Spondylitis?
A MySpondylitisTeam Member asked a question 💭
I Was Just Told I Do Not Have Spondylitis But Spondylosis. Does Anyone Have Any Information On This?
A MySpondylitisTeam Member asked a question 💭
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A MySpondylitisTeam Member

The second one comes from age disease, the first one comes from systemic and genetic disease. I'm not sure but I think you might be lucky to have the one that is age related.

Need Information About Myspondylitisteam
A MySpondylitisTeam Member asked a question 💭

Hello ,can someone please tell me how do I approach my doctor about this, I mean I have Fibromyalgia and have had it for many years. But this past year something was going on with me all I want to do is sleep my whole body hurts like a giant tooth ache
I used to get flare ups with my Fibromyalgia, but this is most of the time it’s just there and it feels like it’s getting worse
I have this burning in my lower spine and when I walk it starts to burn and I need to make sure there a place… read more

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A MySpondylitisTeam Member

I feel your pain, so sorry
I have Fibromyalgia and today a total flare day. Take a shower and keep warm, helps muscles relax. Rest read a good book or put on a good movie. Tomorrow will be a better… read more

Is Anyone Hla Negative And Still Diagnosed As?
A MySpondylitisTeam Member asked a question 💭

My doc tried to get me in a drug trial but the mri didn’t show inflammation and hla b27 was negative so I don’t qualify. Now I’m stressed that this info will make him rethink my diagnosis. I was happy(sort of) to finally having an answer to why I’m in so much pain all the time and get on track to feeling better(sort of). His diagnosis was based on deteriorating of the si joints caught on an X-ray.

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A MySpondylitisTeam Member

I am negative also. My doc said it doesn’t matter that much. I have AS in my neck and si joints/ lower back. All my blood work was also normal. I was misdiagnosed with fibromyalgia and now I was… read more

Here's My Question...is There A Difference?
A MySpondylitisTeam Member asked a question 💭

I hope this isn't a stupid question. My MRI shows my entire neck has Spondylosis. I'm fixing to undergo my 2nd cervical fusion and it will be a double fusion.Is there a difference in Spondylosis & AK Spondylosis?

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A MySpondylitisTeam Member

Hi Neilt52
Probably we all hurt like that. I think it as to do with the change in the barometric pressure. Winter hurts too. I finally got rid of Aunty Flow and Uncle Arthur moved in. Ugh!!!… read more

Is There A Difference Between Spondolitis And Spondylitis??
A MySpondylitisTeam Member asked a question 💭

Is there a difference between Spondylitis Pain and Lumbar Spondylosis???

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A MySpondylitisTeam Member

The hand pain! I have AS. I have intermittent debilitating flare-ups, and days that are tolerable. Recently my hands and shoulders have had so much pain. My neck has hurt nonstop for a few years. It… read more

I'd Like To Know Who Else Was Misdiagnosed For Years, Decades Even And Now Are Living With Advanced Ankylosing Spondylitis?
A MySpondylitisTeam Member asked a question 💭

Is there a viable option other than opioid therapy for those of us living with advanced ankylosing spondylitis? If there is I have not found it.

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A MySpondylitisTeam Member

Derrick4 "Is there a viable option other than opioid therapy": OTC products, anti inflammatories (not great on the stomach), biologicals (TNF, IL-17 and JAK inhibitors (all have risks and downsides)… read more