Connect with others who understand.

sign up log in
About MySpondylitisTeam
Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "what kind of mattress do people recommend for as"

reset

What Kind Of Mattress Do People Recommend For As

What Kind Of Mattress Do People Recommend For As

I have an adjustable bed and bought one of the "My Pillow" mattress toppers which has allowed me to occasionally sleep in my bed with my husband. Unfortunately i been sleeping in a recliner for bpught 7 years.

A MySpondylitisTeam Member said:

I have an adjustable Sleep Number bed. It works great for me.

posted about 1 month ago

Covad And Axspa

Covad And Axspa

So the CDC recommends a vaccine for people with diseases of immunosuppression. Does that include Axspa?

A MySpondylitisTeam Member said:

I am on Triazolam 0.25 x2 at bed. Now when you take them make sure you are in bed and plan to stay there. You will be hard to wake up for at least 6-8 hrs and you will remember nothing. I sleep walk… read more

posted 4 months ago

Elhers-Danlos Vs Spondylitis

Elhers-Danlos Vs Spondylitis

Hi everyone
I am wondering if anyone with experience of both Spondylitis & Elhers-Danlos may be able to help me understand the difference between symptoms of each. I just found out that Elhers-Danlos runs in my family on my dad’s side, while Spondylitis runs in my my mom’s family. I’m having trouble getting a diagnosis beyond fibromyalgia but I’d like to narrow it down more if possible as (1) I would like to try to address/tread root causes of pain & prevent future damage, and (2) I’m scared my… read more

A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member
Thank you for all this information - very helpful. 😊
I have seen the 'cupping' method and hot stones. I need to find one close to home. Waiting to see if the SI… read more

posted 6 months ago

Does Anyone With AS Take Humaira.

Does Anyone With AS Take Humaira.

My husband is 69. The doctor recommended he get on Humaira. His blood work showed no inflammation. Is this normal in some with AS? It appears that Humaira is for inflammation. What alternatives are some of you on?

A MySpondylitisTeam Member said:

Try Remicade or Enflectra (not sure on the spelling). It's the samething. It took most of my pain away the first day and it shortly takes care of the skin too. I have really bad psoriasis with other… read more

posted 6 days ago

How Do YOU Cope?

How Do YOU Cope?

I am curious how everyone finds ways on a daily basis to cope with their challenges. Everyone has unique circumstances and experience this condition in unique ways. I am interested in learning the unique ways everyone has for coping. My biggest change for how I cope is a gratitude practice and part of that is connecting on this platform with others who can relate. I know how bad this disease can get and I am grateful everyday that I am nowhere near experiencing the worst of it. I accept where I… read more

A MySpondylitisTeam Member said:

Thank you for the hug. A big one back to you. How have you been doing?? Still staying busy, I hope. I had a bone scan today. Doc wants to take some things off of the table. CT scan tomorrow. What a… read more

posted 5 days ago

When Others Don't Understand

When Others Don't Understand

Being newly diagnosed, explaining this disease is difficult and at times awkward. My parents especially don't understand (they're in their 80's, still doing phenomenally well), Mom thinks I'll heal up and get over it. I've always lived in a culture of pushing yourself to get the job done, that if you're too tired or hurt, you're weak, lazy, not strong enough mentally. I find myself frustrated at myself for those reasons but am learning to be ok with resting when I need to. But helping those in… read more

A MySpondylitisTeam Member said:

Hope you are feeling better today. Try to do the things today that make you feel happy to be alive. Peace.

posted 17 days ago

Does Anyone Else Have Trouble Controlling Your Body Temperature? Sometimes I Am Freezing, Other Times Burning Up.

Does Anyone Else Have Trouble Controlling Your Body Temperature? Sometimes I Am Freezing, Other Times Burning Up.

If I sit or lay down for too long, my fingers and toes get very cold and soon, I feel like I am freezing to death. When I get up and move around, I feel okay after a little while. But, if I move around a lot, I over heat, and it takes forever to cool off and i feel very weak.

A MySpondylitisTeam Member said:

The discs push against the spinal column So my legs go numb too. I had a real bad car accident ten years ago
I got mattress pads and nice fluffy pillows. Mattress pads make all the difference… read more

edited, originally posted 5 months ago

What Will Life Be Like On A Biotherapy ?

What Will Life Be Like On A Biotherapy ?

Hello everyone :)

So I’ve been diagnosed and my treatment have failed to work … my rheumatologist evoked the possibility of getting me on bio therapy . I’m kind of scared of what my life might look like during the treatment …. I’m not really looking for people explaining what a biotherapy is , but more for people telling me what life is like when on this treatment .

Here are some questions I’m wondering about :

What kind of changes should I expect from it ?

Will I still be able to go to… read more

A MySpondylitisTeam Member said:

Thank you for your answer :)

Yes , that would be a good thing to reduce all the travelling i have to do , but im afraid i wont be able to take care of an appartment in my own . I still live at my… read more

posted 2 months ago
Can a Rheumatologist Help With Your Back Pain? Read more >

Pain Relief

Pain Relief

What else can help with pain
And what type of mattress would help everything I have tried just puts so much pressure on the places that hurt. I dont sleep well at night Im costantly tossingfrom side to side because my hips hurt and wake me up.

A MySpondylitisTeam Member said:

Yes ma'am pillows on that memory foam knees and back helps too. A couple muscle relaxers, tall Bourbon and Zoom Zoom, off the planet a couple hours. 😃

posted 5 months ago