Connect with others who understand.

sign up log in
Resources
About MySpondylitisTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? ask question
Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:
Have You Received The Shingrix Shingles Shots?
A MySpondylitisTeam Member asked a question 💭

I am 66. About to start a biologic. Nervous about getting the shingles shot and also biologics. I'd love to hear about your experiences or thoughts. Thank you!

posted 16 hours ago
View reactions
A MySpondylitisTeam Member

I would discuss it with your Dr. I take valtrex for another issue and crossing my fingers that it keeps the shingles away.

posted 16 hours ago
Does Anyone Lift Weights And Run? If So, How Do You Manage The Pain?
A MySpondylitisTeam Member asked a question 💭

I was diagnosed last week and not on meds yet. I don’t want to give up exercising but I am in so much pain, even with walking. Will being on biological help so I can workout without pain? My visit is tomorrow with my Rheumatologist and he plans to put me on Biologics.

posted 1 day ago
View reactions
A MySpondylitisTeam Member

From what I know the medication should reduce the pain considerably. I go to the gym and it does help me. However I found I must not push my self to hard don’t compete with others or yourself. For me… read more

posted 18 hours ago
Postoperative Bilateral Lumbar Rfa
A MySpondylitisTeam Member asked a question 💭

Postoperative rfa two weeks. I'm struggling with a burning, tingling, stabbing, and numbness type pain on the sides of both hips and my lower back under the injection sites. Is this normal
I can't sleep with this--taking Ibuprofen, using ice, heat, tried sports cream and penetrex cream. Even tried taking hydrocodone and that doesn't help either. Nothing really helps with this odd sensation. The skin is sensitive to the touch and can't even tolerate clothing rubbing. Also having back spasms… read more

posted 2 days ago
View reactions
Boney Protrusion On Crest Of Back Hip Bone
A MySpondylitisTeam Member asked a question 💭

I'm fairly new at this game and I worry about my health alot and this am I woke up and felt pain in my lower back and I felt right above my left hip bone and theirs a quite painful Boney protrusion on that area normally I don't have lower back pain because I had my sacroiliac joints fused and my fiance think that it just my hip bone but it not on the other side the protrusion get less in size when I stans and is more when I sit and bend now I already put in a call to my pcp and a message to my… read more

posted 2 days ago
View reactions
A MySpondylitisTeam Member

Praying for better days ahead. Maybe with summer coming well all start to feel some better

posted 2 days ago
Has Anyone Had A Whole Side Swell Up Randomly With AS?
A MySpondylitisTeam Member asked a question 💭

My whole side has swelled up two different times. From my hip to my ribs it’s painful and it stays that way for multiple days.

posted 3 days ago
Be the first to like/hug
Do Injections Into The Sacroiliac Joints Help With The Diagnosis Of Ankylosing Spondylitis If They Help Reduce Pain.
A MySpondylitisTeam Member asked a question 💭

I was given an injection in both sides on Friday was told this is a step towards getting a diagnosis. I already have a positive HLA-B27 gene test and was given another test for inflammation like a lupus test but it was borderline sadly my mri shows no inflammation. But naproxen takes the edge off and since having the injections I feel like I'm spaghetti 90% of my pain has subsided. Can anyone advise ?

posted 3 days ago
View reactions
A MySpondylitisTeam Member

I'm not aware of the injections being a way to find a diagnosis, but it very well could be. As for no inflammation, you could ask your doctor about non-radiographic axial spondyloarthropathy. My son… read more

posted 16 hours ago
Has Anyone Invested In Walk In Whirpool Tub And Has It Helped?
A MySpondylitisTeam Member asked a question 💭
posted 4 days ago
View reactions
A MySpondylitisTeam Member

I have a whirpool tub and even a lift belt to raise and lower but twisting and getting in and out and raising my legs takes all the progress away. They are very pricey that is why I would like to know… read more

posted 3 days ago
Does Anyone With Ankylosing Spondylitis Have Stomach Issues As Well?
A MySpondylitisTeam Member asked a question 💭
posted 4 days ago
View reactions
A MySpondylitisTeam Member

Some of the NSAIDs can upset your stomach like this. But, also people with AS and other autoimmune diseases are more likely to develop an inflammatory bowel disease, as well.

posted 16 hours ago
What Do You Take For Controlling This Disease? What Are Natural Things You Do As Well?
A MySpondylitisTeam Member asked a question 💭
posted 5 days ago
View reactions
A MySpondylitisTeam Member

Thank you for sharing! I agree diet is key. I also walk a lot that has helped my body in the long run. It made me stiff and flared at first but doing a min of 2 to3 miles a day has been beneficial.

read more

posted 4 days ago
Does Anyone Ever Have The Sensation Of Numbness In Your Toes? Mine Occasionally Feel Like Something Is Wrapped Around One Or Two Toes.
A MySpondylitisTeam Member asked a question 💭
posted 5 days ago
View reactions
Already a Member? Log in