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Spondylitis

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Whats The Next Step In My Treatment ?

Whats The Next Step In My Treatment ?

Hello :)

So , I’ve been diagnosed relatively recently , and my rheumatologist tried to get me on anti inflammatories , but it has failed to work . I’m wondering abt what the next step in my treatment might be . She alluded to bio therapy , but will she put that in place right away ( it’s the 2 nd time I see her ) ? Will she try and up my dosage ? Do you guys have any idea what she’ll do ?

Thank you in advance for your answers :)

Can a Rheumatologist Help With Your Back Pain? Read more >

What Will Life Be Like On A Biotherapy ?

What Will Life Be Like On A Biotherapy ?

Hello everyone :)

So I’ve been diagnosed and my treatment have failed to work … my rheumatologist evoked the possibility of getting me on bio therapy . I’m kind of scared of what my life might look like during the treatment …. I’m not really looking for people explaining what a biotherapy is , but more for people telling me what life is like when on this treatment .

Here are some questions I’m wondering about :

What kind of changes should I expect from it ?

Will I still be able to go to… read more

Can a Rheumatologist Help With Your Back Pain? Read more >

How Should I Respond To Someone, Who Compares My Spondylitis Pain With Their Normal Fatigue Or Pain And Says I Overthink My Pain?

How Should I Respond To Someone, Who Compares My Spondylitis Pain With Their Normal Fatigue Or Pain And Says I Overthink My Pain?

A MySpondylitisTeam Member said:

For me, sadly yes. It's one of the hallmarks of this disease I'm finding. Getting the inflammation under control helps as well as sticking to a regular sleep pattern if possible. Naps are a must. I've… read more

posted 5 days ago

Anyone Have A Spinal Stimulator Implant?

Anyone Have A Spinal Stimulator Implant?

I am to have surgery for this implant on the 22 of oct..and I am nervous about the pain involved with it in addition to my back pain as they wont turn the device on till after I am healed. Any advise and experience welcome

A MySpondylitisTeam Member said:

GypsyRoseleeMartinez oh my god Why.? .tell me? I had to do so much testing and shots and they recommend this/..I cant say no if it might help What do I have to go thru that makes you say that.

posted 5 days ago
What is Spondyloarthritis? Read more >

How To Announce To People I Have AS ?

How To Announce To People I Have AS ?

So , I’m 19 and I’m in college . I keep meeting new people , and I always wonder how and when to tell them i have AS . I don’t want to bother them with all the details at once , so i stay elusive until they ask questions . Also , im scared as to when to tell a potential future romantic parter abt it . I just don’t want to sound either too dramatic or secretive about it , since I’m pretty open about it .

How and when do you tell people you have AS ?

A MySpondylitisTeam Member said:

My program required a lot of rugged, outdoor activities, such as back packing, rock climbing, etc. I got special treatment by being allowed to replace some trip assignments with essays, or being able… read more

posted 6 days ago

When Others Don't Understand

When Others Don't Understand

Being newly diagnosed, explaining this disease is difficult and at times awkward. My parents especially don't understand (they're in their 80's, still doing phenomenally well), Mom thinks I'll heal up and get over it. I've always lived in a culture of pushing yourself to get the job done, that if you're too tired or hurt, you're weak, lazy, not strong enough mentally. I find myself frustrated at myself for those reasons but am learning to be ok with resting when I need to. But helping those in… read more

A MySpondylitisTeam Member said:

Thanks for liking my post. I hope you are having a good day. We have a baseball game to go to this evening. Our Grandson is 7 now & he's really liking it. Practice, practice. Have a wonderful evening… read more

posted 1 day ago

Has Anyone Had A Spinal Cord Stimulator Implanted For The Pain

Has Anyone Had A Spinal Cord Stimulator Implanted For The Pain

I just relocated from Fl to MO. Pain management is so different here. He has said I am a candidate. I know 2 people personally who have had one done calling it "life changing., the other said she can wait clean and cook again which is very difficult for me right now!

A MySpondylitisTeam Member said:

I just finished my SPS trial. It went really well! Waiting now to have it permanently planted!

posted 9 days ago
What is Spondyloarthritis? Read more >

Taltz

Taltz

Does anyone have experience with Taltz? My doctor suggested that I try it to help with stiffness. Have been on Enbrel for about 2 years, it is great for pain, but does little for stiffness. Thank you

A MySpondylitisTeam Member said:

Thank you!!

posted 18 days ago
Could Your Back Stiffness be Caused by Spondyloarthritis? Read more >
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