Spondylitis

Questions + Answers

Don't see your question? ask question
View:
7 medium

Bit embarrassing, but...

Bit embarrassing, but...

Is anyone bowel incontinent? I have started leaking out poo and I don't know it's there until I go to the loo and I, well, smell it! My GP is treating me for severe impacting, so I'm on Laxido, was on Lactulose but it didn't do the trick . But, since taking it (started last Friday) twice daily, from Monday this week, several times a day, there is always some poo (and I mean several wipes worth, we're going through loo roll at a rate of knots ) sometimes quite a bit on my… read more

6 mini
A MySpondylitisTeam Member said:

Miralax solved my daughter's issue with the backup. I have had such difficult constipation it literally felt like concrete! (Sh*t a brick!) I took Senna… read more

posted about 1 hour ago
7 medium

Does anyone else have trouble controlling your body temperature? Sometimes I am freezing, other times burning up.

Does anyone else have trouble controlling your body temperature? Sometimes I am freezing, other times burning up.

If I sit or lay down for too long, my fingers and toes get very cold and soon, I feel like I am freezing to death. When I get up and move around, I feel okay after a little while. But, if I move around a lot, I over heat, and it takes forever to cool off and i feel very weak.

7 mini
A MySpondylitisTeam Member said:

My doctor said a few years ago, that I'm border line diabetic. I guess I need to get it rechecked. Thank you.

posted 1 day ago
2 medium

Exercise: Yes or No?

Exercise: Yes or No?

Do you find exercise helps with your illness'? I have PsA, Fibromyalgia and Severe Asthma- just to name a few. My husband thinks I need to start exercising, but I disagree. Walking takes a toll on me. Moving around hurts, even more. I don't think he understands the depth of my conditions. When a doctor (pain management) says they are sorry and there is nothing they can do for you, you would think....it's bad, really bad. I try to walk at least 500 steps daily. Some days are better than others.… read more

9 mini
A MySpondylitisTeam Member said:

I have heard of this but know little of it. Is that the machine you lay in?
@A MySpondylitisTeam Member

posted 1 day ago
0 medium

"Brain fog",memory loss

"Brain fog",memory loss

Is this a normal thing? Will it get better or worse? I also have SLE(lupus),and they're blaming it all on "brain fog." This has me feeling so stupid at times, and ashamed.

9 mini
A MySpondylitisTeam Member said:

It is horrible, I've put the aluminum foil away in the refrigerator before....ugh...but after 5 years I now laugh at it...

posted 10 days ago
5 medium

Does Anyone use TEETER HANGUP to reverse spinal compression.?

Does Anyone use TEETER HANGUP to reverse spinal compression.?

I have been using TeeterHangup about 12 years now and I'm pretty sure it's the only thing that has saved me from being crippled. The inversion therapy is like a blessing. I don't mind hanging upside down for a few minutes a day or a week. It's less expensive than going to get stretched on a table. Does inversion help anyone else.?

5 mini
A MySpondylitisTeam Member said:

I did the therapies on the table and it although it felt good to some degree it was more painful then the Teeter Hang Up. I actually feel no pain with… read more

posted 12 days ago
5 medium

Anyone on a Biologic med, have you received/taken the Shingles vaccine? Your experience afterwards? Side effects?

Anyone on a Biologic med, have you received/taken the Shingles vaccine? Your experience afterwards? Side effects?

I'm 52, on Enbrel and wondering about if I should get the Shingles vaccine.

8 mini
A MySpondylitisTeam Member said:

@AbigailRandle
Thanks for information this is very important to know as doctors are so busy these days and don't always check your notes to find out… read more

posted 14 days ago
1 medium

Could the nausea be caused by the condition of my spine effecting the nerves to my stomach?

Could the nausea be caused by the condition of my spine effecting the nerves to my stomach?

I usually don't pay much attention to physical discomfort bit yesterday it got so bad I took myself to the ER. I was having severely nausea and loan up the sides of my back. Blood tests and a cat scan showed nothing wrong, in fact a couple of nurses commented on how they rarely see a healthier specemin of my age.

9 mini
A MySpondylitisTeam Member said:

That's odd because I've seen six neurologists and they all said it has a great deal to do with your spine as it is the main pathway for most of your… read more

posted 14 days ago
5 medium

hello this is my first time on here ,, hope u are all ok x ive had horrendous back pains (lower back) for sometime now !!

hello this is my first time on here ,, hope u are all ok x ive had horrendous back pains (lower back) for sometime now !!

i went eventually to the dr and sent me for xray, they didnt tell me results so i got them online,, body alignment maintained, there are minor spondylitic changes with lower lumber spine, no further bony abnormality changes,,, what does that actually mean,, i am in constant pain every day and relying on my morphine and amitriptyline to get me through,, only time its ok is wen i am sat still ?? i ave… read more

5 mini
A MySpondylitisTeam Member said:

i was put on gabapentin and then pregablin which like u say sends ya crazy and put on bloody 4 stones in weight so i was taken off them but cannot shift… read more

posted 15 days ago
7 medium

Does anyone use a neck traction device for pain relief? If so, which one/type? Thanks.

Does anyone use a neck traction device for pain relief? If so, which one/type? Thanks.

5 mini
A MySpondylitisTeam Member said:

I was advised NOT to use a neck brace.. But I do inversion therapy on my TeeterHangup device.. I am sure it has saved me from being crippled.. And… read more

posted 12 days ago
7 medium

Do we have THIS in common too?

Do we have THIS in common too?

After mentally focusing as long or intense as I can handle on a "less brainfoggy" afternoon (or hour), I am then more deeply exhausted than ever! It takes me DAYS (or longer) to recooperate back to "My usual."

It's BRAIN activity, not muscle activity. Why is my BODY deeply fatigued?

9 mini
A MySpondylitisTeam Member said:

Well said ! Truth!

posted 15 days ago
Continue with Facebook
Sign up with your email
Already a Member? Log in