Quick Links
About MySpondylitisTeam
Powered By
I am 66. About to start a biologic. Nervous about getting the shingles shot and also biologics. I'd love to hear about your experiences or thoughts. Thank you!
I would discuss it with your Dr. I take valtrex for another issue and crossing my fingers that it keeps the shingles away.
I was diagnosed last week and not on meds yet. I don’t want to give up exercising but I am in so much pain, even with walking. Will being on biological help so I can workout without pain? My visit is tomorrow with my Rheumatologist and he plans to put me on Biologics.
From what I know the medication should reduce the pain considerably. I go to the gym and it does help me. However I found I must not push my self to hard don’t compete with others or yourself. For me… read more
Postoperative rfa two weeks. I'm struggling with a burning, tingling, stabbing, and numbness type pain on the sides of both hips and my lower back under the injection sites. Is this normal
I can't sleep with this--taking Ibuprofen, using ice, heat, tried sports cream and penetrex cream. Even tried taking hydrocodone and that doesn't help either. Nothing really helps with this odd sensation. The skin is sensitive to the touch and can't even tolerate clothing rubbing. Also having back spasms… read more
I'm fairly new at this game and I worry about my health alot and this am I woke up and felt pain in my lower back and I felt right above my left hip bone and theirs a quite painful Boney protrusion on that area normally I don't have lower back pain because I had my sacroiliac joints fused and my fiance think that it just my hip bone but it not on the other side the protrusion get less in size when I stans and is more when I sit and bend now I already put in a call to my pcp and a message to my… read more
Praying for better days ahead. Maybe with summer coming well all start to feel some better
My whole side has swelled up two different times. From my hip to my ribs it’s painful and it stays that way for multiple days.
I was given an injection in both sides on Friday was told this is a step towards getting a diagnosis. I already have a positive HLA-B27 gene test and was given another test for inflammation like a lupus test but it was borderline sadly my mri shows no inflammation. But naproxen takes the edge off and since having the injections I feel like I'm spaghetti 90% of my pain has subsided. Can anyone advise ?
I'm not aware of the injections being a way to find a diagnosis, but it very well could be. As for no inflammation, you could ask your doctor about non-radiographic axial spondyloarthropathy. My son… read more
I have a whirpool tub and even a lift belt to raise and lower but twisting and getting in and out and raising my legs takes all the progress away. They are very pricey that is why I would like to know… read more
Some of the NSAIDs can upset your stomach like this. But, also people with AS and other autoimmune diseases are more likely to develop an inflammatory bowel disease, as well.
Thank you for sharing! I agree diet is key. I also walk a lot that has helped my body in the long run. It made me stiff and flared at first but doing a min of 2 to3 miles a day has been beneficial.
… read more
We never share your personal information with anyone.
Continue with Facebook
Sign up with your email