Spondylitis

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6 medium

I am starting simponi does anyone have that treatment

posted 4 days ago
A MySpondylitisTeam Member said:

so sorry I have no idea what it is like

posted 4 days ago
9 medium

Female issues/Pudendal Neuralgia?

Anyone have intermittent genital nerve pain/tingling? My pelvic PT says it may be pudendal neuralgia from spinal muscle spasms pressing on a nerve. She also said the pelvic area tightens when the SI joints need help. But my rheumatologist says the genital tingiling is from fibromyalgia.

posted 5 days ago
A MySpondylitisTeam Member said:

I have that tingling every so often also. Im embarrassed to say it but at times i leak urine and BM. Have to wear pads all the time .

posted 4 days ago
9 medium

What test or method is needed for ankylosing spondylitis for disability to see if criteria is met for blue book listing 14.09?

I am really having difficulty getting what should be a simple answer to a simple question. If anyone knows the answer please do share. I need a test to measure the Ankylosis (fixation) of the dorsolumbar or cervical spine as shown by appropriate medically acceptable imaging and measured on physical examination at 45 or more of flexion from the vertical position (zero degrees); I have… read more

posted 11 days ago
A MySpondylitisTeam Member said:

I'm from mn..never had a measurement done .I was denied two times before I got disability.

posted about 6 hours ago
3 medium

what are peoples thoughts on wearing a cervical collar for support and pain relief

I have had cervical spondylitis for many years and pain is increasing I take pegablin, paracetamol and non steroidal.
thanks
Richard darwin

posted 14 days ago
A MySpondylitisTeam Member said:

thank you

posted 13 days ago
8 medium

Hydrocodone

Is it stronger than codeine?

posted 15 days ago
A MySpondylitisTeam Member said:

Yes stronger buy 2 or 3 times.

posted 15 days ago
9 medium

Does anyone know what foods help with spondylitis, EDS, Nerve Damage, Stenosis, and more

I also have circulatory disease, Scoliosis, fibromyalgia, impaired mobility, risk for falls, Osteoarthritis, CAD, Parkinsonism, Mycoplasma caused disease and on and on..

I'm in constant chronic pain.

I'm very happy that I DON'T have - high blood pressure, diabetes, osteoporosis, or cancer.

Any info would be appreciated.

posted 21 days ago
A MySpondylitisTeam Member said:

Thanks

posted 14 days ago
4 medium

Flu jab

Does anyone know if the flu jab helps with AS ? Considering the flu like symptoms that comes with AS will this help?

posted 23 days ago
6 medium

What are your experiences with Celebrex and Humera?

Hello everyone! I need some advice. I have Ankylosing Spondylitis and have a really hard time with anti-inflammatory meds. All of the nsaids that my Drs have given me to this point and the otc ones I've tried on my own have really done a nasty number on my stomach. So, today my new rheumatologist prescribed Celebrex for me saying that he has had some really good luck with it being better tolerated by patients with stomach issues like myself. We also discussed my… read more

posted 25 days ago
A MySpondylitisTeam Member said:

Humira worked really well for me. Celebrex didn't really do much for me. I had relatively few side affects from the humira, with sinus infections being… read more

posted about 13 hours ago
9 medium

When is it time to try biologics?

I was diagnosed with non-radiographic axSpa a few months ago. I’ve tried several NSAIDs, PT over the years, exercise, prednisone, injections etc., all of which have helped some, but I am still having pain.
The rheumatologist wants me to try 4 weeks of prednisone again, along with Tramadol, to see if that will help. When I mentioned concerns about progression, he said that I shouldn’t worry about it - but that Enbrel might be an option if I would like to try it.
I appreciate all… read more

edited, originally posted 27 days ago
A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member good to know, thank you :)

posted 25 days ago
0 medium

Spinal surgery

I got spndylylis anklosing .ive been having numbness and painsand kneedles also my back feels as if been pulled apart .ive also had problems with my leg giving way ,i know have to irrigate myself cause of loss of feeling in my back passage. I been under drs had pain injections also had mri s xrays everything but nobody told me i loose the feeling in .my back passage .so now i put up with bleeding terriable back pain and told ill have to have stoma bag .feeling really pe off and let down by my drs… read more

posted 29 days ago
A MySpondylitisTeam Member said:

It becomes clearer Karen once used to it. Everything is clearly categorised x x

posted 28 days ago
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