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Spondylitis

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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Has Anyone Had The HLAB27 Test Done And It Came Back Negative?

Has Anyone Had The HLAB27 Test Done And It Came Back Negative?

My family dr told me today she did that blood test 5 years ago and it came back negative. She’s going to run another test now to see if I have AxS. She does think I have gotten worse so she’s going to run more testing including the above. Just wondered if anyone else had a negative and come to find out later years you actually had AxS.

A MySpondylitisTeam Member said:

outofthemist. . Absolutely. My Bla27 test was negative but my NEW rheumatologist gave me a positive diagnosis based on my pain levels and spine pain… read more

posted about 3 hours ago

Cosentyx Treatment

Cosentyx Treatment

Is anyone having good results being treated with cosentyx for AS?? I have read a few studies that cosentyx had better treatment response than humira. Any advice would be great

A MySpondylitisTeam Member said:

I'm not having much luck with it, although I have heard that others have responded remarkably well, even life changing!! So give it a real go! I have… read more

posted 2 days ago

Exercise Really Help???

Exercise Really Help???

Does daily exercise really help anyone? If I was younger I’d try yoga but at this stage of the game, regular exercise not helping, just makes me hurt worse and even more tired.

A MySpondylitisTeam Member said:

It's amazing what difference using a walker or pushing something really makes. I can walk miles pushing my trolley but it's painful walking to the end… read more

posted 2 days ago

I Am Wondering If Spondylitis Causes Pain Throughout Spine?

I Am Wondering If Spondylitis Causes Pain Throughout Spine?

I am wondering if spondylitis causes pain throughout spine. I have trouble in neck, between shoulder blades, just above hips, and lower back. I also have arthritis in ribs and sternum and sometimes develop some mean costochondritis pain. I dont know if its all on account of spondylitis.

A MySpondylitisTeam Member said:

I would think so, I have spinal stenosis and bulging discs, spondylitis in my neck and lower back. I get pain in my legs and lower back nearly all the… read more

posted 2 days ago

Pill Pack

Pill Pack

Does anyone use Pill Pack pharmacy?Does it make it easier keeping organized?does it except Medicare ?

A MySpondylitisTeam Member said:

I hope this helps, maybe at first someone in your family can help you check it, I mark in my cellphone when I have to do the Taltz

posted about 17 hours ago

Finding Meds

Finding Meds

Is anyone experiencing thinking of trying to find the the right medication to help with discomfort, pain, tingling, numbing and burning? I've tried so many, none has helped.

A MySpondylitisTeam Member said:

none of it worked for me, just wasted money. Walking and anti inflammortories like liq gel advil helps a lot, the burning. Tingling, pain, and numbness… read more

posted 4 days ago

ANA Results

ANA Results

I received test results for the ANA as 1:8 and speckled. It does not rule anything out but does not provide a diagnosis either. They only want to repeat labs in 3 to 5 months. Apparently its that test to look for Lupus, RA, and any inflammatory diseases. Have any of you had these results? Should i push for more tests or wait It out?

A MySpondylitisTeam Member said:

Whatever trips your trigger, I surely do not mind,

posted about 1 hour ago

ANYONE HAVE NUMBNESS/TINGLING ALL OVER?

ANYONE HAVE NUMBNESS/TINGLING ALL OVER?

Hi, I am new here. My name is Chris, I am 54 years old. Recently diagnosed with AS. However, have had SI problems since 1987 and by 1999, it was permanent SI pain and had short right leg by 1/2 inch and wore a shoe lift for 15 years. Tried everything to help the SI issue: chiropractic, physical therapy, prolotherapy in (Phone number can only be seen by MySpondylitisTeam users). Prolo initially helped, but still had instability. I had right leg/foot numbness. Then, in… read more

A MySpondylitisTeam Member said:

Hey there! I had a burst disc at c5-6 for years until it was fixed. It did nerve damage. I have numbness and tingling in fingers and arms. Also have… read more

posted 14 days ago

Negative Labs Except Hlab27

Negative Labs Except Hlab27

Are your labs all negative? Mine are except hlab27. My sed rate and c reactive protein levels are low

A MySpondylitisTeam Member said:

Thank you @A MySpondylitisTeam Member

posted 3 days ago

Has Anyone Else Have Their Spine Curving To The Right.

Has Anyone Else Have Their Spine Curving To The Right.

Mine has so much in the past couple years that my right shoulder is now about 5 inches lower than the left. I can no longer stand normally without one foot coming off the floor.

A MySpondylitisTeam Member said:

Karen, that is something that the doctor and I have talked about. Right now I am in the process of getting referred to another rheumatologist and try to… read more

posted about 2 hours ago
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