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9 medium

Does anyone know what foods help with spondylitis, EDS, Nerve Damage, Stenosis, and more

I also have circulatory disease, Scoliosis, fibromyalgia, impaired mobility, risk for falls, Osteoarthritis, CAD, Parkinsonism, Mycoplasma caused disease and on and on..

I'm in constant chronic pain.

I'm very happy that I DON'T have - high blood pressure, diabetes, osteoporosis, or cancer.

Any info would be appreciated.

posted about 21 hours ago
4 medium

Flu jab

Does anyone know if the flu jab helps with AS ? Considering the flu like symptoms that comes with AS will this help?

posted 3 days ago
6 medium

What are your experiences with Celebrex and Humera?

Hello everyone! I need some advice. I have Ankylosing Spondylitis and have a really hard time with anti-inflammatory meds. All of the nsaids that my Drs have given me to this point and the otc ones I've tried on my own have really done a nasty number on my stomach. So, today my new rheumatologist prescribed Celebrex for me saying that he has had some really good luck with it being better tolerated by patients with stomach issues like myself. We also discussed my… read more

posted 6 days ago
A MySpondylitisTeam Member said:

I have taken lots of different nsaids and nothing worked. I have recently started Humira and can tell a difference. Upper respiratory infections I have… read more

posted 4 days ago
9 medium

When is it time to try biologics?

I was diagnosed with non-radiographic axSpa a few months ago. I’ve tried several NSAIDs, PT over the years, exercise, prednisone, injections etc., all of which have helped some, but I am still having pain.
The rheumatologist wants me to try 4 weeks of prednisone again, along with Tramadol, to see if that will help. When I mentioned concerns about progression, he said that I shouldn’t worry about it - but that Enbrel might be an option if I would like to try it.
I appreciate all… read more

edited, originally posted 7 days ago
A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member good to know, thank you :)

posted 5 days ago
0 medium

Spinal surgery

I got spndylylis anklosing .ive been having numbness and painsand kneedles also my back feels as if been pulled apart .ive also had problems with my leg giving way ,i know have to irrigate myself cause of loss of feeling in my back passage. I been under drs had pain injections also had mri s xrays everything but nobody told me i loose the feeling in .my back passage .so now i put up with bleeding terriable back pain and told ill have to have stoma bag .feeling really pe off and let down by my drs… read more

posted 9 days ago
A MySpondylitisTeam Member said:

It becomes clearer Karen once used to it. Everything is clearly categorised x x

posted 8 days ago
2 medium

Hi, is there anything I can do to ease the discomfort of the chronic popping in my neck

I suffer from agonising popping and pain in my neck, that I often end up in tears. My back pain leaves me in absolute agony and feeling many more years older than i am, sometimes barely able to move and get about. Is there anything else i could try other than basic pain killers?

posted 12 days ago
A MySpondylitisTeam Member said:

Heat helps me

posted about 10 hours ago
4 medium


Hi Everybody, my Rheumatoid Dr just prescribed me Rayos for inflammation but i know thats its a generic for prednisone. My cardiologist told me not to take it tht it gives you a moon face. The last thing i want is weight gain and a moon face .
Anyone have any bad experience with this ?

posted 15 days ago
A MySpondylitisTeam Member said:

Mine took around 18 months to even start back to my normal weight x x

posted 1 day ago
4 medium

Could i have spondylitus?

Trapped a nerve in my neck which parralized me for a bit by just falling back playing football, once or twice a year for the first few years i'd have really bad neck pain and also was told at hospital that i had 2 ackle bones in each foot ,but they wouldnt do anything unless i was older and gave me problem,this may not be anything to do with my neck and back pain but needed to say as everything is linked. I then over the next 18 years had a PC repair shop and constantly bending over them… read more

posted 28 days ago
A MySpondylitisTeam Member said:

This is why cold and flu remedies for the most part disappeared to the pharmacy counters end. Always best to check for any duplications or… read more

posted 9 days ago
1 medium

I am scheduled for radio frequency ablation,,

any body have any advice???

posted about 1 month ago
A MySpondylitisTeam Member said:

Thank you for explaining this to me Wylie, I had no idea what it was, but I think I would seriously consider it when the time comes that the painkillers… read more

posted about 9 hours ago
6 medium


My rheumatologist says this may be my next treatment but because of my allergy to penicillin we have to start very low dose. Has anyone else used this,? Any side effects? Did it help?

posted about 2 months ago
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