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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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So Confused On The Best Diet For Spondyooarthrisis. Is It Low Starch, Vegan, Mediterranean?
A MySpondylitisTeam Member asked a question 💭

Just keep reading conflicting information…I know at the end of the day is specific to the individual, but what works for most?

posted 2 hours ago
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A MySpondylitisTeam Member

Hi and welcome 🤗
I need to practice more on the diet, but I didn’t want to scroll past
I’m sure that sugar is best avoided.. this is a battle for me as I really enjoy a few bits of chocolate.
If you… read more

posted 45 minutes ago
Who Is Able To Work And Who Is On Disability?
A MySpondylitisTeam Member asked a question 💭

The only reason I ask is because I read in an AS article that claimed 90% of people are able to work.
I have not been able to work for years. I just don’t see how it is possible.
Doing yard work or anything physical puts me over the edge.
I just find that number way too high.

posted 15 hours ago
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A MySpondylitisTeam Member

I am unable to work and have been disabled since 2016. Though I have both AS and Peripheral AS. As well as Idiopathic Small Fiber Sensory Neuropathy, Crohn's, and Scoliosis amongst some other things… read more

posted 8 hours ago
What Spondylitis Symptoms Do You Have That You Didn’t Expect?
A MySpondylitisTeam Member asked a question 💭
posted 19 hours ago
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A MySpondylitisTeam Member

My dad would be happy u said that about the VA. He always spoke the best of them.

posted 6 hours ago
How Do I Add To My Story?
A MySpondylitisTeam Member asked a question 💭

Some time ago, I wrote my history with AS. Once I find the original document (assuming I do), I would like to add some things it.

posted 2 days ago (edited)
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Multivitamins For 40s And Chronic Health Issues
A MySpondylitisTeam Member asked a question 💭

I am now in my 40s with Ulcerative Colitis with associative arthritis and Ankylosis Sponydlitis and Fibromyalgia. I relaize more then ever the importance of nutrition especially since Ulcerative Colitis and many physical activities (including the three letter one) demand so much more from the body. I find myself needing more Potassium and Magnesium after the three letter one. I find myself needing more Iron when I get cold. I know I need some level of B vitamins for associative essential… read more

posted 3 days ago
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A MySpondylitisTeam Member

I use the dissolving form that goes into water on bad Fibro days, anxiety days, or when I need to calm down for sleep. I use the brand called Calm. Flavors are gross, but it works well with warm/hot… read more

posted 2 days ago
Does Anyone See Distortions In The Dark?
A MySpondylitisTeam Member asked a question 💭

I don’t know what this is. Recently coming from a pitch black room in the house and seeing light shine around the cracks of the door I was having dark elongated diagonal shadows between me and the door that moved as I moved my head. I don’t know what it is or the cause. I closed and opened each eye separately and it does it with both eyes and no the have diagonal shadows. Years ago I used to see something dark above my eyes in the dark and thought it was the frame of my glasses I was seeing in… read more

posted 3 days ago
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A MySpondylitisTeam Member

@A MySpondylitisTeam Member. I got sudden sensory deafness syndrome from taking a prescription antihistamine singular. They took it off the market since then. It lowers the immunity too much I guess… read more

posted 1 day ago
Since My Rheumatologist Retired I Have Been Having A Hard Time Confirming Diagnosis. I Took Biologic Meds.
A MySpondylitisTeam Member asked a question 💭

I was diagnosed 5-6 years ago with AS by a Rheumatologist and now he has retired. I am struggling now to confirm that diagnosis. I went to Asheville Arthritis and when the doctor came in and seemed more concerned about telling me I didn't need to wear make up that didn't set well with my gut feeling. I am now seeing a Rheumatologist with Advent Health Dr. Luk and plan on going to Duke in April to see Dr.Diaz to try to get to the bottom of it all. Has anyone had to go through all this? I have… read more

posted 4 days ago (edited)
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Has Anyone Used Cosentyx For AS? Details Please.
A MySpondylitisTeam Member asked a question 💭

Has anyone used Cosentyx for AS? Details Please.

posted 6 days ago
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A MySpondylitisTeam Member

Does anyone have AS symptoms caused by contracting Brucellosis from animals or their pet?

posted 6 days ago
How Do You Know If Your Biologic Medicine Is Working??
A MySpondylitisTeam Member asked a question 💭

I’ve tried 3 biologic treatments and as far as I can tell only one made me feel better but my insurance won’t cover it (of course). I tried Humira and was still in severe pain. Doc switched me to Cosentryx. I’ve been taking it once a week for 3 weeks. My knees are so mad but my back isn’t as mad. My fingers crap up every once in awhile but idk if this means it’s working. Should I feel relief by now??? 🤷🏻‍♀️

posted 7 days ago
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A MySpondylitisTeam Member

I'm supposed to start cosentyx next month. I read that it could take 16 weeks to realize benefits from it.
My pain is, at times, terrible. 16 wks B4 some relief - IDK if I'll last that long.

posted 6 days ago
Does Ankylosing Spondylitis Cause Degenerative Disc Disease?
A MySpondylitisTeam Member asked a question 💭

I was told by first rheumatologist that I had AS and second rheumatologist said no AS but degenerative disc disease.
Symptoms; both Achilles hurt, HLA B27 positive. Started with pain in my neck . Now my entire spine hurts.

posted 7 days ago
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A MySpondylitisTeam Member

@A MySpondylitisTeam Member, if you believe you are misdiagnosed then it would be good to get a 2nd opinion.

posted 6 days ago
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