Questions & Answers

Just keep reading conflicting information…I know at the end of the day is specific to the individual, but what works for most?

The only reason I ask is because I read in an AS article that claimed 90% of people are able to work.
I have not been able to work for years. I just don’t see how it is possible.
Doing yard work or anything physical puts me over the edge.
I just find that number way too high.

Some time ago, I wrote my history with AS. Once I find the original document (assuming I do), I would like to add some things it.

I am now in my 40s with Ulcerative Colitis with associative arthritis and Ankylosis Sponydlitis and Fibromyalgia. I relaize more then ever the importance of nutrition especially since Ulcerative Colitis and many physical activities (including the three letter one) demand so much more from the body. I find myself needing more Potassium and Magnesium after the three letter one. I find myself needing more Iron when I get cold. I know I need some level of B vitamins for associative essential… read more

I don’t know what this is. Recently coming from a pitch black room in the house and seeing light shine around the cracks of the door I was having dark elongated diagonal shadows between me and the door that moved as I moved my head. I don’t know what it is or the cause. I closed and opened each eye separately and it does it with both eyes and no the have diagonal shadows. Years ago I used to see something dark above my eyes in the dark and thought it was the frame of my glasses I was seeing in… read more

I was diagnosed 5-6 years ago with AS by a Rheumatologist and now he has retired. I am struggling now to confirm that diagnosis. I went to Asheville Arthritis and when the doctor came in and seemed more concerned about telling me I didn't need to wear make up that didn't set well with my gut feeling. I am now seeing a Rheumatologist with Advent Health Dr. Luk and plan on going to Duke in April to see Dr.Diaz to try to get to the bottom of it all. Has anyone had to go through all this? I have… read more

Has anyone used Cosentyx for AS? Details Please.

I’ve tried 3 biologic treatments and as far as I can tell only one made me feel better but my insurance won’t cover it (of course). I tried Humira and was still in severe pain. Doc switched me to Cosentryx. I’ve been taking it once a week for 3 weeks. My knees are so mad but my back isn’t as mad. My fingers crap up every once in awhile but idk if this means it’s working. Should I feel relief by now??? 🤷🏻‍♀️

I was told by first rheumatologist that I had AS and second rheumatologist said no AS but degenerative disc disease.
Symptoms; both Achilles hurt, HLA B27 positive. Started with pain in my neck . Now my entire spine hurts.