Spondylitis

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5 medium

Do we need a sponsorship program?

Do we need a sponsorship program?

I am an overly emotional person, just the way I’m built. I often wonder that I’m not doing enough to support everyone Is there a need for a sponsorship program? It’s just a thought. To help building a ramp, giving a physical hug or what is needed to someone I need. Does this support already exist and I don’t know of it. Most of the time here we just need to vent or get suggestions to our problems. I see some that I think need more contact and it bothers me, as I should be doing… read more

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A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member
Some random thoughts and ideas for you on finding resources and creating a support group...
I Googled "State of Virginia,… read more

posted about 20 hours ago
3 medium

I am trying to find a doctor who will treat me.

I am trying to find a doctor who will treat me.

How do I find a doctor near me that will know the best way to treat me? I live in Fayetteville Arkansas area.

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A MySpondylitisTeam Member said:

Good to consider.

posted 2 days ago
7 medium

Taboo: Endgame expectations

Taboo: Endgame expectations

As this disease progresses (deteriorated you) and family & friends don't understand you and therefore dont help you or help you less and less, and doctors decrease or stop treating you due to political cost effectiveness mandates...
Where do you see yourself? How do you see yourself physically? How do you see yourself coping? Are these your final days? What kinds of choices will you make?

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A MySpondylitisTeam Member said:

I find if my body PH is acidic, that is less than 6.9 , I will feel more pain.
So I drink aloe Vera juice and eat lots of vegetables and drink… read more

posted about 1 hour ago
7 medium

Humidity vs. Heat

Humidity vs. Heat

Two in one...
What does humidity DO to agrivate our condition?
How is hot & humid different from dry hot regarding our condition?
I've seen people comment on here about humidity and been surprised. I've never thought about it. I thought heat was heat. What does humidity DO to agrivate our condition?

How is hot & humid different from dry hot regarding our condition?

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A MySpondylitisTeam Member said:

Because the barametric pressure changes when the humidity changes. The higher the barametric pressure the more pain and or discomfort I experience.
read more

edited, originally posted about 7 hours ago
0 medium

I cannot stand on my feet. How many feel so alone?

I cannot stand on my feet. How many feel so alone?

I cannot stand on my feet an longer than 15-20 minutes before they are absolutely killing me. My diagnosis are AS, Fibromyalgia, sjogrens, Raynauds, and neuropathy. I hear how people describe neuropathy as pins and needles but I don’t have that. I never know how to explain it but my feet just hurt and the longer I’m on them the more swollen and red and hot they become. I have to literally plan each day around my feet, meaning I have to decide what hideous shoes to… read more

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A MySpondylitisTeam Member said:

I too have that problem. I know it is hard, but try to stay positive. I got a dog that I rescued from being put down. He is always with me and cheers me… read more

posted 10 days ago
1 medium

Bowels ( sorry about the topic)

Bowels ( sorry about the topic)

Has anyone had an issue with bowel movements? For the last month I have pushed so hard it felt like I was having a baby. It was not hard or anything and nurse said it's probably the spine pushing on the intestine or colon. I ended up taking mag citrate but found grape and cherry flavor. It worked after two days. I did look it up and you can have bad reactions to it which I did. I'm so sick if all this. Thank God I have a surgical consult in the 22nd.

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A MySpondylitisTeam Member said:

I take 2 Magnesium Citrate tablets a day. They really do help. It took a few days to work but it was worth it. I just take them with my evening meds

posted 6 days ago
6 medium

I am nearly bent in half leaning to one side with ankylosing spondylitis

I am nearly bent in half leaning to one side with ankylosing spondylitis

This is very debilitating as I cant raise my head, or reach anything all I see is the ground. I have learned to recognise people’s legs and shoes. Very shallow I miss clothes. Am I the only one with this.

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A MySpondylitisTeam Member said:

Your not alone ! I can’t get my last drop of beer anymore and that puts my Scottish blood into depression. All good it just is.

posted 12 days ago
1 medium

I have seizures bc of AS...does anyone else?

I have seizures bc of AS...does anyone else?

Up to 20 percent have seizures, one-third have reduced thinking abilities, and one in five may experience a mood disorder. ... Headaches, brain dysfunction, thinking problems and seizures can occur in patients with ankylosing spondylitis, which is a type of arthritis that affects the spine, the researchers noted.Aug 19, 2014
HealthDay › consumer › certain-sy...
Certain Symptoms Can Delay Lupus

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A MySpondylitisTeam Member said:

Topamax is what I take seems to help but seek you medical professionals advice always or natural medicine Dr .

posted 10 days ago
1 medium

I’m about to see a Rheumatologist for the first time in 2 days - what questions should I ask?

I’m about to see a Rheumatologist for the first time in 2 days - what questions should I ask?

Hi all, I’m hoping you can help me with the wealth of experience on the site
Diagnosed with Spondylolisthesis in 2015 (age 39)
Spinal fusion and decompression L4 - S1 in January 2017
Current situation
C2 - C7 disc degeneration/spondylitis with three bulging discs
T10 - 11 bulging disc
L3 - L4 bulging disc
S1 - bulging disc
Pain head to toe. Numbness and tingling in arms and legs
Legs keep giving way and spasms

I really don’… read more

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A MySpondylitisTeam Member said:

Fire your doctor, he is incompetent at best. You need a good doctor. Read these sights and you’ll learn a lot. Once they start you on spinal surgeries,… read more

posted about 10 hours ago
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