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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Which Spondylitis Symptom Surprised You The Most?

By A MySpondylitisTeam Member 88 answers

How Do Beverages With Caffeine Affect Your Spondylitis?

By A MySpondylitisTeam Member 76 answers

What Lessons From Your Spondylitis Experience Are You Applying In 2024?

By A MySpondylitisTeam Member 49 answers

What's On Your Holiday Wish List That Could Improve Your Life With Spondylitis?

By A MySpondylitisTeam Member 39 answers
2608 questions

Does Anyone Have ‘nerve Pain’ In There Back? If You Do What Are You Doing To Lessen The Pain From It?

A MySpondylitisTeam Member asked a question 💭
La Crescent, MN
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. Hi Rw, the other day i noticed a YouTube attachment from a member to BarbieLux, a member on my team. It is a 3 minute easy to do neck "exercise" that i have done both… read more

1 day ago

Ho Ho Ho! Fellow Patients! My Questions: Anyone Taking Humira To Treat Spondylitis Chronic Pain? Any Other Non-opioid Meds Successful?

A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

My dad used humira, but my first line was Remicade. I'm not a big fan of self injection, so infusions with longer in between works for me.

2 days ago

I Hurt From Top Of My Head To Bottom Of My Feet, Constantly, Stay Tired, Sleep Little, But My Mind Goes 80 Mph, Thinking What I Need To Do.

A MySpondylitisTeam Member asked a question 💭
Mcalester, OK
A MySpondylitisTeam Member

Sounds oh so familiar. Seek out a functional medicine dr or look into the zonia app for whole body healing top to bottom inside and out.

2 days ago

I Have Recently Been "hitting A Wall" Kind Of Like A Migraine But With Little Of The Headache Pain, But My Joints Hurt. Is This A PsA Flare?

A MySpondylitisTeam Member asked a question 💭
Seattle, WA
A MySpondylitisTeam Member

Sounds like it. I have Psoriatic Spondylitis and it's like that for me.

2 days ago

I Am Very Tired Every Day And I Can't Sleep Very Well At Night. How Can I Improve This Condition?

A MySpondylitisTeam Member asked a question 💭
România
A MySpondylitisTeam Member

Dealing with fatigue and insomnia is a common challenge for those with spondylitis. Here are some tips from my knowledge base to help improve your condition:

- Get a Good Mattress: Ensure your… read more

November 29

Do Folks Have Tips On Managing Dactylitis? Any Notable Things That Seem To Worsen Yours? Mine Seems To Not Like Heat/ Wetness.

A MySpondylitisTeam Member asked a question 💭
Anchorage, AK
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. Ouch! I had my first round of that this past summer for about 3-4 weeks. High stress over a family event caused it. What i found that cured it, complete remission… read more

November 27

I’m Starting To Have Difficulty Swallowing My Food. I Understand This Is One Of The Issues Associated With A.S Any Input From Other Members

A MySpondylitisTeam Member asked a question 💭
Basking Ridge, NJ
A MySpondylitisTeam Member

Not good. I think thats trouble on c4 foraminal nerve. I may be wrong. I remember looking it up this spring. I had that for awhile. The MRI revealed several nerves in stenosis and i looked up what… read more

November 27

How Does Weather Effect Everyone? We Had A 20 Degree Change From One Day To The Next And Its Been Raining Since. Pain Level Went Up!

A MySpondylitisTeam Member asked a question 💭
Highland, MI
A MySpondylitisTeam Member

Weather changes can significantly affect spondylitis symptoms. Many people with spondylitis report that shifts in weather, such as a 20-degree change or rain, can increase pain levels. Cold and damp… read more

November 22

I Was Diagnosed With Ankylosing Spondylitis About 20 Years Ago, My Question Is, How Do People Manage MRI/CT Scans ? I'm Struggling..

A MySpondylitisTeam Member asked a question 💭
Blackburn, UK

My spine is now curved and I have had a frame built the bathroom of my spine due to infection, I've also recently had spinal surgery for spinal stenosis and lost the use of my legs, so scans and some x-rays are near impossible and really painful so any advice or tips would be really appreciated.

A MySpondylitisTeam Member

really sorry to hear about the pain you are having with this. while I can't get MRIs anymore due to an implanted neurostimulator, lying down at all is very painful for me, let alone for a long… read more

November 22

Any Tips For Toenail Care? Details Below Including Fused Back, Scoliosis, And Extremely Arthritic Deformed Feet.

A MySpondylitisTeam Member asked a question 💭
Wichita Falls, TX

My upper back is fused and my lower back has double S curve plus fusing. My feet are both badly disfigured with arthritis. One was so bad, they had to amputate a toe. I have to cut slits in my one pair of shoes. All of this impacts my ability to take care of my nails. It is extremely painful to work on them. Plus, I don't get out so having them done wouldn't work
D/O's: Ankylosing Spondylitis, Lupus, Addisons, Scoliosis, chronic anemia, hyponatremia, neuropathy, hypothyroidism, Hypoglycemia… read more

A MySpondylitisTeam Member

I have never looked into home healthcare. Maybe it's time to check into it. Thank you!

November 19
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