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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
2212 questions
I Bite The Back Of My Tongue While Sleeping, Both Sides.
A MySpondylitisTeam Member asked a question 💭

I've been sleeping and have a spasm in my face, (it's not new) and I realized I'm biting down on the back of my tongue. When I first noticed it, it was on one side. Now it's both sides. It wakes me up. Does anyone else experience this?

A MySpondylitisTeam Member

There are over the counter mouth guards at Walmart. About $20. I started having TMJ-better issues recently. I didn't like the mouth guard, it didn't fit right. But I have found if I sleep in the… read more

posted 13 hours ago
What Vitamin D Is Good, What Brand?
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Nature's Bounty

posted 17 hours ago
What Meds Are You Taking. My Arthritis Doctor Put Me On Talz For One Year. Now I Am Going To Start Taking Cosentex.
A MySpondylitisTeam Member asked a question 💭

I have no problem taking meds that help me but the prices are ridiculously expensive like 3,000 a month so I said no, cannot afford and even though the meds do help with slowing down the progressing I have to say no. Does anyone taking these meds.

A MySpondylitisTeam Member

I just discontinued Remicade as it elevated my liver enzymes and it didn’t work that great! She wants to put me on Tremfya once they come down! I don’t know what to do! I take a THC gummy at bedtime… read more

posted 3 days ago
My Legs And Feet Are Killing Me! I Can't Sleep And I Can Barely Walk!
A MySpondylitisTeam Member asked a question 💭

For the last year,every 8 weeks I get a biologic, Simponi Auria. I don't think it's working. I don't know the next course of action. Advice please.

A MySpondylitisTeam Member

Just started Simponi myself but it only helped for about three days. I have been on Humira and Cimzia, both of which helped for years but then stopped helping. Since then I have been on Renflexis… read more

posted 3 days ago
What Tips Do You Have To Help With Seasonal Allergies?
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

That’s very interesting I never that that allergy can get bad with certain foods.

posted 15 hours ago
What Is A Substitute For Humira, Hyrimoz,?
A MySpondylitisTeam Member asked a question 💭
I Have An Itching Sensation That Follows My Spine Up And Down My Back. It Responds To Voltaren. Any Idea What Might Cause This?
A MySpondylitisTeam Member asked a question 💭

I have Psoratic Arthritis and post herpetic neuralgia in my right leg from a bad case of Shingles. The itching feeling is strong enough to keep me awake at night. Any ideas on getting this to subside? Thanks, Becky

A MySpondylitisTeam Member

When I have a flare up the affected joints itch but it is like they are itching on the inside, under the skin.

posted 3 days ago
I Am Needing Assistance!!! Has Anyone Dealt With Schedule Adjustments At Their Jobs?
A MySpondylitisTeam Member asked a question 💭

For YEARS I have struggled to make it to work on time... things have progressed and worsened. Last year my Boss decided that he would "compromise" and I was allowed to be late and not get reprimanded if I did not make up my time. Fast forward to Jan/Feb he pulled me in his office and told me that the agreement still stood but that I was allowed to make up my time. Within a 1-2 weeks I was pulled back in his office and that compromise complete wiped off the table. I am not allowed to be late… read more

A MySpondylitisTeam Member

This!! Exactly how I feel!! I went from Management to this job BECAUSE it’s not demanding in a sense that someone has to pick up my slack when I’m absent… my work is my work and I still manage to do… read more

posted 4 days ago
How Can I Get A Doctor To Listen To Me?
A MySpondylitisTeam Member asked a question 💭

Yesterday I had an ESR 8 test that was high off the chart high, and if you read my ct and MRI scans they all say degenerative disc, spondylosis, are present. I have had so many bone spurs down my spine I'm having problems with my neck again but I really don't want a 3rd surgery on my neck. No one seems to want to help me because they all say there is nothing they can do....now I'm having this problem with my eye and my eye doc has given me meds but says this will continue unless I get my… read more

A MySpondylitisTeam Member

You need to see an Opthamologist as opposed to an optometrist and, as someone above mentioned, a Rheumatologist. However, my Rheumi doesn't treat eye symptoms. An optometrist primarily and mostly only… read more

posted 5 days ago
Does Anyone Else Seem To Pick Up Viruses (cold/flu) Easily? I'm Not On Any DMARD Or Biologics
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Yes, before I was treated for spondylarthritis I was sick all the time. The odd thing is that being on biologics has made me healthier, I still get sick, but its not as bad as before.

posted 4 days ago
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