Spondylitis

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Best sleep position

Best sleep position

I'm finding it more and more difficult to sleep at night. I fall asleep without any trouble, but I wake up often in pain. I tried proping my head and knees up. That worked for a few years, but now my neck hurts. So read that those suffering from AS should sleep with a thin pillow and straight body, no proping up of the knees.
I tried that last night and woke up in even more all body pain.

A MySpondylitisTeam Member said:

I use a 2 old pillows. I put both pillows in one pillow case. While laying on my side, with my knees bent, Iknees to alleviate the pain & the… read more

posted 3 days ago

TENS device

TENS device

Has anyone benefited from a TENS device?

A MySpondylitisTeam Member said:

Thank you!

posted 6 days ago

Is there more we can do to help our memories?

Is there more we can do to help our memories?

Is there anything we can do to help us recover having a better memory ability?
Like daily exercise, medicines, or eating, or ice on our neck/low back etc.?anything to help with our memory loss

Palpitations, fluttering in chest and throat plus missing heartbeats

Palpitations, fluttering in chest and throat plus missing heartbeats

Hi all,
I have to have a 24 hr heart monitor fitted to see what is going on with my heart. I have had AS for around 20 years now and these symptoms started about 2 months ago.

Has anyone else experienced this and was it linked to your AS?

Thanks xx

A MySpondylitisTeam Member said:

I have gotten some flutters and it scares me, hasn't been connected to my AS by a doctor yet.

posted 6 days ago

Does anyone get ablations for low lumbar pain, hip stiffness/pain, and/tailbone pain?

Does anyone get ablations for low lumbar pain, hip stiffness/pain, and/tailbone pain?

4 years ago I received ablations on my lower bacj from a pain Specialist. They werent perfect, but they numbed the bulk of pain. After a couple, I stopped getting them due to scheduling conflicts and I convinced myself they didn't work.
Has anyone had them, and with success?

A MySpondylitisTeam Member said:

Thank you all so much!! I am new at this so pardon me for not understanding how to respond to each one of you individually but thank you all very much!

edited, originally posted 6 days ago

Pain

Pain

I have bone spurs on my spine. No one can touch my bones, so much pain
My shoulders crack, like if you go to chiropractor. My whole body hurts. What can I do?

A MySpondylitisTeam Member said:

I still go to the chiropractor, even with bone spurs. Being in alignment helps with my pain and keeps nerves and blood flow better. I also am prescribed… read more

posted 12 days ago

Covad and Axspa

Covad and Axspa

So the CDC recommends a vaccine for people with diseases of immunosuppression. Does that include Axspa?

Pain meds or cannabis

Pain meds or cannabis

Lumbar spondylitis with bulging discs is my condition, I'm prescribed norco 4x daily. My friend thinks I should just smoke cannabis for pain relief. It is not sufficient. But I cannot convince him. Therefore I'm a druggie in his eyes.

A MySpondylitisTeam Member said:

No one can judge you for what you use for pain. Tell him it isn't you that hurts. And if he wants to call you a druggy who is he to talk? Please don't… read more

posted 1 day ago
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