Spondylitis

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So I have psoriatic arthritis and towards the end of the day after all of my pain medication has worn off.

So I have psoriatic arthritis and towards the end of the day after all of my pain medication has worn off.

So I have psoriatic arthritis and towards the end of the day after all of my pain medication has worn off my hands and feet are always in horrible pain. one of the only ways to calm this pain is to pop my knuckles and pop my toes. as the pain gets worse and worse I can’t pop place knuckles anymore in my joints. Does anybody else have PsA or rheumatoid arthritis or any other chronic pain disease have to… read more

A MySpondylitisTeam Member said:

My husband has arthritis in both his hands, broken them fighting when he was younger and stupid. He really suffers with them especially in the cold… read more

posted about 7 hours ago

Has anyone posted anything from the camcorder option?

Has anyone posted anything from the camcorder option?

A MySpondylitisTeam Member said:

Yeah I've lost plenty of posts, usually long ones, it's frustrating but I can't be bothered to do it all again. X

posted 9 days ago

Wondering if anyone else has CRPS/RSD (Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy)

Wondering if anyone else has CRPS/RSD (Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy)

CRPS/RSD is a condition that flares when your emotions are high. Meaning stress levels and/or emotional turmoil. It causes feelings of burning, tearing, pin needles and it is not caused by inflammation. It is a disease of the sympathetic nervous system.

I didn't even know this existed until it attacked me, 7 years ago. I had trigger release on all 5 fingers of my right hand. At the time, I was dealing… read more

A MySpondylitisTeam Member said:

Hi Wendy8754 and Rick2015,
Sending you a big hug and good wishes too.

posted about 10 hours ago

Does anyone have difficulties conversing?

Does anyone have difficulties conversing?

Currently I am finding it very difficult to articulate myself. I know in my head the point I want to make, but cannot seem to get the correct words out.
I tend to use 100 words when 10 would be suffice. This issue has gotten so much worse in the last 12 months.
I see people zoning out when I am speaking and I know it’s my own fault, but it’s having an impact where I am starting to isolate myself.

A MySpondylitisTeam Member said:

Yes

posted 8 days ago

Was wondering if anyone is helped by diet

Was wondering if anyone is helped by diet

Started FOBMAPS diet about 4 weeks ago to help with eosinophilic issue in the through but it has also been helpful in dealing with some of the issues with PsAs disease and medication.

A MySpondylitisTeam Member said:

It is a diet created by a university in Australia for IBS patients. FABMAPS represents the chemical way food is broken down that causes inflammation. It… read more

posted 12 days ago

Injection therapy

Injection therapy

I got a call that I was taken off the wait list after over a year for the pain clinic near me, and that if I'm interested in "injection therapy" I should call for an appointment. I'm just not sure. It seems like any sort of injection therapy given to individuals with AS turns out to give results that vary from terrible to no effect. I don't often hear of this helping. Maybe you all have some input. Thanks :)

A MySpondylitisTeam Member said:

KristinaRoberts,
Thanks for the hug and one back at you too. Have a good day.

posted 13 days ago

Hi can i get medical marijuana through my gp

Hi can i get medical marijuana through my gp

my neck pain has just increased 10 fold by me falling over and crushing my head horizontally on all fours and crushing my ribs and neck like an accordion instrument , i now struggle to move my neck left to right and backwards and forward, my doctor has just given me the paperwork for physio and that is 6 weeks away so i have to put up with the horrendous pain until then, i take pregabalin but it does not really help so thats why i would like to know if i can get… read more

A MySpondylitisTeam Member said:

THANK YOU

posted 21 days ago

Can you post a video on MySpondy?

Can you post a video on MySpondy?

Hi all!
I’ve been trying to post a little video of my dog singing for our friend Deep to put a wee smile on her face
Does this website not enable videos?
Thanks in advance
Vicky

A MySpondylitisTeam Member said:

The camera function is for pictures. Where you can post a picture from your files. If you look at it, it says :
Attach a Photo

Select a Photo

posted 9 days ago
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