Spondylitis

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Does anybody else have.problems with the tailbone or coccyx?

I cannot sit for any length of time without struggling to get up due to it being so sore.
Ive been told to do pelvic floor exercises but this also really hurts.my coccyx.

posted 1 day ago by A MySpondylitisTeam User

Are Spondylitis and Spondylosis the same thing?

The suffixes are different; "itis" means inflammation and "osis" means condition.

posted 5 days ago by A MySpondylitisTeam User
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Susan, I think you will be ok, your lotis may go to litis and it still in the back region.. I have cervical spondylitis. This team has been very… read more

posted 1 day ago

What is the most effective drug treatment you have tried?

Humera?
Prednisone ?

tags: #treatmentplan

posted 13 days ago by A MySpondylitisTeam User
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So I started on prednisone and it wasn’t enough. Then added methotrexate, it help but not enough. I am now on enbrel, prednisone and methotrexate. With… read more

posted 9 days ago

What is the most important thing do you look for in your doctor?

posted 19 days ago by A MySpondylitisTeam User
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Not knowing your age, I would highly recommend not doing it unless you are under 30. I was told I needed neck, shoulder, back, hip and leg repairs. At… read more

posted 16 days ago

Need new rheumatologist in Connecticut - please help

I have gone through two doctors since 2013 diagnosis. I need a doctor who will really listen. Live near Hartford, CT area but willing to travel. Thanks so much.

posted 21 days ago by A MySpondylitisTeam User

Cbd oil to control pain?

I was wondering if anyone takes cbd oil for their pain and does it help.

tags: Cbd oils #Back Pain pain control

posted 25 days ago by A MySpondylitisTeam User
view all answers (3)

Yea click on me

posted 24 days ago

Anyone take high dose Niacin or Niacinamide for AS or related Arthritis conditions?

I recently found out my B3 / niacin levels are on the ragged low edge of normal and have since had other practitioners point out visual signs of a niacin deficiency. I've been reading up and there is some good data on supplementing with high dose Niacin and Niacinamide for arthritis related symptoms but not a lot of clear information on safe dosages often safe dosage indications are much lower than data supporting good results and… read more

tags: B3 Niacin Niacinamide

posted 26 days ago by A MySpondylitisTeam User

May help

posted 19 days ago

Was told I have Spondyloarthritis, but what does this mean?

Hi everyone! New here and new to Spondyloarthritis diagnosis. I'm basically desperate to find people who can relate to me and this struggle.
I saw a rheumatologist for the first time 2 days ago. I've been fighting LBP for 9 years (I'll update my profile story soon!). I wasn't given much information other than reading material about "Spondyloarthritis" to take home. I had bloodwork and xrays done after appt. I go over the results with him in 2 weeks while… read more

posted 28 days ago by A MySpondylitisTeam User

Go to my story? Whst you want to know

posted 25 days ago
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