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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
2353 questions

Anyone Have Any Insight That They Can Share To Help With IBS Due To AS? Thank You For Your Time

A MySpondylitisTeam Member asked a question 💭

I have AS and no insurance/got laid off. Unable to get my Humira injections now so have to try some holistic remedies :(

A MySpondylitisTeam Member

Diet and good Gut microbiota helps.
Having bad Gut microbiota can cause extra pain and discomfort.
Foods like yogurt are beneficial.
Don't abuse nsaid's, but naproxen helped me a lot.

posted 1 day ago

Lyrica

A MySpondylitisTeam Member asked a question 💭

Can anyone tell me if a cardiologist can prescribe Lyrica?

A MySpondylitisTeam Member

Lyrica (Pregabalin) is a medication approved by the U.S. Food and Drug Administration (FDA) for treating several conditions, including:

- Fibromyalgia
- Postherpetic neuralgia
- Partial onset… read more

posted 4 days ago

Is Anyone On Disability? I've Been Trying For Almost 2 Years. I Applied With Fibromyalgia But Diagnosed With AS During The Process. Anyone??

A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

I believe your disability benefit is based on the SS point system: depends on how much you’ve earned and for how long. Fortunately for me I was maxed out. Also, you can go on Medicare after receiving… read more

posted 2 hours ago

How Many C Sections Have You Had With AS? Any Complications?

A MySpondylitisTeam Member asked a question 💭

I've had 1 emergency and 1 planned section before I got diagnosed but was wondering if anyone could tell me how it went having a c section when diagnosed?

A MySpondylitisTeam Member

Pregnancies with axial spondyloarthritis (axSpA) have a higher rate of cesarean section (C-section) births compared to the general population
- 12% higher rate of elective C-sections
- 8% higher rate… read more

posted 4 days ago

Are You Frustrated With Finding Effective Treatments For Spondylitis?

A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

I had to stop Enbrel. Allergic reaction.

posted 9 hours ago

Taltz Or Cosentyx?

A MySpondylitisTeam Member asked a question 💭

Diagnosed nr-axspa 2019. Tried nsaids. Barely touched pain. Rheumatologist recommends biologic next. Anyone have experience with these for nr-axspa? Pain is so ugly...

A MySpondylitisTeam Member

@A MySpondylitisTeam Member. @A MySpondylitisTeam Member. I was on OTC Nsaids for years, then tried 5 biologics at my Rheumi's suggestion. First was Humira, nothing; then Cosentyx, worse psoriasis and… read more

posted 1 day ago

Is There A Connection To Pluerisy, I Have Chronic And My Ribs Plus Low Oxygen Levels?

A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Rib pain is definitely an affect of the Inflammation in your body. Ive hade that for probably 15 to 18 years
When you finally find a biologic that works for you it should help. I am currently on Talread more

posted 4 days ago

Has Anybody Ever Had A New Primary Care Change Your Diagnosis?

A MySpondylitisTeam Member asked a question 💭

I was diagnosed 31 years ago at 22. My son was diagnosed at 15. It has stayed in my file through another state and many doctors. She changed it to lumbar spondolysis and I've asked her to correct in my file. I'm not sure who changed it, but this is the furst time they've done an MRI. I'm guessing because they're seeing it at 52 that it's aged related DDD. I've explained to her I had the blood and diagnostics multiple times. They caught it at 22 at the hospital when I went in for some other work… read more

A MySpondylitisTeam Member

Yes, it is possible for a new primary care physician to change your diagnosis. This can happen if the new doctor has a different perspective, more experience, or access to additional information or… read more

posted 7 days ago

Has Anyone Had Issues With Enbrel? Started About 2 Months Ago And Everything Was Ok, Now I Am So Nauseous And Pain Levels Are Ridiculous!

A MySpondylitisTeam Member asked a question 💭

I switched from Simponi Aria and chose Enbrel over Inflectra but wondering if I just do better with infusions. All opinions and advice is welcome.

A MySpondylitisTeam Member

I have read, and my rheumatologist told me that these meds don’t work for everyone, but there are many out there. They can change yours. I got lucky with Humira, but have been told, that if it stops… read more

posted 7 days ago

I Am Considering Surgery On My Spine. What Can Anyone Tell Me About That?

A MySpondylitisTeam Member asked a question 💭

My arthritic spondylitis is very slowly progressing and is very debilitating (mornings in particular). I am 86 but otherwise in good health.

A MySpondylitisTeam Member

I have had C4, 5, 6, 7, L2,3, 5,S1 Fused T12 S1, L4 L5 Self fused
The operation is to reduce pain. Not fix anything. You may feel to good after and injure yourself. Also when they fuse 2… read more

posted 7 days ago
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