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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I'd like to know who else was misdiagnosed for years, decades even and now are living with advanced ankylosing spondylitis?

A MySpondylitisTeam Member asked a question 💭
Houston, TX

Is there a viable option other than opioid therapy for those of us living with advanced ankylosing spondylitis? If there is I have not found it.

August 8, 2023
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Reactions
A MySpondylitisTeam Member

Count me in in on that! I had my first malor flare at 20 and was not diagnosed until 35. I am 71 now. I can tell you to cherish the good times and pray in the bad time.

August 10, 2023
A MySpondylitisTeam Member

Derrick4 "Is there a viable option other than opioid therapy": OTC products, anti inflammatories (not great on the stomach), biologicals (TNF, IL-17 and JAK inhibitors (all have risks and downsides). Tries them all except JAH inhibitors. Plus, short term prednisone. The diets and natural stuff have not worked. Exercise helps AS and overall feeling better.

August 11, 2023
MySpondylitisTeam

Many people with spondylitis experience delays and misdiagnoses before receiving a correct diagnosis. Here are some key points from the knowledge base:

- Diagnosis Delays: It can take as long as 13 years to receive a correct spondylitis diagnosis
- Common Misdiagnoses: Many are initially told they have back pain, Show Full Answer

Many people with spondylitis experience delays and misdiagnoses before receiving a correct diagnosis. Here are some key points from the knowledge base:

- Diagnosis Delays: It can take as long as 13 years to receive a correct spondylitis diagnosis.
- Common Misdiagnoses: Many are initially told they have back pain, degenerative disc disease, muscle strain, muscle pain, osteoarthritis, or spinal stenosis.
- Specialist Referrals: Delays often occur because general practitioners do not refer patients to rheumatologists promptly.

For more personal stories and experiences, you can visit MySpondylitisTeam, where members share their journeys and challenges.

August 2, 2024
A MySpondylitisTeam Member

I agree that movement plays a huge role in easing pain but once you get where I'm at you're going to need a little help besides exercise unfortunately. Good advice though

August 11, 2023

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