Info Please

I'm 73 yo female healthy all of my life until my legs started aching and back pain became regular. I was recently dx'ed with SA. I have just started Humira. Also take methotrexate and prefnisone. At the the same time have come to need hip replacement. Having these 2 together, it's hard to separate which pain is from which ailment. My muscles are constantly aching, especially my legs. Getting into bed is a nightmare. I'm walking with a cane or in a wheelchair. I feel devastated, crying a lot and… read more

Was Diagnosed With AS At 61 After Having Many Joint Surgeries And Back Injections For Over 12 Years.

I even saw a rheumatologist 13 years ago but he did not do a HBL-27 test. Having more and more joint problems now with both shoulders, wrists and weakness and pain in fingers. After 3 knee replacements, I still have pain and swelling in my knees. I have not read much about AS and knee replacements or thumb replacements. Is that an unusual occurrence? Plus, I am very disappointed in the majority of doctors I have seen through the years who didn’t seem to have a clue about AS.

Use Of Humira

My doctor is planning on starting me on humira. I've read so many scary things about it. Are there other less toxic drugs that work just as well. The threat of lymphoma is daunting.

I Need Help With Nerve Pain, Gabapentin Has Helped But Side Effects Have Caused Me To Not Be Able To Take It.

What Symptoms Constitute A ‘flare’?

I was diagnosed in 2016 with peripheral spondyloarthritis. My symptoms were mainly in my shoulders, knees, Achilles and fingers/toes
12 days ago I woke up with excruciating pain in my sacrum radiating across my low back and upper butt. Sometimes it shot into my groin and hips
I have spent the last 5 days flat in a recliner. I can’t get out if a sitting position or stand upright without horrendous pain. Rheumatologist worried it was a fracture so sent me ER. CT scan showed no fracture.… read more

What Pain Meds Work The Best For This Condition

Does A.S. Come In Stages? Or Is It You Have It Or You Don't?

What Can I Take? I Am Allergic To Most Of The Meds Made To Help.

So far I have found out I am allergic to most of the biologics and with having Interstitial Cystitis I am unable to do methotrexate as I am not to have Folic Acid. The only one not tried yet is Otezla and due to some of the other meds, I am on I am not able to take it. I am at a loss and I am hurting too badly to even function.😭

Does Anyone Have Experience Wiht Renflexis Infusion?

I have had reactions to Methotrexate and Humira. The doctor ordered Remicade but the insurance denied and instead said I had to do Renflexis. I start this week with the infusion after being off treatment since Feb. Wondering if anyone knew of side effects. Thanks in advance.

Nausea 🤢

Anyone else who takes prescription NSAIDs daily find they’re getting bad nausea post-vax? I’ve had nausea ranging from mild to painful since the evening after my second dose (Monday). Maybe the medication is making a normal side effect worse?