I Need Help With Nerve Pain, Gabapentin Has Helped But Side Effects Have Caused Me To Not Be Able To Take It.

Info Please

I'm 73 yo female healthy all of my life until my legs started aching and back pain became regular. I was recently dx'ed with SA. I have just started Humira. Also take methotrexate and prefnisone. At the the same time have come to need hip replacement. Having these 2 together, it's hard to separate which pain is from which ailment. My muscles are constantly aching, especially my legs. Getting into bed is a nightmare. I'm walking with a cane or in a wheelchair. I feel devastated, crying a lot and… read more

Was Diagnosed With AS At 61 After Having Many Joint Surgeries And Back Injections For Over 12 Years.

I even saw a rheumatologist 13 years ago but he did not do a HBL-27 test. Having more and more joint problems now with both shoulders, wrists and weakness and pain in fingers. After 3 knee replacements, I still have pain and swelling in my knees. I have not read much about AS and knee replacements or thumb replacements. Is that an unusual occurrence? Plus, I am very disappointed in the majority of doctors I have seen through the years who didn’t seem to have a clue about AS.

Has Anyone Recieved Infusions For Thier Ankylosing Spondilitis

My Rheumatoligist has suggested that get in infusionssf Siponi Aria? I am going to get my booster next week then I have to wait 2 weeks before I start the infusions

Use Of Humira

My doctor is planning on starting me on humira. I've read so many scary things about it. Are there other less toxic drugs that work just as well. The threat of lymphoma is daunting.

Pain Pump

Do you have a pain pump?does it help?can you loose driving privileges with a pain pump?

Are Constant Back/neck Muscle Spasms Common With Nr-axSpA?

My doctor believes I have nr-axSpA based on my history of 30+ years of back/neck pain, severe thoracic/pelvic pain when lying down, and doing just fine during the day. I also have a family history of Ankylosis spondylitis and I test positive for the gene.

However, what has driven me over the last 30 years to seek medical help, is constant muscle spasms in my neck and entire back. This has severely impacted my range of motion. Nerve conduction studies confirm that the muscles along my entire… read more

What Symptoms Constitute A ‘flare’?

I was diagnosed in 2016 with peripheral spondyloarthritis. My symptoms were mainly in my shoulders, knees, Achilles and fingers/toes
12 days ago I woke up with excruciating pain in my sacrum radiating across my low back and upper butt. Sometimes it shot into my groin and hips
I have spent the last 5 days flat in a recliner. I can’t get out if a sitting position or stand upright without horrendous pain. Rheumatologist worried it was a fracture so sent me ER. CT scan showed no fracture.… read more

What Can I Take? I Am Allergic To Most Of The Meds Made To Help.

So far I have found out I am allergic to most of the biologics and with having Interstitial Cystitis I am unable to do methotrexate as I am not to have Folic Acid. The only one not tried yet is Otezla and due to some of the other meds, I am on I am not able to take it. I am at a loss and I am hurting too badly to even function.😭

Does Anyone Have Experience Wiht Renflexis Infusion?

I have had reactions to Methotrexate and Humira. The doctor ordered Remicade but the insurance denied and instead said I had to do Renflexis. I start this week with the infusion after being off treatment since Feb. Wondering if anyone knew of side effects. Thanks in advance.