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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "fatigue"

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Flares During Menses

Flares During Menses

Does anyone find that their fatigue and pain are worse during their periods?

A MySpondylitisTeam Member said:

Yes. I was misdiagnosed due to the increased pain and ended up with a total hysterectomy with bilateral oophorectomy at the age of 34. My pain got so bad after a surgery to remove polyps from my… read more

posted 2 months ago

Is Anyone Taking Cimzia And If So Have You Had Any Negative Side Effects?

Is Anyone Taking Cimzia And If So Have You Had Any Negative Side Effects?

I'm currently on celebrex but it doesn't do much for my extreme fatigue. However, some of the side effects for cimzia make me a little nervous. For example, one was that it lowers your immune system which mine already sucks. And I don't want it to affect my anemia. Any advice?

A MySpondylitisTeam Member said:

I'm on cimzia too but it doesn't work the full four weeks for me. Usually by end of week two pain starts coming back on. By the end of week three, I feel pain all the time and feel like I got hit by a… read more

posted 7 months ago

Has Anyone Recieved Infusions For Thier Ankylosing Spondilitis

Has Anyone Recieved Infusions For Thier Ankylosing Spondilitis

My Rheumatoligist has suggested that get in infusionssf Siponi Aria? I am going to get my booster next week then I have to wait 2 weeks before I start the infusions

A MySpondylitisTeam Member said:

I have been on this medication (this one is a self injecting pen) since October. I really do think each medication has worked. Last summer/early fall was rough for me... lots of pain and extreme… read more

posted 1 day ago

Does Anyone Have Nightmares

Does Anyone Have Nightmares

Bad night mate 3 or 4 times a month with nystagmus in the morning that lasts all day with of course the fatigue and pain

A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member, hi Kerry, just wondering how you are doing. Hoping your visit to the ophthalmologist was productive and you are doing better.
@A MySpondylitisTeam Member

posted 7 months ago

Nausea 🤢

Nausea 🤢

Anyone else who takes prescription NSAIDs daily find they’re getting bad nausea post-vax? I’ve had nausea ranging from mild to painful since the evening after my second dose (Monday). Maybe the medication is making a normal side effect worse?

A MySpondylitisTeam Member said:

Better now. I had the J&J 6 weeks ago. Probably having to go off the Methatrexate for 2 weeks before & after the shot increased my inflamation & fatigue. So only been back on it 2 weeks.

posted 6 months ago

Azulfidine

Azulfidine

My rheumatologist says this may be my next treatment but because of my allergy to penicillin we have to start very low dose. Has anyone else used this,? Any side effects? Did it help?

A MySpondylitisTeam Member said:

I seem to get more fatigued when I take it and had nausea when I first started taking it.

posted 6 months ago

What Kind Of Mattress Do People Recommend For As

What Kind Of Mattress Do People Recommend For As

I have an adjustable bed and bought one of the "My Pillow" mattress toppers which has allowed me to occasionally sleep in my bed with my husband. Unfortunately i been sleeping in a recliner for bpught 7 years.

A MySpondylitisTeam Member said:

I have an adjustable Sleep Number bed. It works great for me.

posted about 1 month ago

Does Anyone With AS Take Humaira.

Does Anyone With AS Take Humaira.

My husband is 69. The doctor recommended he get on Humaira. His blood work showed no inflammation. Is this normal in some with AS? It appears that Humaira is for inflammation. What alternatives are some of you on?

A MySpondylitisTeam Member said:

Try Remicade or Enflectra (not sure on the spelling). It's the samething. It took most of my pain away the first day and it shortly takes care of the skin too. I have really bad psoriasis with other… read more

posted 6 days ago

When Others Don't Understand

When Others Don't Understand

Being newly diagnosed, explaining this disease is difficult and at times awkward. My parents especially don't understand (they're in their 80's, still doing phenomenally well), Mom thinks I'll heal up and get over it. I've always lived in a culture of pushing yourself to get the job done, that if you're too tired or hurt, you're weak, lazy, not strong enough mentally. I find myself frustrated at myself for those reasons but am learning to be ok with resting when I need to. But helping those in… read more

A MySpondylitisTeam Member said:

Hope you are feeling better today. Try to do the things today that make you feel happy to be alive. Peace.

posted 17 days ago