I have been extremely fatigued for 8 days straight. 😫
Very fatigued all the time, but especially so in evenings. I react to it strangely, a lot of disorienting and dizziness, as I look up or lift my chin, I feel vertigo. In fact, when I feel this way I… read more
I am on my second biologic. I have tried Humira and 6 most later my body attacked the meds. I am now on Cosetyx. It's been about 8 weeks and I still feel so fatigued. I was thinking depression and is it still this disease?
Then why dont you switch back to Remicade.. which i hope has no much side effects..?
My Dr. And I agree that I would do better Remicade infusion every 6 weeks( insurance 8 weeks) so limited living 3 out of 8 weeks! I told my Dr. that feel like I'm living dogs life. 3weeks out of 8 weeks lost because of a lot of pain and fatigue . So we are looking into changing from 8 week Remicade to another medication from (list of biologics and related) . Anyone experence similar issues and found a better medication to limit / reduce pain and fatigue for those lost 3 weeks of 8 weeks… read more
Does anyone else wake in the morning with fatigue, go back to bed around noon and sleep until 5 PM or so, and then go to sleep at 9PM until the next morning? This happens to me about 3 times a month. It started about twenty year ago and happened about twice a year. I keeps getting worse. I tell the doctors and get blank stares. I can’t be the only person out of 8 billion that has this symptom which is just one of many symptoms. I am pretty disillusioned with our health care system. If I was a… read more
@A MySpondylitisTeam Member - this site is definitely not like Facebook where there’s only
🦋 🦋 🌈 🌈🍭 🍭 But still, we don’t share all the stressors that come to us in so many different forms. It’s… read more
Does anyone else have more than one autoimmune disease? I was diagnosed with a second one this summer, and it feels like my fatigue has doubled.
Me too on they thyroid!
I have fatigue all the time. Im thinking its because I’m in pain all the time from my back and joints. I try to take some catnaps during the day since i cant rest good at night
Do any of you have success stories of improving severe fatigue in AS using Vitamins or other Supplements?
I have both AS and Fibromyalgia. I get so tired that it makes me cry. I can't do anything without my fatigue getting out of hand.
I even fell asleep ar a set of traffic lights today. Luckily my Husband was with me and woke me up.
Life HAS to be better than this surely?
Yes I totally agree,,,,I also have fibromyalgia an arthritis in my hole body,.....back degenerated all the way down.....plus I have osteo sporosis.......... I have constant pain,,, 😭 for 3 yrs… read more
Some time ago I did daily BPC-157 injections with no remarkable benefits or side effects. I will be starting NAD+ injections for fatigue and wondered if anyone else has had these.
I have not heard of NAD+ injections for chronic fatigue. Thank you for sharing. Please keep us posted about your observations.