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My Rheumatoligist has suggested that get in infusionssf Siponi Aria? I am going to get my booster next week then I have to wait 2 weeks before I start the infusions
I receive them as frequently as I can, sometimes they work and other times they don’t
I've gotten steroid injections at specific target.
I've gotten nonsteroid injections for general area.
Not supposed to come back for 3 months. I've always been ready to return at 2 months.
NOW I've been sent on supposedly for epidural (numbing the whole spine?) It supposed to be good for a year?
I read people's posts here... seems there are lots of kinds of shots. Anyone want to straighten me out please???
I’m so sorry they don’t work for you, can you use magnets? I’ve heard that magnetic therapy helps some.
I wear sunglasses but it just tones it down on a sunny day compared to the right eye. I have excessive redness in which no drops alleviate. Does anyone have this problem and is it related to AS at all? Grazie
Familiar with sensitivity & night driving blurrs. Opto said I have inflammed optic nerve (not Uveitis...yet?) I use pink sunglasses at night for driving glares (better than yellow lense for me) & OTC… read more
I cannot stand on my feet an longer than 15-20 minutes before they are absolutely killing me. My diagnosis are AS, Fibromyalgia, sjogrens, Raynauds, and neuropathy. I hear how people describe neuropathy as pins and needles but I don’t have that. I never know how to explain it but my feet just hurt and the longer I’m on them the more swollen and red and hot they become. I have to literally plan each day around my feet, meaning I have to decide what hideous shoes to wear for the day, to making… read more
Thanks for insights to what is helping I will try them.
Please how are you coping with it. Those that aren't getting enough medicine to control pain, what do you do?Let's talk 🦜
I've been on Narco 7.5 mg for 5 months 3 x a day. That's all and finally am getting 10 mg a day. I won't know until this Sunday if it works. I can only fill one prescription a month period. It doesn't matter if there's an extra day in the month and I'm short
The pain gets so bad I want to croak 🐸. Now we aren't going to do thanksgiving or Christmas because it's been so hard… read more
Thanks for your replies 😊. I've been on my own journey with this since I last wrote
I was on hydrocodone and it helped for a few months. Then didn't so was put on Percocet also 3X a day. For 2 months… read more
Good response...i go to the pool also..trying to twist shake and whatever..to take my mind off this chronic pain...i also do dry kneedling at physical therapy..
I am. But I do believe the benefits outweigh what side effects can be. I do feel better with the scary meds than if I didn't take them. I was told it would be rare to get them too....but I do get… read more
My pain is more in the front. I stretch daily (which has helped me so much) I could not believe it. I do it daily before work
I am wondering if we will loose function of our legs. I have a lot of… read more
I’ve been flared for a month and not able to walk. Weak muscles from nerve entrapment after stand up and take a few steps. I can take a few more steps if take muscle relaxers round the clock but just a few steps at a time. I recently started forcing myself to walk under methocarbamol and just 200 steps at a time and rest and try more. Any suggestions? I need to build upper back muscles, buttocks, and abdomen muscles and don’t have a gym. I’m overweight and wonder if walking is bad for it.
BarbieLux, yess....HYDRATE, HYDRATE,HYDRATE
