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@A MySpondylitisTeam Member. Has anyone CTd your face? Several years ago extreme TMJ sent me looking for answers. Among the many consults, one ENT who did a CT told me he was surprised I wasn't in… read more
I have Active nr-axSpA and I started to have pain in my both ankle ( swelling, redness)
I take sulphasalazine 2000 mg daily !
Can diet and herbs help my Active nr-axSpA symptoms to be not active?
Thank you so much for sharing.
@ Atccmt7 - sounds like it’s time for a new set of X-rays. Is your thoracic painful? Feel like you’re being pushed forward? I have AS and these are just a few of symptoms I was experiencing when I… read more
Looking for some support. A brief history. I started experiencing inflammatory issues mainly in my neck around the age of 23. Took some time but we found out my father had the HLAB27 gene so was finally able to be referred to a rheumatologist around age 25 where I was diagnosed with AS. And I also have the gene. I’ve undergone many different treatments and therapies to help slow progression with Humira being the one to help the most. About a year and a half ago I began having very red eyes… read more
Hope you are doing well
I can definitely understand what you are going through. My disease started at 16
I'm 26 now. I have ankylosing spondylitis (AS) and non-radiographic axial spondyloarthritis… read more
I was first on meloxicam, but it made my lower back numb... switched to celebrex helped for a little while? But pain is 3-6 most days. Been seeing a physical therapist for 4 weeks, to strengthen core and quads... but pain is not getting better... thinking of getting 2nd opinion on nr-axspa before trying a biologic... I also have MS...
Thanks so much for this reply!! I will look into all of this.
Hi everyone, I am a recently diagnosed 51-year-old woman and I’m struggling with days of intense depression. My primary care doctor has mentioned that Cymbalta can help alleviate the depression especially in chronic pain disease patients. Does anyone out there have any experience with Cymbalta?
This is very helpful. I haven't been functioning on a normal level for the past year. I am so discouraged. This might help while I wait for Blue Cross to decide if they will cover the drug Sublocade… read more
I'm usually a fan of Alternative and Complementary treatments and am a Holistic Healer. I'm all of my deep research and experimentation on myself I have found virtually NOTHING that helps the pain. My… read more
I've had increasing balance problems ever since I was diagnosed with spondylosis and spinal stenosis in 2016. I've gotten to the point where I cannot even stand up long enough to zip my pants when getting dressed. I started off using one cane then two, then a walker (as of now), and probably a wheelchair next. I cannot even stand up straight anymore.
I have balance issues myself but for the reason nobody has ever said..I have fractures, stenosis, leg length discrepancy that I just started having a issue with, Nr-AxSpA, DDD, spondylosis… read more
Help - Was diagnosed with nr-AxSpa in 2023. Recently moved to a different state and can't find the great care I had in my previous state. New rheumatologist challenging original diagnosis says if damage not seen on MRI then it's not nr-AxSpa, and wants to switch my meds from Celebrex (no longer working) to Nabumetone 500mg). I don't want to take another NSAID (bloating and Celebrex didn't work). Should I get a second opinion/see a different rheumatologist before changing meds? Thanks so… read more
Based on my experience, you should probably go see a rheumatologist. I have had a few different issues misdiagnosed by my family practice dr. I think an mri would show it.
