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Hi everyone,
I was diagnosed with Ankylosing Spondylitis last year and it really destroyed my world. I was 21 and training to be a professional dancer so it felt like everything I'd been working towards was gone.
The past year I've worked really hard to get my illness under control with medication and lifestyle changes. I'm back dancing and training to achieve my dream. The plan was to try a biologic injection but recent imaging has shown that I don't have active inflammation anymore and my… read more
Hi Yousef,
Many thanks
I just try to eat as balanced a diet as possible, I don't follow any particular regimes. I swim occasionally but I go to the gym and dance regularly.
I take sulfasalazine… read more
Good response...i go to the pool also..trying to twist shake and whatever..to take my mind off this chronic pain...i also do dry kneedling at physical therapy..
An ENT specialist has injected gel into them trying to plump up so they can make a connection. I have serious arthritis in cervical area and stenosis.
Could this be the reason??
I had a 5 level lumbar fusion and disc removal in January, but needed a discogram to diagnose disc degeneration with no disc issues evident in all the scans I had previously. 3 months in, still… read more
I met w/pain management. They are doing a back injection. I've had many with no pain relief at all. My question: Has anyone had a back injection that worked after having many that didn't?
I have ablasions now.
But injection must work for 3 or 4 weeks 50%
Someti.es epidural is better
Once dr finds right spot
As this disease progresses (deteriorated you) and family & friends don't understand you and therefore dont help you or help you less and less, and doctors decrease or stop treating you due to political cost effectiveness mandates...
Where do you see yourself? How do you see yourself physically? How do you see yourself coping? Are these your final days? What kinds of choices will you make?
Hi Ally I think u need to change your doctor lovely as there is help out there trust me x
How does anyone cope with things that you are no longer able to do such as k
Just do a little each day , I have a sponge on a long pole you’re suppose to use for washing your body . I use it in the bathroom so I don’t have to reach up or bend over . I use a bar stool to sit on… read more
I have never experienced that because prior to now all my problems have been mechanical. This pain is a real game changer, I don’t want to live in this much pain either. I pray all these modalities… read more
It looks like it’s still in the trial stages but sounds promising.
My wife is on it for rheumatoid arthritis, she has it bad but the trexone helps.
Wow what a story. Thank you for your help. Ill definitely try the exercises. You suggested. Cheers piet
As in little league baseball. The nerve associated with being hit with force sends pain signal soaring to brain even though never being hit.
the neighbors knocking on the door - as you scream going downstairs. Happens to me every so often. Freezing Cold packs help.. Understanding AS, the entire pelvic area gets compromised..
@A MySpondylitisTeam Member. Yikes!! Well, hell Gregory I'm sorry. Maybe I can describe what I feel with Psoriatic Spondylitis, Osteoarthritis, and Osteoporosis and it might ring a bell to help you… read more
