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Taboo: Endgame Expectations

Taboo: Endgame Expectations

As this disease progresses (deteriorated you) and family & friends don't understand you and therefore dont help you or help you less and less, and doctors decrease or stop treating you due to political cost effectiveness mandates...
Where do you see yourself? How do you see yourself physically? How do you see yourself coping? Are these your final days? What kinds of choices will you make?

A MySpondylitisTeam Member said:

I find if my body PH is acidic, that is less than 6.9 , I will feel more pain.
So I drink aloe Vera juice and eat lots of vegetables and drink vegetable juice. It makes your body alkaline. Over 7.0-7.3
I don’t hurt so much. I take my “jelly bean” vitamins like vitamin A, D3 and omega 3, flaxseed oil w primrose oil. These lubricate your neurological system.
Also a “ chelated “magnesium called magnesium glyconate.
Magnesium citrate is too harsh on you.

posted over 2 years ago
A MySpondylitisTeam Member said:

I don’t expect AS to be an end game. If anything it would taking that mindset. I don’t mean to minimize any ones trials, pain, or discouragement , but don’t camp there. If someone is not supportive, move on, make another plan, find another way. I definitely have set backs and days I’m super discouraged but I’m not done living.

posted over 2 years ago
A MySpondylitisTeam Member said:

Are you having a bad day ?I take each day as t comes I do what I am able to do as I am sure lots of others do life of s what we make it lovely we can fight or give in I choose to fight

posted over 2 years ago
A MySpondylitisTeam Member said:

@A MySpondylitisTeam Member,I think it all matters the more we age.Facing ones mortality is just a fact of life.So I went ahead and invested my SSI BACK CHECK to pay forward on living expenses,possible senior living housing costs,and medical needs.Also payed for Funeral arrangements just so others wouldn't be burdened by it.What did that do for me?put me at ease with my own mortality.I don't fear the future now.If GOD says I'm done im just done,it's my turn.Yes I wake up daily in pain like the rest of you,yes it's a burden and pain changed my life drastically. But I don't let it rule my life.Had hip shots today and I'm going to mountains fishing tomorrow if weather holds out.I know it's going to hurt me and I'm pushing my luck.But thing is ,I don't give a rats a__ __!I absolutely love fishing and I'm going despite the pain.Have I went as much as I used to?no not near as much.So after this long winded reply,I'm trying to say dont worry about end of times,can't escape it. So just live the best you can,enjoy the little things like fishing Enjoy the huge things like your new found energy and the activities you do.Go swimming,go ride your bike,pick berries.You have been doing amazing things hun!I hope my chatter has helped in some way,proud of you @A MySpondylitisTeam Member!

posted over 2 years ago
A MySpondylitisTeam Member said:

boy, read all of yalls comments, Craig hill I feel exactly as you do, I wake up in pain go to bed in pain, I keep going like you regardless of the fact that I always pay for being active as possible, I just dont know any other way to be. I want to live my life as full and happy as possible. I'm like everyone else here, I get down and depressed have better days than others, and just keep on keeping on.I pray everyone can find just a little joy in there day some kind of way. By the way I just started on medicinal marijuana, it's legal here(have to get licensed) i have been trying different strains to do different things, for pain mainly of course, but also to uplift me and give energy, so far it's doing pretty well without all the blooming side effects of all the meds i have been on for yrs, I'm off my norco, and gabapentin, i take my muscle relaxers and just a tramadol now and then, so i am optimistic!!😁

posted over 2 years ago
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