@A MySpondylitisTeam Member definitely won't hurt to learn more about it, I always approach it with caution because of others experience.
Many people with autoimmune diseases like AS also have other autoimmune ones. Dercum’s is fatty lumps under the skin that are extremely painful and cause fibromyalgia and many other symptoms including neurological. It is a progressive disease that can lead to lymphedema. The fat is not removed by diet an exercise and can only be removed by surgery or liposuction. I was blow off by doctors as it is rare and was told I just have lipomas and just because I’m overweight but after research I know… read more
Hi BarbieLux, Don't give up. Yes, there are many awful doctors who are clueless out there. I found one doctor who specialises in lipid disorders, and she properly diagnosed me. She also recogised my… read more
Been on Medicaid for three yrs,was just approved for SSD.In mail i got letter of explanation of payments and Medicare part A @A MySpondylitisTeam Member card.But it was my understanding that i couldnt get Medicaid for 2 yrs from first payment.Anyone know about this?
I've been trying for 13 years to get SSI and disability. Hopefully they will give it to me now. I hope I can still get medical.
I often see that people take these meds but don't know what the names of them are so I can ask the doctors if they would help me sleep without so much pain. If you take them please can you give me the name of the medication you take and if it helps. Thank you. X
Cyclobenzaprine
I have Active nr-axSpA and I started to have pain in my both ankle ( swelling, redness)
I take sulphasalazine 2000 mg daily !
Can diet and herbs help my Active nr-axSpA symptoms to be not active?
Thank you so much for sharing.
Yesterday I worked a 12-hour shift at the hospital. My day was spent with extensive hours in one patient's room. She was there for other conditions. Due to a procedure scheduled, she was given a COVID test. It resulted in a positive. When I let her know, she cried, "What else can go wrong"? I just gave her time, knowing, this news was compounded by her other issues. I said a prayer for her, my coworkers, and myself silently. Today I called each appointment I have scheduled for this week. Each… read more
Thank You for your understanding
End of last week I had cluster headaches followed by a horrible migraine that lasted for days. Has anyone else had headaches?
Thanks Kay for replying. I am going to pursue my neck as a cause. I know I have at least one degenerative disc among other things going on with my vertebrae. Thanks again.
I am hunched forward and hunched to the right. In pain every day and almost always depressed. Is there Anybody that is or has gone through the same?
@A MySpondylitisTeam Member - I know how you feel. The pain and constant gravitational pull all day long. It’s a fight for sure! Look for stretches for kyphosis on YouTube. There’s some that I’ve… read more
I was diagnosed with 'non radiographic' AS (although it's questionable about the NR b/c my doctor saw inflammation on the MRI, brought it to the attention of the radiologist who then agreed) and started with taking Piroxicam at night. Initially and for the first time in my life I woke up in the morning without pain. I then was prescribed Cimzea (the medication for NR AS). It's been close to a year and recently, I started having the same pain in the morning where it's difficult to straighten up… read more
Anything is possible. I've been on medication that I questioned about whether it was wearing off. I quit taking the medication for one week, started back on it and it worked great
Don't do this… read more