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I have Active nr-axSpA and I started to have pain in my both ankle ( swelling, redness)
I take sulphasalazine 2000 mg daily !
Can diet and herbs help my Active nr-axSpA symptoms to be not active?
Thank you so much for sharing.
@A MySpondylitisTeam Member. Has anyone CTd your face? Several years ago extreme TMJ sent me looking for answers. Among the many consults, one ENT who did a CT told me he was surprised I wasn't in… read more
I was first on meloxicam, but it made my lower back numb... switched to celebrex helped for a little while? But pain is 3-6 most days. Been seeing a physical therapist for 4 weeks, to strengthen core and quads... but pain is not getting better... thinking of getting 2nd opinion on nr-axspa before trying a biologic... I also have MS...
Thanks so much for this reply!! I will look into all of this.
Looking for some support. A brief history. I started experiencing inflammatory issues mainly in my neck around the age of 23. Took some time but we found out my father had the HLAB27 gene so was finally able to be referred to a rheumatologist around age 25 where I was diagnosed with AS. And I also have the gene. I’ve undergone many different treatments and therapies to help slow progression with Humira being the one to help the most. About a year and a half ago I began having very red eyes… read more
Hope you are doing well
I can definitely understand what you are going through. My disease started at 16
I'm 26 now. I have ankylosing spondylitis (AS) and non-radiographic axial spondyloarthritis… read more
@ Atccmt7 - sounds like it’s time for a new set of X-rays. Is your thoracic painful? Feel like you’re being pushed forward? I have AS and these are just a few of symptoms I was experiencing when I… read more
Hi everyone, I am a recently diagnosed 51-year-old woman and I’m struggling with days of intense depression. My primary care doctor has mentioned that Cymbalta can help alleviate the depression especially in chronic pain disease patients. Does anyone out there have any experience with Cymbalta?
This is very helpful. I haven't been functioning on a normal level for the past year. I am so discouraged. This might help while I wait for Blue Cross to decide if they will cover the drug Sublocade… read more
I started having low back pain in my mid-20s. Since then, it's progressed to my upper back and now to my hips (I just turned 51 a couple days ago). I've always been a very active person, I don't smoke or drink, and I'm not overweight. I've been diagnosed with osteoarthritis in my back and with costochondritis, but I don't have any other underlying health concerns. Autoimmune disease runs in my family (both sides), and I did have hyperthyroidism in my early 30s which I was able to reverse and has… read more
Oh, I am sorry. That is certainly not the clear answers you were hoping for. I know that can be very difficult and so frustrating. And all the contadictions... it makes you feel crazy, doesn't it. It… read more
I'm usually a fan of Alternative and Complementary treatments and am a Holistic Healer. I'm all of my deep research and experimentation on myself I have found virtually NOTHING that helps the pain. My… read more
I have some kyphosis too .......
Help - Was diagnosed with nr-AxSpa in 2023. Recently moved to a different state and can't find the great care I had in my previous state. New rheumatologist challenging original diagnosis says if damage not seen on MRI then it's not nr-AxSpa, and wants to switch my meds from Celebrex (no longer working) to Nabumetone 500mg). I don't want to take another NSAID (bloating and Celebrex didn't work). Should I get a second opinion/see a different rheumatologist before changing meds? Thanks so… read more