Many people with autoimmune diseases like AS also have other autoimmune ones. Dercum’s is fatty lumps under the skin that are extremely painful and cause fibromyalgia and many other symptoms including neurological. It is a progressive disease that can lead to lymphedema. The fat is not removed by diet an exercise and can only be removed by surgery or liposuction. I was blow off by doctors as it is rare and was told I just have lipomas and just because I’m overweight but after research I know… read more

Been on Medicaid for three yrs,was just approved for SSD.In mail i got letter of explanation of payments and Medicare part A @A MySpondylitisTeam Member card.But it was my understanding that i couldnt get Medicaid for 2 yrs from first payment.Anyone know about this?

I often see that people take these meds but don't know what the names of them are so I can ask the doctors if they would help me sleep without so much pain. If you take them please can you give me the name of the medication you take and if it helps. Thank you. X

I have Active nr-axSpA and I started to have pain in my both ankle ( swelling, redness)
I take sulphasalazine 2000 mg daily !
Can diet and herbs help my Active nr-axSpA symptoms to be not active?

End of last week I had cluster headaches followed by a horrible migraine that lasted for days. Has anyone else had headaches?

Yesterday I worked a 12-hour shift at the hospital. My day was spent with extensive hours in one patient's room. She was there for other conditions. Due to a procedure scheduled, she was given a COVID test. It resulted in a positive. When I let her know, she cried, "What else can go wrong"? I just gave her time, knowing, this news was compounded by her other issues. I said a prayer for her, my coworkers, and myself silently. Today I called each appointment I have scheduled for this week. Each… read more

I have had several x-rays and I have had a few MRI’s. All concluded that “no significant changes” they do list that there’s been bone degeneration and degenerative bone disease. My first X-Ray was done at a chiropractor’s office and it shown that a lot, I had one leg longer than the other, a pinched nerve in my right hip and so much damage to the left hip they referred me to an orthopedic doctor to assess if I needed a hip replacement. At that time the orthopedic specialist only seen me as he… read more

I was diagnosed with 'non radiographic' AS (although it's questionable about the NR b/c my doctor saw inflammation on the MRI, brought it to the attention of the radiologist who then agreed) and started with taking Piroxicam at night. Initially and for the first time in my life I woke up in the morning without pain. I then was prescribed Cimzea (the medication for NR AS). It's been close to a year and recently, I started having the same pain in the morning where it's difficult to straighten up… read more

I am hunched forward and hunched to the right. In pain every day and almost always depressed. Is there Anybody that is or has gone through the same?