I concur with @A MySpondylitisTeam Member. In my observation amongst this and a couple of other forums that I've been on, I have yet to meet anyone on meds that don't have to change their meds or who… read more
Will be switching to Medicare in a few months and in researching my options I'm finding Enbrel will cost me about $5000 more per year than it does on my current health insurance. What have other people done when moving to Medicare?
Amgen works with a program called Saftynet Fondation , if you qualify you pay 0$ for your Embrel… Contact them
I am on my second biologic. I have tried Humira and 6 most later my body attacked the meds. I am now on Cosetyx. It's been about 8 weeks and I still feel so fatigued. I was thinking depression and is it still this disease?
Stay strong warrior 💪 💙 ❤️
I love to hear the successes, even what some people think are too small for anyone to be interested. They are ALL inspirational to me. No one on this and other forums about lifelong suffering has anything easy about their life. Every day is a triumph over death. Why not share more triumph? Venting is good, but probably better and more appropriately done with a paid therapist trained at handling it. Lashing out at strangers for sharing a win over chronic disease perpetuates the misery. I don't… read more
@A MySpondylitisTeam Member. And I'll be waiting to kick butt on that something else. You never met a fighter like me. I prefer my saying, "what doesn't break you makes you better in ways you never… read more
I am curious as to whether anyone else is dealing with something called Exertional Compartment Syndrome related to their AS. Mine is compartment syndrome of the lower legs. Little by little over the last year, I noticed that every time I would squat down, my legs felt like they were going to pop. Then I started noticing a bulge in the compartments of my lower legs, right below my knees, both legs. Finally, a very astute and kind orthopedist did some pressure measurements in the compartments of… read more
@SherriLawler- I am going to try someone new in the next couple of weeks. My pain management doc doesn't think I need another MRI right now. My last one was in March of this year showing mild… read more
This swelling makes my pain increase to point I am having difficulty in walking at times
Massage and hot bath
My "friends" dropped me after my diagnosis and I couldn't be spontaneous with activities. I can't work and have no friends to even TRY to do things with. Does anyone else experience this?
Yes, all the time. Still havent figured out how to make things better. I walk about 2.5 miles a day. That helps some.
My Rheumatoligist has suggested that get in infusionssf Siponi Aria? I am going to get my booster next week then I have to wait 2 weeks before I start the infusions
Two in one...
What does humidity DO to agrivate our condition?
How is hot & humid different from dry hot regarding our condition?
I've seen people comment on here about humidity and been surprised. I've never thought about it. I thought heat was heat. What does humidity DO to agrivate our condition?
How is hot & humid different from dry hot regarding our condition?
I agree atmospheric pressure makes mine worse
When we recently had a Hurricane pass by and the pressure got down to the 900's I got so much worse.