Thanks I will make sure to mention that! I’ll let you know how it goes. It’s at Farmington Valley Physical Therapy and the session is with someone that is specialized in the Barnes method (I think that’s what it’s called!)

Oh I’m excited for you! I can’t wait for my appointment tomorrow. I’m a mess!

Please let me know how it goes. I’m curious about the setting. My sessions are in a massage environment with the table, dim lights and spa music. She talks to me throughout the session make sure I’m feeling the fascia unwind and I let her know if something else starts to tighten or releases. My body typically goes completely limb on the table when an area of my body is released from the grip of the fascia. The fascia is trying to protect but ends up almost hardening and leaving you immobile. Also I learned that it’s like a sticky spider web made of water and collagen.

Oh just In case they don’t say this, make sure you take an Epsom salt bath for 10-15 minutes- no more - on Tuesday night. Ms Iris stresses that it helps the fascia stay in place where it should be. I definitely can tell a difference when I haven’t followed her instructions. 🤭

Sherrill, are you getting your fascia release done by a physical therapist? I would love to try it but unsure where to go.

Sherril, Thank you for that information. TBH I have not seen much on the internet about compartment syndrome related to AS, even on the Mayo and Cleveland Clinic sites. However, I cannot wait to try the fascia release. Is is a physical therapist that does this for you?
My new rheumatologist is a Lupus specialist at Yale New Haven Hospital in CT and is a brilliant , kind MD who is also very very busy and can be difficult to see. He ordered Enbrel but my Medicare Part D denied it, even with a prior authorization. They said I have to try Humira first, then Cosentyx, then Enbrel if the other two fail. I do have a few risks factors for Biologics but I am also concerned about progression of disease. I won't give up, although I am getting kind of pooped out lol...Thank you so much.

Hi Jody - there’s just nothing like the “medical shrug” followed my the “medical blow off” 🙄. So frustrating! I’m sorry you’re in this season of the journey. You have to be your own advocate and research. Not sure why the doctor didn’t know about Exertional Compartment Syndrome because it’s all over the internet. Apparently one of the components of this syndrome is the fascia. I’ve being going to fascia therapy (fascia release) and it has helped me so much with stretching out my body, releasing painful areas and giving me more range of motion. It feels wonderful. I go weekly now.
I have experienced this in my calves when my SI Joints progressed with AS. I had blood vessels popping out of my right calf from the pressure my spine was putting on my lower extremities. When they get tight or hard my fascia therapist works it all out. She says the fascia is “unwinding” and I can feel it! It’s really amazing!
As for the biologic, I too am concerned about taking them but my Rheumatologist scared me. He got real serious and said your disease is progressing and you really need to be medicine to slow it down. So I prayed about it while going through the process to be approved financially for Enbrel. I take my 6th injection tomorrow. I’m still waiting for results. I’ll give it the 3 months.
Maybe you should consider a new Rheumatologist 🤷🏼‍♀️. Maybe call and ask if any of the doctors specialize in this syndrome. I hope you can find a therapist that does fascia release in your area. It’s been such a blessing and I have a new friend. She’s a wonderful woman. ♥️
I really hope you’re able to find someone to help. Don’t give up 🙌🏾. Keep pushing forward. 🤗