Hi everyone,

I was diagnosed with Ankylosing Spondylitis last year and it really destroyed my world. I was 21 and training to be a professional dancer so it felt like everything I'd been working towards was gone.

The past year I've worked really hard to get my illness under control with medication and lifestyle changes. I'm back dancing and training to achieve my dream. The plan was to try a biologic injection but recent imaging has shown that I don't have active inflammation anymore and my… read more

An if so has it helped with the pain , numbness, an tingling...

My neuro is absolutely against spinal cord stimulators and ablation, I didn’t ask why he was against ablation. But he said they seldom get the spinal cord stimulators in the right place. If the placement is good it might work. He said the technology has not advanced where they can position the probe into proper position because if a person lays on a table they can’t tell where the weight bearing pressure is to place it effectively and if they stand the person up there is 100 pounds of whatever… read more

I have ADHD and I have never been able to sit around or be in the same place very long. Now that I am in constant flare state where the pain is outweighing the fun of doing all the things people do, like running to a store, going to sporting events for kids, going to school meetings, making dinner, cleaning the house, etc. How do I accept that I am going from a fulltime well-earned and wanted career and mom (with little support from the other parent) to a slug that has to disappoint my child and… read more

Looks like I might be getting a cold or even the flu… First time since I’ve been on sulfasalazine and I’m too late to ask my rheumatologist this question today, so wondering what y’all do when that happens? I will check in with her tomorrow, but would love any insights for those of you who gotten sick while on sulfasalazine.

Has anyone used Cimzia and Simponi Aria as a combo? I use methotrexate and it's not working.

I’ve been flared for a month and not able to walk. Weak muscles from nerve entrapment after stand up and take a few steps. I can take a few more steps if take muscle relaxers round the clock but just a few steps at a time. I recently started forcing myself to walk under methocarbamol and just 200 steps at a time and rest and try more. Any suggestions? I need to build upper back muscles, buttocks, and abdomen muscles and don’t have a gym. I’m overweight and wonder if walking is bad for it.

How does anyone cope with things that you are no longer able to do such as k