Hi everyone,
I was diagnosed with Ankylosing Spondylitis last year and it really destroyed my world. I was 21 and training to be a professional dancer so it felt like everything I'd been working towards was gone.
The past year I've worked really hard to get my illness under control with medication and lifestyle changes. I'm back dancing and training to achieve my dream. The plan was to try a biologic injection but recent imaging has shown that I don't have active inflammation anymore and my… read more
Hi Yousef,
Many thanks
I just try to eat as balanced a diet as possible, I don't follow any particular regimes. I swim occasionally but I go to the gym and dance regularly.
I take sulfasalazine… read more
The article mentions that Nsaids, biologics, and other Immunosuppressive medications contribute to gut dysbiosis which in turn contributes to inflammation. Isn't recommending them to patients counter productive to alleviating the inflammation?
Yes, you mention many procedures/options my doctors have not even brought up as options. In the last 4 years (maybe) I seem to have gone from 5ft9 inches to 5ft6 inches!! My spine is a mess. I've… read more
I'm in constant pain but told that I needed to see psychologist
I had a dr tell me when I was 25 that there was nothing wrong with me at all, that it was all in my head. Meanwhile I have AS, RA, Bechets Disease, severe double scoliosis, multiple spinal surgeries… read more
I have been getting weird bruises on my body lately. They usually leave in a day or so. Tonight I found a bruise on my coccyx bone. Any one else experienced this? Thank you for your help.
I bruise very easily but I take ELIQUIS. My bruises are usually large and itch. They remail for at least a month.
@A MySpondylitisTeam Member. Thanks! You have a nice day.
I read online “ Ankylosing spondylitis (AS) can cause bladder problems in rare cases due to a neurological complication called cauda equine syndrome, where the nerves at the base of the spine are damaged. This can lead to symptoms such as urinary incontinence and retention
Over many years, severe cases of AS can result in the formation of scars in the bundle of nerves at the spine's base, leading to problems such as urinary incontinence, lack of bowel control, and sexual dysfunction.
I have… read more
We all grow stronger through sharing with each other our experiences, both the good and the bad. To know that you aren't the only one experiencing something unpleasant, to learn more than one or two… read more
Has anyone gained lots of weight whilst on it?
My experience is a good nights sleep and no weight increase.
I found this which might help https://pubmed.ncbi.nlm.nih.gov/872612/
I have been having a lot of problems with extreme dizziness. It started after an MRI on my head which I had due to daily migraines. I believe that the dizziness stems from my neck issues. I was prescribed meclizine but hasn't made a difference. Any thoughts or suggestions?
@A MySpondylitisTeam Member, cute gif. You are welcome, we all need those hugs. 🕊️
My neuro is absolutely against spinal cord stimulators and ablation, I didn’t ask why he was against ablation. But he said they seldom get the spinal cord stimulators in the right place. If the placement is good it might work. He said the technology has not advanced where they can position the probe into proper position because if a person lays on a table they can’t tell where the weight bearing pressure is to place it effectively and if they stand the person up there is 100 pounds of whatever… read more
I know very many the same.
@A MySpondylitisTeam Member. Hey there Karen! I didn't realize you are right down the road in PCola!😊. You're only 2 yrs older than me. It affects my whole body, plantar fascia to orbital socket(eye)… read more