Has Anyone Been On Otezla, If So How Is It. I’ve Just Been Diagnosed With Spondyloarthropathy After Years Of Pain. Drugs Scare Me. | MySpondylitisTeam

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Has Anyone Been On Otezla, If So How Is It. I’ve Just Been Diagnosed With Spondyloarthropathy After Years Of Pain. Drugs Scare Me.
A MySpondylitisTeam Member asked a question 💭
posted March 5
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A MySpondylitisTeam Member

Edibles...indeeeeed. The right ones can be nothing short of miraculous.😎😁

I also have to agree with the otc meds like advil and tylenol far and above biologics. They actually relieve pain even if only a little. Alas, I can't take those anymore because the biologics caused liver and kidney damage to me, as stated by my Hematologist.

I'm telling you folks, if you think it can't get any worse, there are more folks on here than me dealing with organ failure and/or cancer as a result of the biologics and DMARDS. When that happens, and you can't take anything anymore for pain while you wait for a transplant, you'll be rethinking that attempt for an easy way out of diet and physical therapy to control an autoimmune condition. It doesn't happen to everyone, just like a life of cigarette smoking doesn't cause cancer in everyone. You just gotta decide for yourself if the risk is worth the "maybe" reward. As long as you can sleep easy at night with your decision, then it's the right decision for you.😌🙏

posted March 5
A MySpondylitisTeam Member

If your pain is not yo severe try taking the duoadvil with Tylenol. That works really well for me. I also use Voltaren cream and edibles which helps alot.

posted March 5
A MySpondylitisTeam Member

And they SHOULD scare you! Determine what causes your disease and stop that. Until you do, meds will probably just give you more problems, especially biologics. Humans aren't meant to mix their DNA with that found in Chinese hamsters (the other half of the recombinant DNA in most bios)

posted March 5
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. Hey there Karen! I didn't realize you are right down the road in PCola!😊. You're only 2 yrs older than me. It affects my whole body, plantar fascia to orbital socket(eye). I promise you I understand what you're dealing with pretty well. As well as anyone who can't crawl in your head and feel pain the way you experience it. We all experience pain differently, of course mbecause as different individuals with different experiences we react differently. Right, Captain Obvious.😏

I am wondering if you might not be the sister I occasionally chat with briefly who mentioned has a sister in PCola with AS. I gave her this site's info and suggested she reach out to me. The lady I've chatted with is a MUV delivery driver who brings me my canna cream. I use a lot of their 1:1 pain relief cream. It's expensive, but works and is the only thing that gives me a few hours of the edge off so I can get things done like chores, errands, or PT. Nsaids, Voltaren, and celebrex do absolutely nothing for me. Been there and had to quit all those after they gave me too many bleeding problems and contributed to the near disintegration of my gut. If you bruise easily, think what it must be doing on the inside.😬 makes arthritis feel like a back rub.😖

Reach out anytime and if you ever want to meet in person, I'm okay with driving to PCola in the tourist off season, i.e. winter, or the afternoon of June 25th, after my Rheumatologist appt in Gulf Breeze.

One more thing, look into BMAC stem cell transplant therapy. There's an Orthopedic spine surgeon in Destin who does it. If you're interested, keep up with my posts as I update how I experience the results. I just had it done for my neck a few days ago.😌🙏

posted April 13
A MySpondylitisTeam Member

you make so much sense, really and i so wish there was an alternative to this whole thing, yes exercise, diet all those things I have done and still came down with this disease...ugh! I am 61 and not positive for the gene so i am hoping maybe my outcome wont be as severe, just maybe...lots to think about and consider before taking some of these biologics...thanks for all our advise....my problem is the inflammation is in my feet, knees and lumbar back and most nsaids do very little...im on celebrex and i still use voltaren and the edibles just to manage the pain..

posted April 13

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