I have ankylosing spondylitis. Has anyone developed uveitis over time from your arthritis? I have had bilateral torn retinas, later a detached retina, and a cataract removed. I continue with inflammation in the eye I had surgery for detached retina. I am currently on Humira and methotrexate injections and take prednisone eyedrops until this inflammation quiets down before I can have eye surgery again. This has been an ongoing issue for me. Anyone have eye issues? If so, I would like to hear your… read more
I have had two cataracts removed about 4 1/2 years before being diagnosed with spondylitis. I had no pain in my eyes, just foggy vision (like looking through misted (or iced up) windows).
I had never heard of it either. I was diagnosed in December. Trying to research and learn as much as I can. Good luck! 😊
They are withholding my Humira script because I had a basil cell cancer spot on my ear removed last May 2023. I started it March 2023. It was biopsied, cut out, and healed perfectly. I've been without and the process looks like they need the derm doc to call them and let them know I don't have cancer. I had a bad rep who told me to get the information from them and call back with it. Then I was told they need the doctor to call. I understand but 2 hours on the phone of misinformation and… read more
The sun was out very bright yesterday first the first time all winter. So I decided to go outside and sit. I had to face the dark paint on the House. My eyes started to burn badly. I had to come inside and shut the curtains and close my eyes. It was awful. Never had this before. This morning they feel all puffy. Anyone ever had this?
I've found that sometimes my AS causes light sensitivity and my eyes get red and really irritated. Almost like terrible dry eyes. So I started using systane eye drops every night after my shower. Have… read more
How bad it is
I am seeing a rheumatologist this week and am hoping for the possibility of a prescription for some of the self injecting pain relievers. Because of the Opioid problem, my regular doctor will only prescribe 12 Vicodin a year, which just isn’t sufficient when I need it. I may not need it very often, but might need one 4 days in a row. I have been taking Vicodin for 40 years and used to get a prescription of 60 a year, which I never abused. Sometimes my back will go into a spasm so severe… read more
I understand all you said. One of our MM providers started making RSO gummies and also distills tinctures. I seem to recall reading that Ceres is a full spectrum (aka RSO) producer. I looked for that… read more
I have myofascial pain, Cervical Spondylosis, Cervicogenic Headaches, chronic neck pain, degenerative cervical intervtebral disc. After the doctor did the last procedure I've been in so much pain, I've read that you are soppose to be awake I was put to sleep this time. Mind you I had the right side done and was awake. Now my arm goes numb when I stand. I'm not one to complain to others about my health. Noone understands
I have had the RFT nerve burn every six months for sciatica pain down my legs for over 20 years. It is the only procedure to give me that relief. I was in the original study with a top pain physician… read more
I have an an itchy hip/but area just on my left side. If my feet overheat as I have regional pain syndrome then they will itch so have to put them in water.
Looking for some support. A brief history. I started experiencing inflammatory issues mainly in my neck around the age of 23. Took some time but we found out my father had the HLAB27 gene so was finally able to be referred to a rheumatologist around age 25 where I was diagnosed with AS. And I also have the gene. I’ve undergone many different treatments and therapies to help slow progression with Humira being the one to help the most. About a year and a half ago I began having very red eyes… read more
Hope you are doing well
I can definitely understand what you are going through. My disease started at 16
I'm 26 now. I have ankylosing spondylitis (AS) and non-radiographic axial spondyloarthritis… read more
It sounds like fidgeting but it’s different. It’s from pain and not being able to stand or sit for any period of time. Stretching out my back, shoulders, ankles, hips. It’s most annoying when I’m trying to sit and have a conversation with family or friends. The itching and scratching from the Psoriasis must be a bonus for my audience ðŸ˜
Does anyone have a regular need to stretch and move (up down up down) throughout their day ?
Hi KatJSassaman. God gave us reason. Pain is the body's warning that it is sick. The body is asking for help. It manifests itself in pain! We ignore the body. He gets NSAId instead of help. But that's… read more