how to work with your doctor to find the right nr axspa treatment and spondylitis | MySpondylitisTeam

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Top 10 Search Results for "how to work with your doctor to find the right nr axspa treatment"

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Has Anyone Developed Uveitic Macular Edema And Synechai From HLAB27 Ankylosing Spondilitis?
A MySpondylitisTeam Member asked a question 💭

Looking for some support. A brief history. I started experiencing inflammatory issues mainly in my neck around the age of 23. Took some time but we found out my father had the HLAB27 gene so was finally able to be referred to a rheumatologist around age 25 where I was diagnosed with AS. And I also have the gene. I’ve undergone many different treatments and therapies to help slow progression with Humira being the one to help the most. About a year and a half ago I began having very red eyes… read more

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A MySpondylitisTeam Member

Hope you are doing well
I can definitely understand what you are going through. My disease started at 16
I'm 26 now. I have ankylosing spondylitis (AS) and non-radiographic axial spondyloarthritis… read more

Can Diet And Herbs Help My Active Nr-axSpA Symptoms To Be Not Active?
A MySpondylitisTeam Member asked a question 💭

I have Active nr-axSpA and I started to have pain in my both ankle ( swelling, redness)
I take sulphasalazine 2000 mg daily !
Can diet and herbs help my Active nr-axSpA symptoms to be not active?

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A MySpondylitisTeam Member

Thank you so much for sharing.

How Do I Get Non-radiographic Ankylosing Spondylitis (nr-AsSpA) On My Doctor's Radar?
A MySpondylitisTeam Member asked a question 💭

I started having low back pain in my mid-20s. Since then, it's progressed to my upper back and now to my hips (I just turned 51 a couple days ago). I've always been a very active person, I don't smoke or drink, and I'm not overweight. I've been diagnosed with osteoarthritis in my back and with costochondritis, but I don't have any other underlying health concerns. Autoimmune disease runs in my family (both sides), and I did have hyperthyroidism in my early 30s which I was able to reverse and has… read more

A MySpondylitisTeam Member

Oh, I am sorry. That is certainly not the clear answers you were hoping for. I know that can be very difficult and so frustrating. And all the contadictions... it makes you feel crazy, doesn't it. It… read more

COVID-19 and Spondylitis Essential Updates Read more >
Moved And New Rheumatologist Challenging Original Diagnosis, Changing Meds
A MySpondylitisTeam Member asked a question 💭

Help - Was diagnosed with nr-AxSpa in 2023. Recently moved to a different state and can't find the great care I had in my previous state. New rheumatologist challenging original diagnosis says if damage not seen on MRI then it's not nr-AxSpa, and wants to switch my meds from Celebrex (no longer working) to Nabumetone 500mg). I don't want to take another NSAID (bloating and Celebrex didn't work). Should I get a second opinion/see a different rheumatologist before changing meds? Thanks so… read more

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Cymbalta
A MySpondylitisTeam Member asked a question 💭

Hi everyone, I am a recently diagnosed 51-year-old woman and I’m struggling with days of intense depression. My primary care doctor has mentioned that Cymbalta can help alleviate the depression especially in chronic pain disease patients. Does anyone out there have any experience with Cymbalta?

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A MySpondylitisTeam Member

This is very helpful. I haven't been functioning on a normal level for the past year. I am so discouraged. This might help while I wait for Blue Cross to decide if they will cover the drug Sublocade… read more

Does Anyone Have Pressure Feeling In Their Head?
A MySpondylitisTeam Member asked a question 💭
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What Are Your Goals for Ankylosing Spondylitis Treatment? Read Article...
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. Has anyone CTd your face? Several years ago extreme TMJ sent me looking for answers. Among the many consults, one ENT who did a CT told me he was surprised I wasn't in… read more

Can The Pain And Symptoms Go Away. I Am Holistic Minded And Want To Do Things That Will Heal Such As Anti-inflammatory Things Like Turmeric
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

I'm usually a fan of Alternative and Complementary treatments and am a Holistic Healer. I'm all of my deep research and experimentation on myself I have found virtually NOTHING that helps the pain. My… read more

I Developed Scoliosis In My 40s/50s Along With Degenerative Lumbar/cervical Spinal Dz. Have Others Had This Happen? I Have PsA
A MySpondylitisTeam Member asked a question 💭
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Spondylitis vs. Spondylosis: Are They One and the Same? Read Article...
A MySpondylitisTeam Member

Hello everyone, I've been dealing with anklelosing spondylosis, cervical disc disease and advanced degenerative disease for 23 years that's affecting my whole body. I have been dealing with pain and… read more

I Was Diagnosed With NR-AxSpA In 2015. I Know Have Spurring In My Thoracic And Cervical Spine. Does This Mean I’ve Progressed To AS?
A MySpondylitisTeam Member asked a question 💭
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A MySpondylitisTeam Member

@ Atccmt7 - sounds like it’s time for a new set of X-rays. Is your thoracic painful? Feel like you’re being pushed forward? I have AS and these are just a few of symptoms I was experiencing when I… read more

Clarification, Have You Talked To Your Doctor About What To Expect From Biologics? .
A MySpondylitisTeam Member asked a question 💭

Dear Ted and Dr. Tambar,

I hope this message finds you well. I recently came across your post titled "Have You Talked to Your Doctor About What To Expect From Biologics?" on nonradiographic axial spondyloarthritis (nr-axSpA). While the content provides valuable insights into treatment adherence and open communication with healthcare providers, it's worth noting that the post doesn't explicitly address the question it poses.

This omission raises a concern as the post's title suggests a focus on… read more

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Taking Biologics: Dosing, Insurance Coverage, and When You Can Stop (VIDEO) Read Article...
A MySpondylitisTeam Member

I have family members that are not Huggers and I just don't get it ! So I get it & here's a big ol hug for "U".🙂