Looking for some support. A brief history. I started experiencing inflammatory issues mainly in my neck around the age of 23. Took some time but we found out my father had the HLAB27 gene so was finally able to be referred to a rheumatologist around age 25 where I was diagnosed with AS. And I also have the gene. I’ve undergone many different treatments and therapies to help slow progression with Humira being the one to help the most. About a year and a half ago I began having very red eyes… read more
Hope you are doing well
I can definitely understand what you are going through. My disease started at 16
I'm 26 now. I have ankylosing spondylitis (AS) and non-radiographic axial spondyloarthritis… read more
It could be about the disease, memoir, movement, diets, holistic health, literally anything, I am learning that I need to consume knowledge to find acceptance.
I just pumped into keystone approach. It explains diet to help people with AS. I am still learning about the diet.
Does anyone know if there is a definitive way to distinguish between non radiographic AS and reactive arthritis? It seems like the two have several common symptoms.
I have Active nr-axSpA and I started to have pain in my both ankle ( swelling, redness)
I take sulphasalazine 2000 mg daily !
Can diet and herbs help my Active nr-axSpA symptoms to be not active?
Thank you so much for sharing.
I’m HLA-b27 positive, at my first rheumatologist visit I was told I had AS. My MRI shows, facet inflammation and degeneration and osteoarthritis.
Can non-radiographic spondylitis look like osteoarthritis?
Wow. I also have the hla-b27 gene as well. My great grandmother had A.S. I believe my Mom said my Aunt has it as well. Plus my Mom has osteoporosis. Several people in my family have osteoporosis and… read more
Hello everyone,I was diagnosed with AS in 2019, and taking Humira. I was wondering how long others have had AS and were you taking Humira, and for how long? I'm fairly young and to read some of the cases that are worse than mine is frightening. I don't want to progress to that depth of pain. Don't get me wrong I've had some pain, but I'm curious as to how long others have lived with AS.
I was diagnosed with a rheumatoid arthritis in 2010 and in 2022 I was diagnosed with spondyloarthritis
I take Rinvoq and so far have had good luck at least on the Psoriasis side. I'm unfortunately beginning to accept there just isn't a help for the pain.
@A MySpondylitisTeam Member. Has anyone CTd your face? Several years ago extreme TMJ sent me looking for answers. Among the many consults, one ENT who did a CT told me he was surprised I wasn't in… read more
Dear Ted and Dr. Tambar,
I hope this message finds you well. I recently came across your post titled "Have You Talked to Your Doctor About What To Expect From Biologics?" on nonradiographic axial spondyloarthritis (nr-axSpA). While the content provides valuable insights into treatment adherence and open communication with healthcare providers, it's worth noting that the post doesn't explicitly address the question it poses.
This omission raises a concern as the post's title suggests a focus on… read more
I have family members that are not Huggers and I just don't get it ! So I get it & here's a big ol hug for "U".🙂
I started having low back pain in my mid-20s. Since then, it's progressed to my upper back and now to my hips (I just turned 51 a couple days ago). I've always been a very active person, I don't smoke or drink, and I'm not overweight. I've been diagnosed with osteoarthritis in my back and with costochondritis, but I don't have any other underlying health concerns. Autoimmune disease runs in my family (both sides), and I did have hyperthyroidism in my early 30s which I was able to reverse and has… read more
Oh, I am sorry. That is certainly not the clear answers you were hoping for. I know that can be very difficult and so frustrating. And all the contadictions... it makes you feel crazy, doesn't it. It… read more