I was recently diagnosed with AS. I had started Celebrex 3 days before meeting my rheumatologist. The rheumatologist barely read my chart or listened to anything I was saying before telling me I need to start Humira. My inflammation markers are all down to normal ranges after Celebrex. My pain levels are drastically reduced - though I still have SI joint pain. The Dr said Humira stops the disease progression- which is why I need to start. If my inflammation is down, is the disease still… read more
Thank you so much for sharing your story
Thank you
Yes, before I was treated for spondylarthritis I was sick all the time. The odd thing is that being on biologics has made me healthier, I still get sick, but its not as bad as before.
The most effective biologic is the one that targets the specific cytokine(s) attacking the body of the individual taking any particular niologic. Learn what they do and you will understand the… read more
I have taken prednisone now for about 5 to 6 months. I feel almost normal on it with no major flares. My Dr. has tried me on Humira to replace the prednisone. I took one dose and got Covid, then had a HSV breakout, then a urinary track infection, then viral again. I couldn’t get over being sick for months. Needless to say I stopped taking Humira. Still on prednisone with no problems what so ever. Then he tried cosentyx on me. My first dose I got this migraine headache with pressure on my head… read more
Yes prednisone is definitely detrimental in the long term. Prednisone was never meant to be long term. It is used for acute only. And yes it is natural to feel so much better while taking prednisone… read more
I am wondering how many of you are on a biologic?
Does it make you feel pretty normal or does it just help a little bit?
Do you have chronic pain or does it come and go?
Trying to decide if I need to switch biologics or if this is just the way life with AS is?
Thanks
Good day,
My gums are very inflamed and feel raw. My cheeks feel raw as well. Has anyone else experienced this and if so, what has helped? Thank you from Maryland
Hi, thank you for the info, I take 1 Flintstones complete multivitamin daily. The chewable, my mother swore by it when she was with us, they are absorbed in your system much faster than pills.
I concur with @A MySpondylitisTeam Member. In my observation amongst this and a couple of other forums that I've been on, I have yet to meet anyone on meds that don't have to change their meds or who… read more