acceptance realigning expectations and extending grace to ourselves and spondylitis | MySpondylitisTeam

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Top 10 Search Results for "acceptance realigning expectations and extending grace to ourselves"

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Struggling To Get Diagnosed. Blood Tests/scans Inconclusive
A MySpondylitisTeam Member asked a question 💭

Although my mri's have shown early indication (but inconclusive), my blood tests keep coming back without raised inflammation markers so my Gp has refused to refer me to rheumatology. All my symptoms/pain point to axial spondylitis but I'm really confused.
Has anyone else experience this with blood tests for inflammation? Thanks

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A MySpondylitisTeam Member

Get mri done that should rule out everything that's how I was diagnosed mri picked up everything x-rays blood tests missed

Can AS Cause Infertility In Men? I Was Just Curious If This Could Be The Reason For One Of My Conditions.
A MySpondylitisTeam Member asked a question 💭
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A MySpondylitisTeam Member

Yes it can cause infertility due to their is one nerve longs down controlling colon, bowel movements and bladder function. There is a chance the nerve to your prostate can be impeded. Go to a good… read more

What Relieves Pain?
A MySpondylitisTeam Member asked a question 💭

I live in constant pain and have for years. I wake up in pain...everything causes pain. Exercise actually helps.
I also take a pain killer in the am so I can get out of bed.

Ive tried everything from Gabapentin to acupuncture to opiods. All help some...but not that much.

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A MySpondylitisTeam Member

Yep pot dose help but the state where I live it’s not legal wish it was I get some sometimes but don’t want to go to jail for it
Can’t afford the fines , bonds, lawyers and be stuck on a hard metal… read more

Humira Expectations
A MySpondylitisTeam Member asked a question 💭

I just started humira Wednesday. I am worried about the getting sick part of this, and want to know from people on this medication how often they get sick and if they take extra precautions. Or what to expect form real people not drug ambassador from humira. Thank you

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A MySpondylitisTeam Member

So I did start it but got got sick right after and didn't get better for 3 weeks. Just was able to take another shot and it helped and took about 80% of the pain away

I Would Love To Go Swimming Is It Safe To Do
A MySpondylitisTeam Member asked a question 💭

I love swimming but is it safe to do when I suffer with spondylitis,osteoarthritis and bulging discs in spine I don’t want to make my conditions worse,any advice please.

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A MySpondylitisTeam Member

I've been trying to go swimming at the YMCA once a week in the warm pool. I'm pretty sore the next day from over doing it. It's easy to do too much and not know it until later. If you start swimming… read more

Does Anyone Have Any Suggestions For Books Related To AS?
A MySpondylitisTeam Member asked a question 💭

It could be about the disease, memoir, movement, diets, holistic health, literally anything, I am learning that I need to consume knowledge to find acceptance.

A MySpondylitisTeam Member

I just pumped into keystone approach. It explains diet to help people with AS. I am still learning about the diet.

Has Anyone Developed High Liver Enzymes From Remicade Infusions?
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Pristine clean diet. Absolutely no ultra processed garbage at all for any reason, high nutrition, high antioxidant anti-inflammatory supplements, physical therapy, acceptance Commitment and Cognitive… read more

I Have A Too Many Questions, Don't Know Where To Start.
A MySpondylitisTeam Member asked a question 💭
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A MySpondylitisTeam Member

Starting with your pain level & what you’re doing to lower that level is a first place to start. This is a disease that is chronic & it does not go away. Finding healthy ways to cope is important… read more

Clarification, Have You Talked To Your Doctor About What To Expect From Biologics? .
A MySpondylitisTeam Member asked a question 💭

Dear Ted and Dr. Tambar,

I hope this message finds you well. I recently came across your post titled "Have You Talked to Your Doctor About What To Expect From Biologics?" on nonradiographic axial spondyloarthritis (nr-axSpA). While the content provides valuable insights into treatment adherence and open communication with healthcare providers, it's worth noting that the post doesn't explicitly address the question it poses.

This omission raises a concern as the post's title suggests a focus on… read more

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Taking Biologics: Dosing, Insurance Coverage, and When You Can Stop (VIDEO) Read Article...
A MySpondylitisTeam Member

I have family members that are not Huggers and I just don't get it ! So I get it & here's a big ol hug for "U".🙂

Tingling And Numbness In Arm - Anyone Else?
A MySpondylitisTeam Member asked a question 💭

I started having some numbness and tingling in my right shoulder, down the arm and into the hand. This is 2nd time in a week it has happened. I can still move it, still feel like normal, no pain, no other symptoms (other than panic/anxiety thinking it might be a stroke) I mentioned it to my rheumatologist when i saw her last week and she said its probably a nerve as the other time happened when i was driving for a couple of hours..

Has something like this happened to anyone else?

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A MySpondylitisTeam Member

I have been on Cymbalta for a little over 20 years. I started on it when I had my first back surgery to remove 2 tumors from my spine. I tried going off of it and it was a disaster. Keep taking it… read more