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Hi Tim,
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Welcome to the team! This is the most informative site I've found on Spondylitis
I was told years ago that I have Restrictive Lung Disease. Way before my AS diagnosis.
Just wondering how many people also have Asthma, COPD or other lung impairments because it seems that there is a relation with AS.
Thanks 😊
Yes, I am diagnosed and treated for asthma. I have had pneumonia 4x in the past seven years. I have extreme back pain - thoracic, at the hip and neck pain. Taking tramadol, and baclophen for the pain… read more
Why do I keep getting the same notifications throughout the day. I have looked at the setting can't see what ive done. Not as popular as i thought same email over and over again 😂😂😂
I hear you @A MySpondylitisTeam Member Feel free to email me directly when you get a chance, I'll help you figure it all out. :)
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I have Active nr-axSpA and I started to have pain in my both ankle ( swelling, redness)
I take sulphasalazine 2000 mg daily !
Can diet and herbs help my Active nr-axSpA symptoms to be not active?
Thank you so much for sharing.
I'm new to this site...I'm using a tablet and can't seem to navigate this site...How do I get help
I use a tablet as well. Keep trying and it gets better. Janice 5
Hello ,can someone please tell me how do I approach my doctor about this, I mean I have Fibromyalgia and have had it for many years. But this past year something was going on with me all I want to do is sleep my whole body hurts like a giant tooth ache
I used to get flare ups with my Fibromyalgia, but this is most of the time it’s just there and it feels like it’s getting worse
I have this burning in my lower spine and when I walk it starts to burn and I need to make sure there a place… read more
I feel your pain, so sorry
I have Fibromyalgia and today a total flare day. Take a shower and keep warm, helps muscles relax. Rest read a good book or put on a good movie. Tomorrow will be a better… read more
Will be switching to Medicare in a few months and in researching my options I'm finding Enbrel will cost me about $5000 more per year than it does on my current health insurance. What have other people done when moving to Medicare?
Amgen works with a program called Saftynet Fondation , if you qualify you pay 0$ for your Embrel… Contact them
Does anyone else have shoulder pain? It started a week ago.
I don’t remember doing anything that hurt it.
I can move it and use it but sometimes I get an awful pain. My arm also feels weaker than usual and shaky.
I know AS can affect the shoulder but not sure how common or what the symptoms are like.
Thanks
Thanks everyone. I have a steroid pack my doctor gives me at home so I started it today
I haven’t had shoulder pain since my surgery for Cervical Myelopathy in 2020. Itcame out of nowhere and got… read more
Two in one...
What does humidity DO to agrivate our condition?
How is hot & humid different from dry hot regarding our condition?
I've seen people comment on here about humidity and been surprised. I've never thought about it. I thought heat was heat. What does humidity DO to agrivate our condition?
How is hot & humid different from dry hot regarding our condition?
I agree atmospheric pressure makes mine worse
When we recently had a Hurricane pass by and the pressure got down to the 900's I got so much worse.
