Hi everyone,
I was diagnosed with Ankylosing Spondylitis last year and it really destroyed my world. I was 21 and training to be a professional dancer so it felt like everything I'd been working towards was gone.
The past year I've worked really hard to get my illness under control with medication and lifestyle changes. I'm back dancing and training to achieve my dream. The plan was to try a biologic injection but recent imaging has shown that I don't have active inflammation anymore and my… read more
Hi Yousef,
Many thanks
I just try to eat as balanced a diet as possible, I don't follow any particular regimes. I swim occasionally but I go to the gym and dance regularly.
I take sulfasalazine… read more
As in little league baseball. The nerve associated with being hit with force sends pain signal soaring to brain even though never being hit.
the neighbors knocking on the door - as you scream going downstairs. Happens to me every so often. Freezing Cold packs help.. Understanding AS, the entire pelvic area gets compromised..
@A MySpondylitisTeam Member. Yikes!! Well, hell Gregory I'm sorry. Maybe I can describe what I feel with Psoriatic Spondylitis, Osteoarthritis, and Osteoporosis and it might ring a bell to help you… read more
I have axial spondylitis and bulging discs
i also have several la bulging disks and degenerative disc disease ( basically all but three disks have some sort of problem)and constantly juggling which tendon makes me want to cry from pain. exercise is not an option until i can get pain under control i am already taking coesentrix monthly and tons of supplements and muscle relaxers daily and hydrocodone daily(1 pill). what meds are folks taking?
Tomo flexeril al acostarme
I have all the symptoms of spondylitis - chronic back pain that improves with movement/exercise but worsens with rest, regular flares, peripheral joint pain, and myofascial pain. It all kicked off with chronic low back pain and a diagnosis of chronic sacroiliitis when I was 27. I'm 51 now, and still no diagnosis, in spite of having chronic pain off and on for all these years, which has gotten markedly worse since I reached menopause. I'm being gaslit by doctors who are gobsmacked that I'm asking… read more
Thanks, @A MySpondylitisTeam Member. I keep fighting, but the longer I'm in this fight, the less respect I have for the medical community. There aren't any rheumatologists who specialize in AxSpa… read more
Symptom
Yes most definitly..it happens about once a year and is dangerous..i say this because it landed me in the ER thinking i was having a Heart Attack..come to find out it was my Heart Muscle..Spondylitis… read more
The article mentions that one of the symptoms is sometimes psoriasis, in addition to other common psoriatic arthritis symptoms such as heel pain and IBD etc. Wouldn't the correct diagnosis then be Psoriatic Spondylitis? Whats the difference when there is no evident fusion? Do treatments between the two differ?
@A MySpondylitisTeam Member. Yeah, that osteophyte wasn't in this latest MRI either. It was an xray a year ago that reported it on L3. I do have 3 bulging discs and a cyst though inside the vertebra… read more
As this disease progresses (deteriorated you) and family & friends don't understand you and therefore dont help you or help you less and less, and doctors decrease or stop treating you due to political cost effectiveness mandates...
Where do you see yourself? How do you see yourself physically? How do you see yourself coping? Are these your final days? What kinds of choices will you make?
Hi Ally I think u need to change your doctor lovely as there is help out there trust me x
I find it so hard to find snack foods. I eat a lot of vegetables with meals so I don't want them as snacks also and it seems all snack type foods contain starch. I sometimes have dried fruit, no sugars added, certain nuts, cheese, which dairy is inflammatory but I still have cheese and a small amount of milk. Anyone have any snacking go to ideas? I mostly follow low starch, sugar free, gluten free, low dairy and try to stay away from processed foods also. Thanks
I know, but I find what they use to make things "sugar-free" is usually worse for my health than just having the small bit of sugar in the *real* chocolate chips (I always use the mini chips, and… read more
Unfortunately, no doc or pain management willing to give me pain meds. Extremely frustrating. Thank you for responding