Why do I keep getting the same notifications throughout the day. I have looked at the setting can't see what ive done. Not as popular as i thought same email over and over again 😂😂😂
I hear you @A MySpondylitisTeam Member Feel free to email me directly when you get a chance, I'll help you figure it all out. :)
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… read moreHello ,can someone please tell me how do I approach my doctor about this, I mean I have Fibromyalgia and have had it for many years. But this past year something was going on with me all I want to do is sleep my whole body hurts like a giant tooth ache
I used to get flare ups with my Fibromyalgia, but this is most of the time it’s just there and it feels like it’s getting worse
I have this burning in my lower spine and when I walk it starts to burn and I need to make sure there a place… read more
I feel your pain, so sorry
I have Fibromyalgia and today a total flare day. Take a shower and keep warm, helps muscles relax. Rest read a good book or put on a good movie. Tomorrow will be a better… read more
I was told years ago that I have Restrictive Lung Disease. Way before my AS diagnosis.
Just wondering how many people also have Asthma, COPD or other lung impairments because it seems that there is a relation with AS.
Thanks 😊
Yes, I am diagnosed and treated for asthma. I have had pneumonia 4x in the past seven years. I have extreme back pain - thoracic, at the hip and neck pain. Taking tramadol, and baclophen for the pain… read more
Hi Tim,
To change your location, please follow these easy steps
1. Log in to your profile.
2. Click on the three lines on the page's top left.
3. A menu will appear. Choose 'Settings' and then… read more
My doctor wants me to get the shingles and pneumonia vaccines. Technically I’m not at that age yet, but due to the biologics they said I now qualify. Has anyone taken them while on biologics? Did you do ok with them, and how long after your infusion did you wait before getting them? If you had both at the same time, any downside to that? Sorry so many questions!
I have been recently diagnosed with AS. I am a 63 year old female! I had covid that started Jan 25, 2021. (Classified as severe case with hospitalization and pneumonia) I have had continued severe joint pain since covid. Anyone else with covid infection noticed increase in joint pain that persists 60 days or more?
Had the same thing 4 hours after the vaccine. Got diagnosed in december.
Does anyone else have shoulder pain? It started a week ago.
I don’t remember doing anything that hurt it.
I can move it and use it but sometimes I get an awful pain. My arm also feels weaker than usual and shaky.
I know AS can affect the shoulder but not sure how common or what the symptoms are like.
Thanks
Thanks everyone. I have a steroid pack my doctor gives me at home so I started it today
I haven’t had shoulder pain since my surgery for Cervical Myelopathy in 2020. Itcame out of nowhere and got… read more
Hi all, I have had a lumbar fusion in 2008, gave me a few years, but the disc's above the fusion are now degenerating, Dr. said Degenerative Disc Disease, more surgery, NO thank you.
Could anyone having back issues tell me what works best for you to relief some of the pain
I take 2 Naproxen, 1 Hydrocodone a day and use cream with Lidocaine in it, that wears off after a couple hours. Have a massage chair. Dr. wants me to ride my stationary bike 1/2 hour - 5 times a week, - I would rather… read more
@A MySpondylitisTeam Member, I never heard of using Vicksburg vapor rub, I googled it and will buy some
I have a list of back stretches the PT gave me
What is your "potent" back creams? The… read more
Welcome to the team! This is the most informative site I've found on Spondylitis
Yesterday I worked a 12-hour shift at the hospital. My day was spent with extensive hours in one patient's room. She was there for other conditions. Due to a procedure scheduled, she was given a COVID test. It resulted in a positive. When I let her know, she cried, "What else can go wrong"? I just gave her time, knowing, this news was compounded by her other issues. I said a prayer for her, my coworkers, and myself silently. Today I called each appointment I have scheduled for this week. Each… read more
Thank You for your understanding