Hi all
Hope you are doing well.
Does anyone have any problems with “stiffer speech” and resulting in “excess saliva”?
Speech, yup, mine is related to repeated inflammatory damage (Neurogenic) to cervical nerves that control speech. Sometimes my voice sounds raspy, too, which I thought was caused by my CPAP. Overtime… read more
Stem cell transplant using your own cells may be a good treatment instead of surgery.
@A MySpondylitisTeam Member. Hi Brian! I've been thinking of you, great to hear from you! Yes, I'm excited to try it. I'm just sorry that it didn't come available a long time ago to help you and… read more
Considering I am most days in pain with a chronic condition
Ankylosing spondylitis my Doctor is very reluctant to issue me with pain killers
I have been prescribed codeine tablets but find these make me so badly constipated and don’t always help with the pain.
I find the most effective pain relief to be Tramadol but my Doctor will not issue them.
Am I better off just leaving my practice and going to a different doctor ?
I know people who have chronic conditions and they are issued with… read more
My PCP also won’t prescribe narcotics and explained that it isn’t because he doesn’t believe they have a real purpose but the hoops they have to jump through are not worth it to him. He recommended a… read more
Will be switching to Medicare in a few months and in researching my options I'm finding Enbrel will cost me about $5000 more per year than it does on my current health insurance. What have other people done when moving to Medicare?
Amgen works with a program called Saftynet Fondation , if you qualify you pay 0$ for your Embrel… Contact them
This is great! Keep us informed of your progress.
I agree with Linda481. Stay away from fusions unless it's the only option available and absolutely has to be done. God bless & remember to smile often...
Connie
1.9% of people taking Enbrel injections have low back pain as a side effect. A Phase 4 study revealed that it is mostly women over 60 taking Enbrel for. 1-6 months who are affected. Unfortunately, I am one of the 1.9% of those taking Enbrel who had this side effect. I am trying to find out more about this topic but cannot locate the actual study. I want to know if this is temporary or if the pain never goes away. If it is temporary, how long before it gets better? Is it associated with any other… read more
Thank you for sharing, I found it very helpful
What about the war on Opiates?
Hi KarenNolan,
Sending you a hug and good wishes.