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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MySpondylitisTeam Member asked a question 💭

I am still being diagnosed: I just know that I have arthritis in my spine, collar bones, elbow, wrist, fingers, SI joints, knees, ankle and toes. I don't have a name for what I have, Everyday the pain is in different part of the body, while what hurt yesterday feels better today, there is something else that hurts today. Why does the pain feel different in different areas and why does it change? Sometimes its dull, then it burns, and then i have bouts where a certain joint hurts so bad (like a… read more

May 31
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MySpondylitisTeam

What you're experiencing sounds incredibly exhausting, and it makes complete sense that you're looking for answers. The shifting, unpredictable nature of your pain is actually a hallmark of inflammatory conditions like spondylitis — and it's one of the things that makes it so hard to explain to others.

With inflammatory Show Full Answer

What you're experiencing sounds incredibly exhausting, and it makes complete sense that you're looking for answers. The shifting, unpredictable nature of your pain is actually a hallmark of inflammatory conditions like spondylitis — and it's one of the things that makes it so hard to explain to others.

With inflammatory arthritis, the pain moves and changes because inflammation itself is not static. It flares in different joints at different times, which is why one area might calm down while another flares up. Here's why the pain feels so different depending on the day and location:

- Dull aching often comes from chronic, low-level inflammation in a joint or the surrounding tissue
- Burning pain can happen when nerves near inflamed joints become irritated
- Intense spasm-like pain (the kind that takes your breath away) can occur when inflammation flares severely in a specific joint or where tendons and ligaments attach to bone — this is called enthesitis
- Shifting locations happen because inflammation moves between joints and soft tissues over time Inflammatory pain also tends to worsen after long periods of rest or inactivity — like overnight — and often improves with gentle movement. This is different from mechanical joint pain, which usually gets worse with activity.

Given how widespread your symptoms are across so many joints, it's really important to keep pushing for a clear diagnosis. A rheumatologist is the right specialist to help identify what's driving all of this. You deserve answers and a proper treatment plan.

May 31
A MySpondylitisTeam Member

Pain reminds us that we are alive and human. It is what it is. It hurts in different places for as many reasons as there are places. The diagnosis name is not the important thing, the CAUSES are what is important. Learn the causes and treat those to get relief. See a functional medicine practitioner for the right types of tests to get to the root causes.

May 31

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