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A MySpondylitisTeam Member asked a question 💭

Even as a child, my whole life I had to keep the Gravol near. Always nauseous.🤢

September 14
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Answer Summary

Members connected over the question of why AS patients experience nausea, sharing that it affects many of them regularly and is often linked... Read more

Members connected over the question of why AS patients experience nausea, sharing that it affects many of them regularly and is often linked to medications, gut issues, and the disease itself. Several members described helpful strategies including peppermint tea, daily low-dose MiraLax, probiotics with magnesium, fermented foods like kombucha, and prescription medications like Zofran to manage symptoms. A recurring theme was the strong connection between AS and gut health, with members noting that a weakened gut biome may play a role in the disease, and many were actively working with doctors to find better answers.

A MySpondylitisTeam Member

@A MySpondylitisTeam Member: Thank yiu for your thoughts. I see Gastro in a few weeks. you may be right - the only thing I have introduced into my diet that is different is the Omeprazole I take for Gastric reflux. I am not supposed to take it because it upsets my esophagus to where I can’t get food down. I hope we can find an alternative. AS and intestinal problems go hand in hand. They say the gut biome( in addition to heredity) is where AS may come from. If your gut biome has been weakened by other foods you weren’t supposed to eat, it causes your intestines to let in diseases that ordinarily your gut would protect you from. I will let you know what happens. How are you doing Darlene??- Drew

September 23
A MySpondylitisTeam Member

@A MySpondylitisTeam Member sounds like you are having a bad reaction to the pill. I hope the doctor can help you find an alternative. Sometimes I feel like a human guinea pig when it comes to meds. Please let me know how it goes. My rhuematologist is testing through blood test my liver, because of the nausea. We will see what happens there. Take care Drew.

September 23
A MySpondylitisTeam Member

@A MySpondylitisTeam Member; I get nausea too. it doesn’t happen often but generally there is no explainable reason why I would be getting Nausea, other than from AS. Saw a Gastro. They prescribed same pill daily I can’t take daily because it causes my esophagus to close up. Its already compromised. I have to ask her to do a different study on me to get to the bottom
of why I can’t swallow, and why I get Nausea. We’ll see what she says and we’ll let you know!

September 23
A MySpondylitisTeam Member

I started a probiotic a couple years ago. Sam’s club had a two month supply
non refrigerated for under $35. It has magnesium in it too. Which when we take pain pills we get constipated.
When some of us took the Covid shot , it wiped out our good bacteria in our guts. That affects everything.

September 21
COVID-19 and Spondylitis Essential Updates Read more >
A MySpondylitisTeam Member

It seems like I live on Zofran

September 17

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