Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MySpondylitisTeam Member asked a question 💭
March 4
 · 
Be the first to react
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. I had days like that too. It was due to torn hip labrum abd gluteus medius tendon that made it difficult to make my leg move straight forward. My beast is Psoriatic Spondylitis which attacks the tendons, ligaments and cartilage around the joints. The muscle weakness comes from reduction of use as we age, become less mobile due to pain, and the muscles begin to atrophy. It doesn't help that some of the nerves that we use to walk become irritated from the inflammation. I use hiking sticks to help train my ability to walk. This started for me 6 years ago after I became relatively immobile due to using my body less while I sat around, more or less, for 6 months recovering from covid and simultaneously waiting for inept home contractors while getting hurricane damage repaired on our home. It took a couple of years to regain my ability to walk more than a couple hundred yards. I was checked out for MS, Myasthenia Gravis, Parkinsons, and a few others. All Spondylitis injuries for me, none of that other stuff. Today I'm finally back up to 3 miles. I take my hiking sticks with me and open them out to use when pain in my SIs and hips makes walking harder. I have to focus on how I'm using my legs, my posture when I'm working on walking. I can't walk that far daily. It has to be every 3rd day or I re-tear the labrum and gluteus medius tendon. I also have a sizable lesion in the marrow of my trochanter on the same side. Im not sure if that has anything to do with it. There are also nerve sheath tumors in my SIs and cauda equina that probably have something to do with it. I do physical therapy strength training at least 4 days a week. A few years ago we were seriously considering a chairlift or home elevator for our 2 story house. Now i can walk up 20 flights of stairs. It was extremely painful in the beginning. The worst thing we can do for ourselves though is to quit trying. It won't take long to be permanently wheelchair bound at that point. Im younger than you though, maybe when im 70 I'll be ready for that, but i have another decade to go first. I can tell you that I see my 85 or old dad who doesn't have our problems, none of them and never did, and he can barely get out of his chair and use a walker just because he quit walking a mile a day to the gym during covid. For whatever reason, when we quit trying it's all downhill real fast. Give up when you're 6 feet down Steve. Until then, get up, grab some hiking sticks, and make it happen. Yours in better health P 😌 🙏

March 4
COVID-19 and Spondylitis Essential Updates Read more >
MySpondylitisTeam

Do you experience balance issues or unsteady walking with your spondylitis?

Walking unsteadily or feeling off-balance can happen with spondylitis, especially when you're dealing with stiffness, pain, or reduced mobility. Some members describe having trouble maintaining balance, which can make walking feel awkward or Show Full Answer

Do you experience balance issues or unsteady walking with your spondylitis?

Walking unsteadily or feeling off-balance can happen with spondylitis, especially when you're dealing with stiffness, pain, or reduced mobility. Some members describe having trouble maintaining balance, which can make walking feel awkward or uncoordinated.

This could be related to:
- Joint stiffness affecting your gait
- Pain that changes how you move
- Reduced range of motion in your spine or hips
- Muscle weakness from inflammation

If balance issues are affecting your daily life, mobility devices like walkers or rollators can provide stability and help prevent falls. They're particularly useful when you're experiencing stiffness or having trouble maintaining balance.

It's important to mention these symptoms to your rheumatologist or doctor. They can assess whether this is related to your spondylitis progression, medication side effects, or another issue that needs attention.

March 4

Related Questions

View All
A MySpondylitisTeam Member asked a question 💭
Bokeelia, FL