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Members rallied around a question about a chest spot that might be folliculitis, sharing their own experiences with skin conditions like... Read more
Keep on searching and fighting Jan. Good luck!💪
More important tan treatments though is discovering the "whats". What is your body reacting to? To do that you need the deep dive testing. And, yes, some of those are going to be expensive. However, if it uncovers something(s) your body is reactive to that you never would have guessed otherwise, and clearly the drs don't know, it might be as easy as just not getting close to whatever it is and that could ultimately save you far more in the long run. Just a thought.🤔 Hmm, an example on me maybe...thinking while tapping...ok, here's one i discovered in my heavy metals accumulation, cesium. I never even heard of it, but there it was in high amounts in my test. I think that one might have been a urine test. Anyway, through my investigation I found that cesium is commonly high throughout the state where I live. I went right out and bought a $40US reverse osmosis water filter for drinking water and had my husband install it in our kitchen. If only all the others were so easy. I was just thinking about all the old homes in the UK and how crazy damp it is there. I'd wager just about all autoimmune patients over there have high concentrations of mycotoxins in their body, a dead ringer for high inflammation throughout the body. Now that one is tough, from personal experience. But definitely worth finding out. My FM dr put me on a few supplements to balance my gut microbiome so that I can poop out some mycotoxins as they are depleted by an antimold/fungal medication. The caveat, that mold test, a very thorough one as opposed to our insurance authorized standard of care one that showed not much of anything, was quite pricey at over $400US. Yes, I have to set aside extra savings for it all, forgo spending on other things, make the decision about what's most important to me etc etc. My way is definitely not easy by any stretch, but so far it's the only way that has helped me in the slightest so🤷♀️. Yibh, P
@A MySpondylitisTeam Member. Hi Jan, I'm sorry you have yet another annoying, and concerning, physical issue. Ugh. Autoimmune disease is so multifactorial, something those lucky ones who don't deal with it are clueless about. This one is a symptom/condition i am familiar with. I used to get these with my psoriasis outbreaks. Luckily mine were not extreme, more like what you picture and describe, here and there sporadic. They look like they will easily pop, but they dont and the concentrated effort at doing so seems to just irritate them. The only way to be certain if it's a type of psoriasis or not is to get to a Dermatologist and insist on a punch biopsy. There are 5 or 6 types of psoriasis. Anyone with any Autoimmune condition is susceptible. It's possible these might be very mild early stage postular or guttate psoriasis. My initial one was guttate, but it would often have what you pictured here mixed in. So...how to best manage? I quit showering more often than every other day. I put a filtering shower head on my shower spigot. I switched to liquid skin friendly cleanser, bars leave a waxy film that clogs pores. My preferred cleansers are Aveeno brand because it has colloidal oatmeal good for skin, or Dr Teal's liquid with potassium and magnesium in it. After washing, while still in the shower I apply a layer of food grade 100% pure coconut oil, no other ingredients, to lock in the moisture before I dry off. Blot dry, dont rub. After getting out i moisturize again with high quality ingredients body oil, no fragrance, a light layer. For my extremely dry lower legs and forearms I also gently massage in LaRoche Posay Lipikar Cream. This does the trick for 24 hour moisture. I like this one for it's prebiotic component to the water they use in the formula. Soft cotton clothing that doesn't rub, preferably loose fitting. At the end of the day though, the best remedy of all is to address the CAUSE of the inflammation. I know, super tough. When you can determine that and if you can rid yourself of it this and all the other crapola will eventually clear. I do know how very much easier that is said than done. Diet and lifestyle are challenging enough, but the stress that keeps us in sympathetic mode (fight/flight), ugh ugh ugh to that. So hard. Stay the course Jan. You'll get there. Always here for you. P😌🙏
Oh yeah, sun exposure 20 minutes at least twice a week is helpful. While weather is uncooperative red/near infrared 10 minutes per area no more than 6 inches from the light 5 days a week will help your entire body heal. It takes about a month to notice improvements in body pain as well as skin. Red light therapy has been one of my top 3 game changers that I 100% believe is worth the investment either for your own personal use at home or, if you can commit to going 5 days a week, spa/gym membership that has one. OH, another thing, Emuaid Max applied to irritated skin twice a day will clear about anything. It takes persistence and patience. Hang in there.
@A MySpondylitisTeam Member. I'm sorry that you are hurting so much Jan and that the National health system hasn't been serving you - or anyone else on this site. It's such a complicated and multi factored condition with many causes and affects. It's overwhelming for the traditionally medical educated as well as us patients. We truly cannot rely on them to help us feel normal again. That's all the more frustrating when we start to realize how expensive it is for anything helpful, and we pay so high a price for the service, either directly, from taxes, or both. Im lucky in that I have a healthy husband still happy at work. Otherwise I wouldn't be able to do all that i do. It's a constant battle even so, for me too. Last weekend I thought id have just one glass of wine on Saturday night with old friends, just one extra mile on an easy stroll on Sunday afternoon with a new friend. Ive been paying dearly for that with a full on SI/pelvic/bilateral hip, knees, feet, neck, both hands flare ever since. Soaking in Epsom salts, massage chair, extra support shorts, stretching, heating, resting, humming, singing, breathwork, tapping, topical rubs, strict diet, extra water, mindfulness in movements so intense I think my brains are melting, an nsaid from the dr, muscle relaxers, Tylenol, all of it. Yes, I do still get multiple areas of intense pain. At least now I know that if I do all these things, and quit the things I did to bring it on, eventually it will ease up.
Your neck is probably inflamed because of "guarding" the elbow pain. You might be subconsciously lifting your shoulder to protect the elbow. That will cause spasms in the neck that will eventually harden. Maybe you can order a medium density foam roller online and use that tomassage your neck. YouTube has loads of free videos how to do this.
One thing at a time Jan, ever forward...😌🙏
Hi Pitac I just nearly finished my post to you took ages as my elbow is so painful and now it’s disappeared my message.
I am also having pain with my neck and hip but my neck is causing so much discomfort not had it last as long as this I can’t turn it properly It could be neck fusion,I have exercises as well but I can’t turn round properly.
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Thank you your advice is appreciated so much and I am doing as best i can.
Our house is rented but i do notice a problem with the windows and steam in them hard to explain, the council are looking into it but how long I don’t know I was told though that we have no damp which is good but yes a lot of houses in the uk do have this issue.
I started the Fodmap diet it was restricted but I found garlic and mushrooms cause a lot of gut issues especially with me.
I drink lactose free milk now.
I haven’t heard of mycotoxins will look into that.
I take from the doc vitamin D supplement and I use CQ10 have for years and a B12 spray not sure any work well apart from vitamin D.
Your way is good for you and I appreciate all the information you give I find it very helpful thank you 🥰.
Our weather this has low cloud/ and raining it’s dark and dull yes it’s winter but usually we have winter sun and blue sky it’s just on going and very damp and cold out.
Hugs 🤗 Pitac🙏
@A MySpondylitisTeam Member so far I found some beauty salons do the red light therapy but it’s only facial not a full body panel I can’t find anything like that here and I have looked googled etc, the cream I can get from Ireland it’s expensive will take a lot of saving and delivery since Brexit is more expensive crazy.
For the red light therapy ones along said no problem just book an appointment and others said need to check with GP so will do when I can get an appointment and will ask my rheumatologist even though he will probably say he doesn’t know anything about it.
I will keep on researching.
Take care good friend 🙏
Jan
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