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My functional medicine specialist suggested low dose Naltrexone for pain. According to my Google search on it it has been used, but more research testing is needed. Im wondering if anyone here has tried it and what their response has been with it.
Answer Summary
Members shared a range of experiences with low dose Naltrexone for pain management, with responses varying from little to no relief to... Read more
Im on 4.5 MG. Within 3 weeks I noticed a difference. I really didn’t notice vivid dreams. If so, it goes away after a few nights. I also take bio-identical progesterone. It has helped with sleep and calming my pain. My gynecologist recommended it. Im 45 years old. Im not on any medication other than Advil when i have bad days. I don’t want to go on heavy meds yet. I push through the pain. A.S is for the strong. I pray & meditate and have lots of gratitude to get me through my days. Best of luck 💗
I've been on it for over 4 years. It's wiped out my brain fog and lowered my pain levels by about 80%. I have several other conditions on top of spondylitis that cause pain; fibromyalgia, osteoarthritis, degenerative disc disease, M.E., hEDS etc so I need a higher dose than the usual 4.5mg but it works amazing for me.
@A MySpondylitisTeam Member. I tried the LDN for a few months. I didn’t have any side effects but I also didn’t feel like it helped my pain at all. I stopped it when I had shingles / post herpetic neuralgia as the pain was so intense I needed narcotic pain meds for a short while.
I’m so sorry for your loss. May your MIL rest in peace.
@A MySpondylitisTeam Member I've been trialling BPC157 for the last three months. I have Hypermobile Ehlers Danlos Syndrome as well as M.E., PoTS, fibromyalgia, osteoarthritis, and all the rest. I've noticed that when my joints dislocate I'm not getting as many muscle tears and pulled tendons as I used to. It's not giving me any side effects so I think I'll be keeping it in my arsenal.
I'm one of the odd people who need a higher dose of LDN than most. I started at a very low dose and kept raising every month until it started working. I found liquid LDN far better to work with than the capsules. Capsules contain fillers, most of which I'm highly allergic to. I was terribly ill for the first few months due to the microcrystalline cellulose that was used to bulk out the few grains of LDN in the capsule. I learned how to dilute the capsules to filter out the filler but I found being bedbound and having awful brain fog at the time it was just too much hassle so I switched to the liquid and never looked back.
Hi everyone! Yes i’ve been on LDN for a year. It’s definitely helps calm my neuropathy. I think it mostly helps me calm my thoughts of the pain.
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