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Ankylosing spondylitis, fibromalagia,.spinal stenosis

January 14, 2025
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A MySpondylitisTeam Member

Well at 22 years old I felt a very small mass right on my lower lumbar and within 10 years it got bigger. I noticed that my legs would hurt more when it swelled causing so much more pain on top of what I already had. Now fast forward to 39, I noticed one day that my hips hurt out of no where, the pain would come and go, and within that year I felt 2 more lumps. It was bad enough dealing with back and sacroiliac pain daily, I never thought it would get so much worse. When the weather would change all 3 swelled up causing debilitating pain. I would have to use a cane during this time due to the A.S and the 3 masses. At first, I was in denial of my diagnosis, I thought yeah it's these things causing all this daily pain not A.S. I had so many specialist tell me those are lypomas or it's just swelling caused by A.S. After being denied to remove them, I cried for 3 days with no sleep bc the pain was excruciating, intolerable, and the masses never went down after that night. After another two years passed, I finally traveled to another city to remove all 3 but within a month another tumor on the left hip the surgeon removed it along with scar tissue on both. This second surgery Im having a hard time recovering, the surgeon said it's due to all the inflammation on my sacrum and pelvis that my A.S. is causing is the reason. So he injected triple the amount of steroids to help with the inflammation, that has failed bc another tumor on the left side now. I was on Humira back in 2021 and nothing after 9 months. Guessing the disease has progressed, having much harder time getting out of bed with dizzy spills and entire body stiffed. Some nights if I don't adjust positions my body locks up and scream from pain to try to move my back.

January 15, 2025
A MySpondylitisTeam Member

No I haven’t heard that one. I sure I don’t get it. I’m in enough pain with my Lumber spine. What are the symptoms?

January 15, 2025

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