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I don't have any lipomas but do have Tarlov cysts.
@A MySpondylitisTeam Member. There are a few of us here with various types of cysts in and around our spines. I myself have an MRI follow up next week for a few found in my lumbar by one of my ortho surgeons. He was doing a follow up on my hip stem cell transplant from last Oct and saw one in my lumbar, sent me back for a contrast dye MRI and more focused look. I see 4 or 5 on the images. Im hoping it's nothing, but a little concerned because i have been experiencing increased pain in my lumbar, especially when trying to sleep. Ive been telling myself that it's just comisery pain in my head out of sympathy for Lola2😉. Ugh, the crap we all have to deal with. 🥴 Here's what Dr Google says about it... I find notable for us is that "steroid injections have been linked to lipoma development". Do you get steroid injections? If so, try quitting that and see what happens. Alcohol too, just in case you haven't already quit that, it's a big contributor to inflammation. Yours in better health P 😌🙏
Thank you so much, that was great information. They tested them and are benign fatty tumors, and they grew back on hips within a month. I had those removed again and now they have grown back on my hips all within 3 months but the one on lumber has not grown back at all. By the time I found a surgeon to remove them they were the size of a grapefruit. When my AS flares up well so do those things. A new symptom of this is that the pain has now spread to the front of my hips. My doctor said my last resort is the Mayo Clinic.
Back and hip pain are common symptoms of AS, particularly in the lower back where the pelvis and spine meet. While the search results don't specifically mention lipomas, it's important to have any new lumps or growths evaluated by your healthcare provider.
Many MySpondylitisTeam members report experiencing various types of Show Full Answer
@A MySpondylitisTeam Member. Yes. It is indeed a complicated hullabaloo. The problem with the majority of conventional medicine drs is that they are only schooled/trained in diagnosing and treating symptoms, not so much CAUSES and how to educate patients on how to eliminate the cause(s) and properly heal the body. Look into functional medicine practices. It's a combination of Naturopathic and conventional medicine. The focus is deep dive testing into your individual body's microbiome as well as your past exposures, then dietary and lifestyle adjustments to heal permanently with prescription and otc meds as a last resort, but not out of the question. You can read my prior posts to get an idea of what it's all about, but I'm only just beginning so there's much more to go. However, I feel like I'm 80% better than i was in 2020 when i was struggling for each breath and step.
TX has loads of environmental toxins assuredly adding to your physical struggles. Just because other family members who live there dont suffer doesn't mean your genetics, diet, emotions, etc wont combine to be affected. To family members and friends who express impatience or lack of understanding i just tell them i am so happy they dont have to deal with it because it would break my heart to know they suffer like i do. If someone in the world must be afflicted i would prefer it to be me because im one tough lady and i got this, it's just going to take a bit of time to overcome it.
For fatigue, i managed to kick that to the curb by drastically increasing my daily grams of protein, servings of fresh/frozen produce, and water intake. Fatigue has not been a problem for me since i began doing that and as long as i continue to do so. One recent eye opening insight came from a heavy metals, essential as well as toxic, profile. A 24 hour urine collection test. It came back high in cesium. Cesium is in soil, air and water. It interferes with cellular potassium uptake. Low potassium can cause low energy. I add a couple ounces of pure coconut water to each of my 3 daily 24oz steel water bottle servings. Big improvement. Also, half my body weight in grams protein intake daily makes a significant improvement. The body cannot function without it and more is needed the more healing that is needed. Look into unflavored hydrolyzed collagen peptide protein powder to shore up shortages of dietary protein. I add a scoop to coffee in the morning and homemade smoothies midday. Reach out anytime for more suggestions Michelle. Yours in better health P 😌🙏
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