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A MySpondylitisTeam Member asked a question πŸ’­
Corpus Christi, TX

Does anyone else have AS with multiple Fibrolipomas growing on lumbar,hips and recently shoulder and entire rib cage? This is will be my 4th surgery in a year and half and not one doctor, specialist or surgeon can explain why. AS is bad enough worsening with every passing year but having this too, is a very slow painful death.

April 24
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A MySpondylitisTeam Member

@A MySpondylitisTeam Member. It might be worth consulting a functional medicine practitioner to determine at the very least your CAUSES of AS. Treating those might also treat that annoying benign cyst issue. I use a novel product called ESS60 that's worth your reading about. I'll attach a link. I managed to shrink my many breast cysts as well as a sizable nerve sheath tumor since taking 5-8ml of this product daily. It spared me from a risky surgery in my cauda equina nerve roots. Now we just monitor everything via MRI yearly. At the same time I started taking it, about 6 months ago or so, I also started sitting in front of, within inches from for deeper penetration of the light wavelengths, a red/near infrared light panel so it's possible that is what helped my cysts shrink. But mine are not the same type as yours. Worth checking out though. A possible cause might be caffeine? I know that causes breast cysts, but not sure about others. On the bright side, at least they're rarely cancerous. Read the interesting science on the ESS60. It's pricey, but worth a try if you can budget it. Yours in better health P 😌 πŸ™

ess60-c60-olive-oil – MyVitalC https://share.google/WzVvyyNK3raU2Wb1T

ess60-c60-olive-oil
ess60-c60-olive-oil
April 24
MySpondylitisTeam

That sounds absolutely exhausting β€” physically, emotionally, and mentally. Facing a 4th surgery in 18 months while managing worsening AS, and still not having answers, is an incredibly heavy burden to carry. That frustration is completely valid.

Fibrolipomas aren't a recognized comorbidity of AS, so the search results Show Full Answer

That sounds absolutely exhausting β€” physically, emotionally, and mentally. Facing a 4th surgery in 18 months while managing worsening AS, and still not having answers, is an incredibly heavy burden to carry. That frustration is completely valid.

Fibrolipomas aren't a recognized comorbidity of AS, so the search results available here don't connect the two conditions directly. This is really a question that deserves deeper investigation by a specialist. A few things worth considering as you navigate this:

- Request a multidisciplinary review β€” ask your rheumatologist and surgeon to consult together, as AS-related inflammation affects many body systems and tissues
- Seek a second (or third) opinion at a major academic medical center where complex cases are more commonly seen
- Document everything β€” locations, growth patterns, timing relative to AS flares β€” this data could help a specialist spot a pattern
- Ask about genetic testing if you haven't already, since AS has a strong genetic component and rare presentations sometimes have underlying genetic factors

You are not alone in feeling like AS takes so much from you year after year. Other MySpondylitisTeam members understand that weight deeply. Keep advocating loudly for yourself β€” you deserve real answers.

April 24

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