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Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Experience With Spinal Cord Stimulator?

Experience With Spinal Cord Stimulator?

Hi everyone! Happy Monday! Who in this group has (or had) a spinal cord stimulator? Will you share your experiences with me? Good, bad and everything in between? If any of you use this implant for lower extremity pain, that feedback is especially appreciated. Iā€™m asking for a fellow warrior! šŸ˜Š Thank you!

posted May 23 (edited)
A MySpondylitisTeam Member

I have asked the doctor if it could be removed and he told me that I didn't even want to go there! Mine has been it for 3 years and he said that flesh had grown over it, so they would have to cut it out. I see my pain management doctor next month and I am trying to get someone from the company that put the stimulator in to meet with us to see if it is possible to have it removed.

posted May 29
A MySpondylitisTeam Member

David, Iā€™m very sorry to learn of your struggles. Understandable why you turned down the spinal cord stimulator! Too much on your plate and more suffering than any person should have to endure. I can only hope relief comes your way. Take care of yourself!

posted July 7
A MySpondylitisTeam Member

I was referred by primary care provider for a stimulator but both pain management and surgeon did not recommend it. Surgeon felt it should only be used as a last resort after other treatments failed. Pain management doctor said my insurance carrier won't approve it unless I had a failed back surgery. So I deal with pain and stiffness and now I have 5 herniated discs instead of 3! ā˜¹

posted May 31
A MySpondylitisTeam Member

Hi Norma - I so appreciate your response! I'm very sorry to learn of the troubles you've had with your stimulator. I can only imagine how disappointing and difficult it has been for you. I'm grateful for your honest feedback. Thank you so much. With all the problems you've faced, is it possible to have the stimulator surgically removed? I'm sure this comes with many risks, if it's even possible. I required a surgical revision from a botched back surgery, with hardware removed and replaced, so I've been there.

posted May 29
A MySpondylitisTeam Member

I have a implanted spinal cord stimulator for my lower back, hips and legs. He helped a lot for the first three months. I would have to go back in and they would set it up to a higer level. They finally had to go in and put a higher level program. If I adjust it to the level where it helps with the pain, I feel shocks going up and down my legs,so I have to turn the pain level down, and then it does'nt help at all. It is also very unconfortable when you are sitting or lying down. I have to sleep in my recliner because the pain stimulator hurts me when I try to lie down!

posted May 28
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