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A MySpondylitisTeam Member asked a question 💭

Hello everyone :)

So I’ve been diagnosed and my treatment have failed to work … my rheumatologist evoked the possibility of getting me on bio therapy . I’m kind of scared of what my life might look like during the treatment …. I’m not really looking for people explaining what a biotherapy is , but more for people telling me what life is like when on this treatment .

Here are some questions I’m wondering about :

What kind of changes should I expect from it ?

Will I still be able to go to… read more

October 11, 2021
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Answer Summary

Members overwhelmingly reassured someone nervous about starting biologic therapy for their condition, with the consistent message that... Read more

Members overwhelmingly reassured someone nervous about starting biologic therapy for their condition, with the consistent message that biologics dramatically reduced pain and inflammation, allowing them to regain mobility and energy they thought they'd lost forever. Several members shared practical advice, including planning ahead to manage apartment living (perhaps with help for larger tasks), wearing masks especially right after infusions when the immune system is most vulnerable, staying current on vaccinations, and seeing a doctor quickly if illness strikes. A recurring theme was the life-changing relief biologics provided, with members describing feeling great, returning to hobbies they'd abandoned, continuing demanding jobs like nursing, and living full, active lives for over 15 years on treatment.

A MySpondylitisTeam Member

I haven’t had bio treatment but I seriously recommend you moving on campus or really close to your school. That walk can be hard without the heavy bag let alone all the other traveling you have to do.

November 21, 2021
A MySpondylitisTeam Member

My life has improved since being on a biologic. The one I’m on even helps the pain, this allows me to be more active, which in turn keeps the pain of my psoriatic arthritis at a minimum . That has been my personal experience and my biopic is Simponi. I’m sure it is different for others and other meds.

January 16, 2023
A MySpondylitisTeam Member

I’ve been on a biological for probably more than 15 years. First enbrel and now cosentyx. I have to be tested for TB. I haven’t had any change in my lifestyle. Continued to work at the hospital as a RN in a pediatric ward. Am retired now. Do keep up with with immunizations and was over zealous with my use of a mask and avoiding crowds during the pandemic. So my life is good.

November 11, 2022
COVID-19 and Spondylitis Essential Updates Read more >
A MySpondylitisTeam Member

I just had my second infusion a few days ago. No side effects at all. I feel great. I have energy and I’m not exhausted. My back isn’t so stiff. And I just created a baby quilt that I was putting off for almost nine months because I just didn’t feel well. I can move! I don’t know how lng this will last, but I am enjoying it. I was really, really nervous to go on it, but so far, I am glad I did.

October 30, 2022
A MySpondylitisTeam Member

I started on Humira. It worked really well, but made me depressed. Therefore I switched to Simponi infusions. I was really tired the first week, but I caught a virus and it took about three weeks to get better. I am going for my second infusion today. I hope I can stay healthy this time because my body feels great! If you plan ahead, you should be able to live in an apartment. To be social, wear a mask - especially right after taking your biologic because that is when you are most susceptible. Use the same measures you did for when you first started to get back together with people after covid and you should be okay. If you do get sick, see a doctor right away.

October 27, 2022

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