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A MySpondylitisTeam Member asked a question 💭
0ttawa

Pretty well the question above is what I would like to know. My whole spine has so many issues and god help me first spine surgery L4 TO S1 both sides at this point. Next hopefully new kneecap since that's really done. I know I'll have to look after myself and that's fine did that when I was married at the time and that was brain surgery sorry not a pity party. Just wondering how your partner reacted/changed once you were basically bed ridden.

May 24, 2018
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Answer Summary

Members opened up about how chronic pain and spinal conditions have deeply affected their intimate relationships, with experiences ranging... Read more

Members opened up about how chronic pain and spinal conditions have deeply affected their intimate relationships, with experiences ranging from supportive partners who prioritize emotional connection and patience to relationships strained by frustration, fear of causing pain, or complete withdrawal from intimacy. Several members described physical challenges like numbness, being unable to achieve pleasure, and increased pain during or after sex, with some finding workarounds through communication, position adjustments, and redefining intimacy beyond physical acts. A recurring theme was the emotional toll of these changes, including feelings of guilt, worry about partner resentment or infidelity, and the grief of losing a once-vital part of connection, balanced by gratitude from those whose partners remained loving and understanding through years of physical limitations.

A MySpondylitisTeam Member

I am numb with intercourse.i gave up

August 27, 2018
A MySpondylitisTeam Member

My guy will not try half the time. He is afraid he will hurt me. I told him that if he wants it just go for it and if I am in pain we can move to a different level to make it better. Sometimes it just takes a lot of adjusting to what I call the new mormal (that changes all the time...lol)

June 30, 2018
A MySpondylitisTeam Member

I guess I'm really lucky. My husband has always been incredibly supportive and loving. He's had times where he's literally gone 2 years "without" and his response has been "I've got 2 hands!!". As long as we cuddle, talk, share time together he's fine. I'd worry he's a cheater if he had the opportunity but he literally works 300 yards from our house in a small office with 3 other guys, his down time is spent with me, my daughter or on his Xbox, he doesn't even go out drinking. We have been best friends since we were 20 though so I suppose he's dealt with soooo much since then he takes it in stride. I'm truly blessed.

June 4, 2018
A MySpondylitisTeam Member

No

December 29, 2022
A MySpondylitisTeam Member

Hard to be interested when it increases migraine intensity. Talking sexy helps until we have a private evening with little pain and no kids.

December 18, 2022

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