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Do You Feel Like As Your Symptoms Change You Are Losing Parts Of Your Identity?
A MySpondylitisTeam Member asked a question 💭

Hi everyone,

I was diagnosed with Ankylosing Spondylitis last year and it really destroyed my world. I was 21 and training to be a professional dancer so it felt like everything I'd been working towards was gone.

The past year I've worked really hard to get my illness under control with medication and lifestyle changes. I'm back dancing and training to achieve my dream. The plan was to try a biologic injection but recent imaging has shown that I don't have active inflammation anymore and my… read more

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A MySpondylitisTeam Member

Hi Yousef,

Many thanks

I just try to eat as balanced a diet as possible, I don't follow any particular regimes. I swim occasionally but I go to the gym and dance regularly.

I take sulfasalazine… read more

Do People With As Commonly Get Choked While Eating Or Drinking?
A MySpondylitisTeam Member asked a question 💭
Jaw Pain With Ankylosing Spondylitis: Causes and Management Read Article...
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. Yes, exactly like that. People frequently ask if I'm okay. My voice will stop entirely mid word or won't come out at all sometimes. Forget speaking up over background… read more

Any Men With AS Get Testicle Pain?
A MySpondylitisTeam Member asked a question 💭

As in little league baseball. The nerve associated with being hit with force sends pain signal soaring to brain even though never being hit.
the neighbors knocking on the door - as you scream going downstairs. Happens to me every so often. Freezing Cold packs help.. Understanding AS, the entire pelvic area gets compromised..

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A MySpondylitisTeam Member

@A MySpondylitisTeam Member. Yikes!! Well, hell Gregory I'm sorry. Maybe I can describe what I feel with Psoriatic Spondylitis, Osteoarthritis, and Osteoporosis and it might ring a bell to help you… read more

Can A Spinal Cord Stimulate Help
A MySpondylitisTeam Member asked a question 💭

I have axial spondylitis and bulging discs

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Axial Spondyloarthritis: What You Should Know Read Article...
How Do U Manage Ankylosing Spondylitis Pain?
A MySpondylitisTeam Member asked a question 💭

i also have several la bulging disks and degenerative disc disease ( basically all but three disks have some sort of problem)and constantly juggling which tendon makes me want to cry from pain. exercise is not an option until i can get pain under control i am already taking coesentrix monthly and tons of supplements and muscle relaxers daily and hydrocodone daily(1 pill). what meds are folks taking?

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A MySpondylitisTeam Member

Tomo flexeril al acostarme

Has Anyone Had PRP-plasma Rich Platelet Procedure Or Ablation Done In The Sacroiliac Illium Joints For Pain Management?
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. Cannabis gummies. The only thing that doesn't stop inflammation, but diminishes the perception of pain. Not so much to lock me to the couch, just enoughbto take the edge… read more

Can You Have Spondylitis Without It Being Akylosing Spondylitis? Does Anyone Have Nr-axspa That Never Progressed To Full-blown AS?
A MySpondylitisTeam Member asked a question 💭

I have all the symptoms of spondylitis - chronic back pain that improves with movement/exercise but worsens with rest, regular flares, peripheral joint pain, and myofascial pain. It all kicked off with chronic low back pain and a diagnosis of chronic sacroiliitis when I was 27. I'm 51 now, and still no diagnosis, in spite of having chronic pain off and on for all these years, which has gotten markedly worse since I reached menopause. I'm being gaslit by doctors who are gobsmacked that I'm asking… read more

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A MySpondylitisTeam Member

Thanks, @A MySpondylitisTeam Member. I keep fighting, but the longer I'm in this fight, the less respect I have for the medical community. There aren't any rheumatologists who specialize in AxSpa… read more

Does Anyone Feel Guilt, Lonliness, Shame Or Blame Since AS Diagnosis?
A MySpondylitisTeam Member asked a question 💭

I've dealt with lower back pain since 2019, & never heard of AS before. Thought I over did it with projects and lifting too much, but the pain is still here in 2024. I have or had plantar facitis, sciatica, bone marrow edema, herniated discs, spinal stenosis, bone spurs (all noted on MRI) 2 colonoscopy's, diverticulitis, endoscopy, gall bladder removed, 3 sets of trigger shots, SI joint Injections, IBS and I am positive for HLA-B27. I was recently diagnosed with AS. (Finally! - not that I ever… read more

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A MySpondylitisTeam Member
Does Anyone Besides Me Have It Where You Feel Like You Are Getting An Extremely Tight Hug In Your Chest?
A MySpondylitisTeam Member asked a question 💭

Symptom

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A MySpondylitisTeam Member

Yes most definitly..it happens about once a year and is dangerous..i say this because it landed me in the ER thinking i was having a Heart Attack..come to find out it was my Heart Muscle..Spondylitis… read more

If AS Is The Fusion Of Vertebra (ankylosing), How Is It That You Can Have It Without Being Able To Detect Any Fusion?
A MySpondylitisTeam Member asked a question 💭

The article mentions that one of the symptoms is sometimes psoriasis, in addition to other common psoriatic arthritis symptoms such as heel pain and IBD etc. Wouldn't the correct diagnosis then be Psoriatic Spondylitis? Whats the difference when there is no evident fusion? Do treatments between the two differ?

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Prevalence of Nonradiographic Axial Spondyloarthritis (nr-axSpA): Is It Common? Read Article...
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. Yeah, that osteophyte wasn't in this latest MRI either. It was an xray a year ago that reported it on L3. I do have 3 bulging discs and a cyst though inside the vertebra… read more