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It Says I Live In Illinois. I Live In NY. How Do I Change That?
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Hi Tim,

To change your location, please follow these easy steps
1. Log in to your profile.
2. Click on the three lines on the page's top left.
3. A menu will appear. Choose 'Settings' and then… read more

Does Anybody Else Have "Bamboo Spine"?
A MySpondylitisTeam Member asked a question 💭
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Bamboo Spine in Ankylosing Spondylitis Read Article...
A MySpondylitisTeam Member

@A MySpondylitisTeam Member definitely won't hurt to learn more about it, I always approach it with caution because of others experience.

How Many AS’ers Also Have Breathing Issues?
A MySpondylitisTeam Member asked a question 💭

I was told years ago that I have Restrictive Lung Disease. Way before my AS diagnosis.
Just wondering how many people also have Asthma, COPD or other lung impairments because it seems that there is a relation with AS.

Thanks 😊

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A MySpondylitisTeam Member

Yes, I am diagnosed and treated for asthma. I have had pneumonia 4x in the past seven years. I have extreme back pain - thoracic, at the hip and neck pain. Taking tramadol, and baclophen for the pain… read more

I'm In Phoenix And Looking For A Support Group. Any Ideas?
A MySpondylitisTeam Member asked a question 💭
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A MySpondylitisTeam Member

Welcome to the team! This is the most informative site I've found on Spondylitis

E Mail Notifications
A MySpondylitisTeam Member asked a question 💭

Why do I keep getting the same notifications throughout the day. I have looked at the setting can't see what ive done. Not as popular as i thought same email over and over again 😂😂😂

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A MySpondylitisTeam Member

I hear you @A MySpondylitisTeam Member Feel free to email me directly when you get a chance, I'll help you figure it all out. :)

(Email address can only be seen by the question and answer creators)

… read more
Can Diet And Herbs Help My Active Nr-axSpA Symptoms To Be Not Active?
A MySpondylitisTeam Member asked a question 💭

I have Active nr-axSpA and I started to have pain in my both ankle ( swelling, redness)
I take sulphasalazine 2000 mg daily !
Can diet and herbs help my Active nr-axSpA symptoms to be not active?

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A MySpondylitisTeam Member

Thank you so much for sharing.

How Do I Get To Meet People...I'm Using A Tablet...I Can Only Access Answer Questions???
A MySpondylitisTeam Member asked a question 💭

I'm new to this site...I'm using a tablet and can't seem to navigate this site...How do I get help

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A MySpondylitisTeam Member

I use a tablet as well. Keep trying and it gets better. Janice 5

Need Information About Myspondylitisteam
A MySpondylitisTeam Member asked a question 💭

Hello ,can someone please tell me how do I approach my doctor about this, I mean I have Fibromyalgia and have had it for many years. But this past year something was going on with me all I want to do is sleep my whole body hurts like a giant tooth ache
I used to get flare ups with my Fibromyalgia, but this is most of the time it’s just there and it feels like it’s getting worse
I have this burning in my lower spine and when I walk it starts to burn and I need to make sure there a place… read more

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A MySpondylitisTeam Member

I feel your pain, so sorry
I have Fibromyalgia and today a total flare day. Take a shower and keep warm, helps muscles relax. Rest read a good book or put on a good movie. Tomorrow will be a better… read more

Is Anyone Living With Advanced Liver Scarring?
A MySpondylitisTeam Member asked a question 💭

No doctor was monitoring my liver other than standard yearly exam type blood work and the basic test was not showing the advanced disease. My liver enzymes have always been perfect. I asked for a scan and I’m half a point from full blown cirrhosis and headed toward liver cancer. The health system is slow setting me up with specialists. My root cause of liver injury is mismanaged diabetes and possibly an autoimmune disease of Sjogren’s not yet tested for. Rheumy appointment toward end of this… read more

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A MySpondylitisTeam Member

@A MySpondylitisTeam Member who is he?

Enbrel And Medicare
A MySpondylitisTeam Member asked a question 💭

Will be switching to Medicare in a few months and in researching my options I'm finding Enbrel will cost me about $5000 more per year than it does on my current health insurance. What have other people done when moving to Medicare?

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A MySpondylitisTeam Member

Amgen works with a program called Saftynet Fondation , if you qualify you pay 0$ for your Embrel… Contact them