life after covid 19 vaccination what are myspondylitisteam members doing now that theyre vaccinated and spondylitis | MySpondylitisTeam

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Does Anybody Else Have "Bamboo Spine"?
A MySpondylitisTeam Member asked a question 💭
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Bamboo Spine in Ankylosing Spondylitis Read Article...
A MySpondylitisTeam Member

@A MySpondylitisTeam Member definitely won't hurt to learn more about it, I always approach it with caution because of others experience.

E Mail Notifications
A MySpondylitisTeam Member asked a question 💭

Why do I keep getting the same notifications throughout the day. I have looked at the setting can't see what ive done. Not as popular as i thought same email over and over again 😂😂😂

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A MySpondylitisTeam Member

I hear you @A MySpondylitisTeam Member Feel free to email me directly when you get a chance, I'll help you figure it all out. :)

(Email address can only be seen by the question and answer creators)

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Is Anyone Living With Advanced Liver Scarring?
A MySpondylitisTeam Member asked a question 💭

No doctor was monitoring my liver other than standard yearly exam type blood work and the basic test was not showing the advanced disease. My liver enzymes have always been perfect. I asked for a scan and I’m half a point from full blown cirrhosis and headed toward liver cancer. The health system is slow setting me up with specialists. My root cause of liver injury is mismanaged diabetes and possibly an autoimmune disease of Sjogren’s not yet tested for. Rheumy appointment toward end of this… read more

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A MySpondylitisTeam Member

@A MySpondylitisTeam Member who is he?

Need Information About Myspondylitisteam
A MySpondylitisTeam Member asked a question 💭

Hello ,can someone please tell me how do I approach my doctor about this, I mean I have Fibromyalgia and have had it for many years. But this past year something was going on with me all I want to do is sleep my whole body hurts like a giant tooth ache
I used to get flare ups with my Fibromyalgia, but this is most of the time it’s just there and it feels like it’s getting worse
I have this burning in my lower spine and when I walk it starts to burn and I need to make sure there a place… read more

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A MySpondylitisTeam Member

I feel your pain, so sorry
I have Fibromyalgia and today a total flare day. Take a shower and keep warm, helps muscles relax. Rest read a good book or put on a good movie. Tomorrow will be a better… read more

How Many AS’ers Also Have Breathing Issues?
A MySpondylitisTeam Member asked a question 💭

I was told years ago that I have Restrictive Lung Disease. Way before my AS diagnosis.
Just wondering how many people also have Asthma, COPD or other lung impairments because it seems that there is a relation with AS.

Thanks 😊

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A MySpondylitisTeam Member

Yes, I am diagnosed and treated for asthma. I have had pneumonia 4x in the past seven years. I have extreme back pain - thoracic, at the hip and neck pain. Taking tramadol, and baclophen for the pain… read more

It Says I Live In Illinois. I Live In NY. How Do I Change That?
A MySpondylitisTeam Member asked a question 💭
A MySpondylitisTeam Member

Hi Tim,

To change your location, please follow these easy steps
1. Log in to your profile.
2. Click on the three lines on the page's top left.
3. A menu will appear. Choose 'Settings' and then… read more

Does Anyone Feel Guilt, Lonliness, Shame Or Blame Since AS Diagnosis?
A MySpondylitisTeam Member asked a question 💭

I've dealt with lower back pain since 2019, & never heard of AS before. Thought I over did it with projects and lifting too much, but the pain is still here in 2024. I have or had plantar facitis, sciatica, bone marrow edema, herniated discs, spinal stenosis, bone spurs (all noted on MRI) 2 colonoscopy's, diverticulitis, endoscopy, gall bladder removed, 3 sets of trigger shots, SI joint Injections, IBS and I am positive for HLA-B27. I was recently diagnosed with AS. (Finally! - not that I ever… read more

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A MySpondylitisTeam Member
Vaccines While On Biologics?
A MySpondylitisTeam Member asked a question 💭

My doctor wants me to get the shingles and pneumonia vaccines. Technically I’m not at that age yet, but due to the biologics they said I now qualify. Has anyone taken them while on biologics? Did you do ok with them, and how long after your infusion did you wait before getting them? If you had both at the same time, any downside to that? Sorry so many questions!

A MySpondylitisTeam Member

I have had all the covid boosters and shingle and pneumonia shots, this year andviwant to tell you i had only a sore arm for side effects and the thing I got was a cold with very bad cough and a lot… read more

Covid And AS
A MySpondylitisTeam Member asked a question 💭

I have been recently diagnosed with AS. I am a 63 year old female! I had covid that started Jan 25, 2021. (Classified as severe case with hospitalization and pneumonia) I have had continued severe joint pain since covid. Anyone else with covid infection noticed increase in joint pain that persists 60 days or more?

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A MySpondylitisTeam Member

Had the same thing 4 hours after the vaccine. Got diagnosed in december.

Chronic Back Pain
A MySpondylitisTeam Member asked a question 💭

Hi all, I have had a lumbar fusion in 2008, gave me a few years, but the disc's above the fusion are now degenerating, Dr. said Degenerative Disc Disease, more surgery, NO thank you.

Could anyone having back issues tell me what works best for you to relief some of the pain
I take 2 Naproxen, 1 Hydrocodone a day and use cream with Lidocaine in it, that wears off after a couple hours. Have a massage chair. Dr. wants me to ride my stationary bike 1/2 hour - 5 times a week, - I would rather… read more

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A MySpondylitisTeam Member

@A MySpondylitisTeam Member, I never heard of using Vicksburg vapor rub, I googled it and will buy some
I have a list of back stretches the PT gave me
What is your "potent" back creams? The… read more