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Ankylosing spondylitis for 20 years

April 15
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A MySpondylitisTeam Member

@A MySpondylitisTeam Member. I lost count of yhe osteophytes on my facets, and the ones inside what's left of the discs. Yep, damned all the way around. It's incredible what the human body can endure and sometimes manage to live with. The autologous BMAC stem cell transplant i had done 2 years ago appears to have resolved many of them in that area they were injected into, the facets on both sides of C4-7, according to last MRI, full range of motion restored, no pain worth mentioning. 9 nerves were in stenosis in that section, including the central affecting my walking gait and balance. The best part, it was 100% covered when they looked at the alternative recommendations for me. 6 level ACDF. Not thanks. I'll probably do it again if my neck starts acting wonk and stuck again. Out of all the invasive procedures I've had done, it was one of the easiest and least painful by far. More importantly though for you my sweet lady, how are you feeling/faring with that bad old covid? Yours in better health P ☺️ 🙏

April 28
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A MySpondylitisTeam Member

Yes, but I have radiography evidence that mine is from new bone growth on my cervicothorasic site. Then again, the bone growth was probably caused by inflammation. Damned if you do, damned if you don’t and curse a lot. Peace, Pat

April 28
A MySpondylitisTeam Member

@A MySpondylitisTeam Member. Yes, everyone here has that now or in the past to some extent or another. It is a hallmark symptom along with sacroiliitis and everything else. We all do different things for it. What are you going to do for yours?

April 15
MySpondylitisTeam

Are severe neck pain, stiffness, and shoulder issues common with ankylosing spondylitis?

Yes, many people with AS experience severe neck pain, stiffness, and shoulder involvement. You're definitely not alone in this.

Neck pain from AS typically happens when inflammation moves up the spine from the lower back into the Show Full Answer

Are severe neck pain, stiffness, and shoulder issues common with ankylosing spondylitis?

Yes, many people with AS experience severe neck pain, stiffness, and shoulder involvement. You're definitely not alone in this.

Neck pain from AS typically happens when inflammation moves up the spine from the lower back into the neck. This can take months or years to develop, though sometimes neck pain starts first instead of lower back pain.

About 1 out of 3 people with AS develop inflammation in their shoulders. This shoulder involvement is often linked with hip pain, and it can affect one or both sides.

The pain you're describing is inflammatory in nature, which means it:
* Lingers and can worsen over time
* Often feels more intense in the morning or after inactivity
* Usually improves with movement rather than rest
* Can cause severe stiffness lasting 1-2 hours in the morning

A MySpondylitisTeam member described similar intensity: "Neck pain brings tears to my eyes. The pain is so bad it feels like my head's going to rip off my neck."

The collarbone and shoulder pain you're experiencing may also be related to enthesitis (inflammation where tendons attach to bone) or from compensating posture due to spinal changes.

After 20 years with AS, it's important to discuss these symptoms with your healthcare provider. Treatment options including medications, physical therapy, and movement strategies can help manage this pain.

April 15

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