Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people whoโ€™ve been there
  • People who understand what youโ€™re going through
Sign Up Log In
Powered By
Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MySpondylitisTeam Member asked a question ๐Ÿ’ญ
Brighton, UK
July 1, 2025
 · 
Be the first to react
A MySpondylitisTeam Member

@MarjieBrom. Yes. And AS can trigger the SLE and Sjogrens. Consider somatic autonomic nervous system rewiring therapy with a specialized therapist for guidance into it, one experienced in CPTSD. Very hard and likely to trigger a long flare, but once you get that opened up and reset you have a chance at healing by targeting all the hiding pathogens in your body as well as the imbalanced microbiome. I did that in Feb and am only now catching a glimmer of full health restoration. I estimate it will take another year or two to fully chelate all the built up toxins. But to have addressed that CPTSD and have a new set of tools in managing that tendency to drift back into the sympathetic nervous system response has been tremendously helpful. Good luck with that part, it's the toughest to overcome, way harder than the heavy metals accumulation and hidden pathogens like klebsiella pneumoniae, very common in AS patients. Gotta get rid of ALL the built up crapola for any hope of restoration of health. Yours in better health P ๐Ÿ˜Œ๐Ÿ™

July 10, 2025
MySpondylitisTeam

While genetics play a major role in developing ankylosing spondylitis (AS), particularly through the HLA-B27 gene mutation, genetics alone don't determine who develops the condition. Environmental factors and other triggers appear necessary to activate the disease in genetically susceptible people. Known potential triggers Show Full Answer

While genetics play a major role in developing ankylosing spondylitis (AS), particularly through the HLA-B27 gene mutation, genetics alone don't determine who develops the condition. Environmental factors and other triggers appear necessary to activate the disease in genetically susceptible people. Known potential triggers for AS include:
- Infections
- Changes in gut bacteria
- Sleep problems
- Environmental pollution
- Smoking (which can also make treatment less effective)
- Stress (commonly reported by MySpondylitisTeam members as triggering flares)

It's important to work with your healthcare provider to identify and manage your specific triggers and risk factors.

July 1, 2025

Related Questions

View All
A MySpondylitisTeam Member asked a question ๐Ÿ’ญ
Northumberland uk

A MySpondylitisTeam Member asked a question ๐Ÿ’ญ
Grand Haven, MI

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In