Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MySpondylitisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 29, 2023
 · 
Reactions
A MySpondylitisTeam Member

I have not had this experience yet. I’m giving Enbrel 3 more months to work then 🤷🏼‍♀️

I have read that going off will send you into a bad flare up.

There are financial programs to assist with the high cost of these biologics. Just Google “name of drug + financial assistance”. My copay for Enbrel was $2200 a month and the financial aid program knocked it down to $0. Hope this helps. 🤗

September 29, 2023
A MySpondylitisTeam Member

Until a few months ago, I was on biologicals since 2007. For a variety of reasons including the risk factors and side effects, I am considering to just forget about biologicals altogether.

After being off almost 3 months I'm doing better than I thought I would be. Not near great, but mostly bearable, and no big flares yet.

I was curious if anyone has experienced quitting biologicals after being on them for years?

September 30, 2023
A MySpondylitisTeam Member

Thank you for asking this question. I also had been wondering about asking this question.

September 29, 2023
A MySpondylitisTeam Member

I was on Remicade for a long time, and due to switching jobs (Cobra) and insurance company going cheap they switched me to Inflectra. So I went without for like 2 to 3 months and it was an absolute hell for me since I desperately needed it for multiple chronic health conditions (Ulcerative Colitis with associative arthritis, AS, etc……) and the doctor’s office was slow and negligent about fixing things. I had to suffer greatly with no aid. When I got on to Inflectra things got better, but my body has been back and forth with the cheap a$$ biosimilar. This past one I had a backlash which lasted 3-4 days. If my body ends up rejecting it, then I have to get on the Humeira shot. All because of the damn insurance, and I get the insane costs. I always plan for and have to pay the max high deductible which is thousands, but when I hit my cap it gets better. Honestly, I would have given up on life if I had not received biologics. There are pill alternatives, but they are not as good.

September 29, 2023

Related Questions

View All
A MySpondylitisTeam Member asked a question 💭
Columbus, OH

A MySpondylitisTeam Member asked a question 💭
Grand Haven, MI

A MySpondylitisTeam Member asked a question 💭
Mckinleyville, CA