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A MySpondylitisTeam Member asked a question 💭
Asheville, NC

My Dr. And I agree that I would do better Remicade infusion every 6 weeks( insurance 8 weeks) so limited living 3 out of 8 weeks! I told my Dr. that feel like I'm living dogs life. 3weeks out of 8 weeks lost because of a lot of pain and fatigue . So we are looking into changing from 8 week Remicade to another medication from (list of biologics and related) . Anyone experence similar issues and found a better medication to limit / reduce pain and fatigue for those lost 3 weeks of 8 weeks… read more

December 31, 2022
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A MySpondylitisTeam Member

Hi,

Although my insurance covered Remicade for every 6 weeks, my doctor decided to increase the Remicade dosage and continue with every 8 weeks for infusion treatments, which has worked very well.

January 9, 2023
A MySpondylitisTeam Member

I was on Remicade and felt good on it; however my liver enzymes went up, so dr put me on Simponi Aria 1x/8 weeks. Feel good on it mostly. I have mild symptoms the week prior to infusion. Since you have already tried Remicade, insurance might allow you to try Simponi Aria. You might just have to use trial and error to find the right medication. Good luck!

January 8, 2023
A MySpondylitisTeam Member

Most of those companies have complete coverage of your med. You’re just responsible for infusion costs unless it’s a home injection.

November 5, 2023
A MySpondylitisTeam Member

I am on Remicade for 10+ years on 10 weeks dosage of infusion. Now the efficacy of Remicade reduced. Started getring pain and uvities attack frequently. My Dr. advised to shift to other biologics. Found they too are of similar cost as that of Remicade but dosage duration is very less. No insurance in my country not cover the biologics on long run. Finding it difficult to manage expenses of medication biologics and lifes basic requirements to live and sustain..

September 17, 2023 (edited)
A MySpondylitisTeam Member

Look for foundations that will acquire the drug for from a company other than the current one the infusion center is using.

August 14, 2023

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