Hi,
Neck, between shoulder blades, low back. Hips, it has spread to other areas like eyes, other.
I can sort of manage pain, it's the rapid descent into weakness in the last 3 years that has been the hardest.

Evaluate your doc.
I wrote something and I hit wrong button and erased it. Lol.
Anyway, my AS is head to tail outside of spine and it's inside of my spine filling it with a substance that is coming out nerve holes crushing nerves.
My surgeon tried digging out what he could to give me longer. But this substance showed up as a shadow in my mri's and x-rays in my 20's.
Even my arthritis doc admits he is still learning about AS.
The doc who found it was my brain doc cause along with AS, I inherited tremors. So, there are others who know alot about AS. My daughter found a wholistic doc that was considered a near experience expert on it. Way more than my ivy league doc. So each is different, just like each one of us with AS is different.
Best to you

Scott my pain is between shoulder blades too but doctors like dismissing it as not being ankylosing spondylitis bc it’s not lower. Yet I’m HLA b27 positive and just recently started having uveitis as well. All of this started 3 years ago in 2019. It’s rough to say the least.

Mine moved to different parts of back hips and legs. Just recently been having lower rib pain on one side.

My pain starts between my shoulder blades moves under my right shoulder blade around my side and down to my lower back feeling like my ribs impaling my spine...