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A MySpondylitisTeam Member asked a question 💭

. Migraines, seizures memory loss etc or strike like symptoms.

February 13, 2022
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Answer Summary

Members confirmed that neurological symptoms, including migraines, seizures, memory loss, and vision problems, can accompany spondylitis, with... Read more

Members confirmed that neurological symptoms, including migraines, seizures, memory loss, and vision problems, can accompany spondylitis, with many describing experiences like pseudoseizures, brain fog, cluster headaches, and episodes of temporary or partial blindness. Several members shared practical strategies that have helped, including monthly Emgality injections for migraines, seizure medications like levetiracetam, speech therapy for stuttering, and monitoring blood pressure closely since migraines can signal dangerously high levels. A recurring theme was the relief of finally connecting mysterious neurological symptoms to an autoimmune diagnosis after years of uncertainty, fear, and being told symptoms were purely psychological.

A MySpondylitisTeam Member

I get migraines and brain fog. Emgality a once a month inj. Was keeping them at bay but now they are back!😞

February 13, 2022
A MySpondylitisTeam Member

I have weird burning and numbness in my heels.

February 18, 2022
A MySpondylitisTeam Member

Vision? That has slowly gotten worse over the past 2 years or more. Interesting that you mention stuttering. I am a moderate stutter myself. It began in 9th grade following a traumatic incident. When I was in college to be a music teacher, after my 2nd year they made it a condition that I must receive speech therapy for it as I go through my year student teaching component. I was tutored for 4 semesters by 4 different Speech Therapy master students. It was neat because each of them taught me a different technique, which I have combined and use daily. Most people do not even know I am a stutterer. I think because the I am not your traditional caused, childhood stutterer that I have had such success.

February 13, 2022
A MySpondylitisTeam Member

Yes, I too have had these symptoms. Some of the ones that come to mind are pseudo seizures because my seizure threshold was lowered, migraines for decades, memory loss & brain fog, my arms tighten up and draw inward to my chest when I over exert myself.

February 13, 2022
A MySpondylitisTeam Member

Prayers for you

February 23, 2022

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