I was under the impression this site was to discuss various Spondolytis issues and solutions; however, a lot of the site is like Facebook, talking about arts & crafts, family vacations, etc. I’m not here to shoot the breeze about everything under the sun. I’m in serious pain, with serious issues that rob my sleep, my daylight, my eating ability, balance, eyesight, and even my brain. I appreciate people who discuss the medical issues and offer whatever solutions they have found.
Answer Summary
Members gently responded to someone questioning why the community discusses everyday life topics like hobbies and vacations instead of... Read more
You are not alone with your pain and we all understand that you need relief from the misery of this condition. You will find plenty of good information about spondylitis treatment, relief and medications so please keep reading the articles from people who have tried practically everything. But remember in between the pain we try to be normal and do the little things that mean so much to us, like grand kids, hobbies and vacations. We can escape with someone enjoying a few moments of their day having some time-out from this debilitating condition.
If all I think about 24/7 is my condition, my day is going to be a long, painful and hard time. I like to read that someone got a good day - it gives me hope that I may get some of the same!
I am sorry that this site is not what you expected.but it does have a nice human aspect to it.the people on this side SHARE a lot.maybe it's the physical,mental,spiratual, aspect of it all.but THESES DEAR people show a different light in some way.STAY a LITTLE while longer and if it's not for you, I am sure that there is a sight for you.you sound like you could use a little human compassion.and the people on this sight DO exactly t;hat.GOD bless you, I hope you fine what your looking for.
Well, perhaps if you have no understanding of someone needing to stray from there daily pain and maybe bring up there knitting project or vacation, then this site is not suitable for you. Try a little understanding and this site may end up helping you cope. Have a blessed day.
No need to apologise we all have bad days Deborah. We rant rave and moan when we are down and are positive (sometimes) on the good days. I hope you are well. Take care
Ask your questions. Many people enjoy conversing with others as it helps them get a view of other people's lives that live with A.S.
You will be surprised how many people may have ideas or answers to questions that you may ask.