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A MySpondylitisTeam Member asked a question 💭
Effingham, IL

are you an every day or on and off.. i have had pain off and on most of my life. i think what masked it 90 percent of the time is i slept on a warm water bed for years but none the less i had days where it felt like some one stabbing me in the but, my chest felt like i was kicked in the chest and the couple of times i ended up in the er cause my lower back hurt so bad i could not sit or stand. they said it was a pulled muscle.

April 3, 2019
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Answer Summary

Members opened up about living with chronic pain, with the vast majority describing daily, unrelenting discomfort rather than occasional... Read more

Members opened up about living with chronic pain, with the vast majority describing daily, unrelenting discomfort rather than occasional flare-ups, often worsening over time despite surgeries or injections. Several members shared that heat therapy (heated mattress pads, heating pads, warm water beds) provides temporary relief, while others found that staying active, even when painful, helps manage symptoms better than staying sedentary. A recurring theme was the heartbreaking reality that many surgeries meant to help actually made pain worse, leaving members to navigate constant discomfort through a combination of acceptance, careful activity management, and cautious optimism about new treatments.

A MySpondylitisTeam Member

@A MySpondylitisTeam Member, @A MySpondylitisTeam Member and @A MySpondylitisTeam Member
I had a discectomy and laminectomy at L5/S1 in 1995, that relieved almost 50% of the numbness I had all below the waist, but, the pain has worsened gradually ever since. I recently got my medical notes and was surprised to learn that all the specialists I have seen have said that the pain won't ever be relieved and will worsen...joy!
They won't touch my neck!

June 22, 2019
A MySpondylitisTeam Member

I was also worse after back and neck surgery. I always tell people don't even think about surgery unless NO other choice!

June 21, 2019
A MySpondylitisTeam Member

I have intermittent pain but it’s rare if I don’t have any pain. I’ve just come to accept the pain. Being active helps a lot. Right now I’m on an exercise bike at the Y. 40 min has gone by! I like to read and listen to music when I exercise. Best wishes to everyone!

November 5, 2019
A MySpondylitisTeam Member

Iam in pain 24/7.The only relieve I get after I take the Norco.At least for awhile.Injections are not helping much.I wish I never had this surgeries.

October 30, 2019
A MySpondylitisTeam Member

I hope it works out for you, I had a cervical fusion, disctomectomy (sp) 4-6, I am 10 times worse now than I was before, I had been having more and more pain so my pain management doc did a ct scan, and stays on my neck, now 3 and 7 are deteriorating, as well as my neck is out of alignment, I have pain 24/7 now, I pray your surgery goes so much better and helps more than mine did, good luck!

May 23, 2019

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