Question...I saw this asked 2 years ago by someone but didn't see many answers. My inflammation markers are negative and HLAB27 is +. I have (in 4 years) developed severe joint facet arthropathy in my lumbar spine and also have SI degeneration. I know this has all happened in 4 years because in 2018 my MRI lumbar was as close to normal as you can get. I have severe stiffness in lower back, following 3 and a half decades of hyper mobility. I have had 2 cervical discetomies as well. I'm having SI… read more
I am also breathless when doing moving about.
My doc tried to get me in a drug trial but the mri didn’t show inflammation and hla b27 was negative so I don’t qualify. Now I’m stressed that this info will make him rethink my diagnosis. I was happy(sort of) to finally having an answer to why I’m in so much pain all the time and get on track to feeling better(sort of). His diagnosis was based on deteriorating of the si joints caught on an X-ray.
I ask this b/c I have the gene, but my rheumatologist diagnosed me w/ spondyloarthropathy. I have lymphatic colitis, iritis (off/on for years), sacroilitis, and my right hip is bone on bone, so I am having hip replacement in May. Plus my ortho surgeon told me I have lots of arthritis in my back. 🤷🏻♀️
I’ve just read an article on I think it was called spondylitis osteoarthritis. The symptoms fit me exactly I was told I had cervical spondylitis 8 years ago given pain killers an left to rot. Exactly what it said about not showing up on X-ray. I’ve been made to feel like a fraud every time I’ve tried to explain what’s going on with me . How do I go about being tested for this .does any one know any thing about the faulty gene associated with this form of spondylitis. Any information would be… read more
Recently I've been having neck pain, which feels stiff and my hands sometimes feel a little numb or like I'm getting pins and needles. My arms are fine it's just my neck and hands. Could anyone please tell me if this is related to the spondylitis in my spine? Many thanks.
How do doctors give diagnosis when so my things have the same symptoms ???? How can they tell what is what. Not all can be found with blood test.🤔
Hello ,can someone please tell me how do I approach my doctor about this, I mean I have Fibromyalgia and have had it for many years. But this past year something was going on with me all I want to do is sleep my whole body hurts like a giant tooth ache
I used to get flare ups with my Fibromyalgia, but this is most of the time it’s just there and it feels like it’s getting worse
I have this burning in my lower spine and when I walk it starts to burn and I need to make sure there a place… read more
I started having some numbness and tingling in my right shoulder, down the arm and into the hand. This is 2nd time in a week it has happened. I can still move it, still feel like normal, no pain, no other symptoms (other than panic/anxiety thinking it might be a stroke) I mentioned it to my rheumatologist when i saw her last week and she said its probably a nerve as the other time happened when i was driving for a couple of hours..
Has something like this happened to anyone else?